Know Rare

Know Rare has been a member of Linktree for 5 years and joined in December 2020. The social media accounts linked to from Know Rare are: • Facebook • Instagram • YouTube • LinkedIn Besides social media accounts, knowrare has populated their site with: • Anxiety: The Unwelcome Visitor in Rare Disease Journeys — Know Rare • Help with ITP • Get Help for Scleroderma • RSVP to the Know Rare Author Series Kickoff Event • Get the latest updates about IgA Nephropathy • Journaling for Managing IgA Nephropathy Symptoms • Help with Danon Disease • Take the Fatigue Survey • Help with IgA Nephropathy (IgAN) • Comprender MOGAD y la importancia de la participación del paciente • Organization Spotlight: Danon Foundation — Know Rare • Share your Rare: Edward Gent • IgAN and Fatigue - Take the Survey • Changemakers in Rare: Becca Salky • Perception of Stress Survey • How IgA Nephropathy Is Treated • Visit Our Website knowrare.com • Steroid Use & Myelin Oligodendrocyte Glucoprotein (MOGAD) • The Toll of Rare Disease on Mental Health and What Can Be Done About It • How to Manage Loss You Can Feel But Cannot See • The Language of Rare • I Choose Rare by Laura Will • What to Know About Observational Studies — and Why They May Be Right for You • Role Models Light the Way on a Rare Disease Journey • Take The Rare Disease Fatigue Survey • Observational Study in CMS • Know Rare Connect: Observational vs. Interventional Studies Webinar • KR Blog: 5 Ways Employers Can Support Rare Disease Caregivers in the Workplace • The Surprising Link Between Exercise and Myositis • How is Congenital Myasthenic Syndrome (CMS) Different from Myasthenia Gravis (MG)? • KR Blog: The Healthy Sibling: A rare mom focuses on supporting her daughter, sister to a child with medical complexities and disability • KR Blog: Improving Access to Specialized Care • RSVP: TSF's Atlanta Patient Day for NMOSD & MOGAD | The Sumaira Foundation • KR Blog: Offering Community Care and Emotional Care to Rare Disease Families • KR Blog: For Chris Anselmo, Role Models Light the Way on a Rare Disease Journey • The Importance of Social Support in Coping With the Ambiguous Loss of Rare Disease — Know Rare