@creatineinfo

creatineinfo has been a member of Linktree for 5 years and joined in November 2020. The social media accounts linked to from creatineinfo are: • Facebook • LinkedIn • Payment Besides social media accounts, creatineinfo has populated their site with: • Press Release: $4 million investment with Ultragenyx • Kids Camp Survey • GAMT Sibling study • 2025 CCDS Virtual Conference • Register for Walk for Strength • Sign up for Sibtalks • ACD Website • Dr. Chin-Yi Chen Q&A • ACD Newsletter • Community Chat Series: Supports and Communication in Education • ACD Shop • 2026 WFS Sponsorship Form • Behind-the Scenes at UCLA • Bell Ringing Ceremony with Jeff Allen • Join Momentum League • GIRLS IN CTD RESEARCH • Aleksander Bogoniewski Q&A • Newborn Screening • Team Crosby In The News • Donate to our Race for a Cure • Tesla Peretti in the Walia Lab - Western Blotting • GAMT Deficiency GAA Circadian Study Opportunity • Ace Line Plant - Walk Sponsor • Alzchem - Walk Sponsor • Brighton Park Capital - Walk Sponsor • Donate Now | 10th Annual Walk for Strength by Association for Creatine Deficiencies • Tesla Peretti in the Walia Lab - Protein Extracton • Virtual Conference Registration • Hope For Oscar • Race for the Cure - Acceleration Grants • Dr. Steven Baker - CTD Study • PatientINFO 2024 Registry Report • National Academies: Report Release Webinar • Jeff Allen - Access Hollywood Interview • Changes in Newborn Screening - TIME mag • Take Action! Sign to save the newborn screening system • Watch the April Community Chat • Frontiers Article: How a patient-led advocacy organization supports the road to diagnosis and treatment of Creatine Transporter Deficiency • Read the March Newsletter • Follow Jeff's Journey on Youtube • Getting on BeastGames - Jeff Allen's Story • The Iced Coffee Hour - Jeff's in-depth interview • Two Disabled Dudes Podcast - Guest, ACD's Heidi Wallis • September Community Chat Series Sign Up • VOTE NOW: Challenge or Reward for Jeff's 68 mile walk • Ceres Town Hall Recording • 20% Off ACD Merch • Follow Jeff's Journey • Take Action - U.S. Advocacy Opportunity! • Special Occasion Fundraiser Support Request • 2024 Symposium Presentation Recordings • Chan Zuckerberg Initiative CCDS success story • View Dr. Lipshutz's Talk on Gene Therapy • View Tannalyn Neufeld's Talk on Language Development • Troy Webster - Optimal Dosage for IT Delivery of SLC6A8 Gene Therapy • ACD Q3 Newsletter • ACD Community Survey • CCDS Day 2024 - Association for Creatine Deficiencies • Holiday Heroes - Association for Creatine Deficiencies • EL-PFDD Meeting on CCDS • No Limits - Association for Creatine Deficiencies • 2024 CCDS Scientific + Patient Symposium in Salt Lake City, UT - Association for Creatine Deficiencies • Home Page - CreatineInfo Registry • ICD-10 Coordination and Maintenance Committee Meetings | CMS • Holiday Heroes 2023 Fundraising Kit - Association for Creatine Deficiencies • bit.ly • Sibshops Sign-Up - Association for Creatine Deficiencies • Core Outcome Set (COS) - Association for Creatine Deficiencies • CCDS Day 2024 Registration - Association for Creatine Deficiencies • Community Chat Series - Dr. Steven Baker 11/17/2023 • ACD Australia • CCDS Day 2023 Video - English • Community Chat Series - Association for Creatine Deficiencies • Newborn Screening - Association for Creatine Deficiencies • CA Public Health - GAMT Newborn Screening Announcement • ACD Registry • 2024 CCDS Scientific & Patient Symposium Presentation Recordings • Ask the Experts • secure.givelively.org • Visit our Website • CCDS Symptoms & Screening • Find us on Facebook!