@IDefine

@IDefine has been a member of Linktree for 4 years and joined in September 2021. The social media accounts linked to from @IDefine are: • Facebook • Instagram • YouTube • Email Besides social media accounts, IDefine has populated their site with: • Donate to IDefine • KS Day Photo Submission Form (Due 9/10/24) • Get Tickets: 2026 Southern Roots Reunion (April 11) • Visit Our Website: IDefine.org • Recent Announcements • Get Tickets: I Love Someone Rare Benefit Concert (May 22) • Join Us: Ella's All-star Lineup Concert (May 12) • IDefine Joins Multi-Foundation Research Collaboration with Johns Hopkins to Advance Novel RNA Therapeutic Platform • IDefine Blog • Register: 2027 Kleefstra Syndrome Family Conference • Buy Tickets: 2026 Karaoke for Kleefstra • KS International Care Guidelines • Share Your Feedback on the 2026 Family Conference! • Start Your Own Fundraiser in Support of KS Research • In the News: CheckRare Interview with IDefine CSO Eric Scheef, PhD • 2026 Family Conference Session Recordings • Shop "I Love Someone Rare" Gifts + Apparel • Recommend a Healthcare Provider to the KS Community • Register today: 2024 North American Kleefstra Syndrome Family Conference • Simons Searchlight: Help Advance Knowledge in Kleefstra Syndrome • Meet Ari: Your new teammate for the hard work of Kleefstra caregiving • Genetic Counseling Sessions in the Caregiver Village • CSO Corner Blog • Our Rare Journey: Stories from our Kleefstra Community • Sign up for the Biorepository Collection at the Conference! • Watch Presentations: 2024 North American Kleefstra Syndrome Family Conference • ICD-10 Code ID Card for Kleefstra Syndrome • Sign Up for Our Newsletter • Join the Kleefstra Syndrome Worldwide Map • Citizen Health: Navigate Care Decisions with Personalized Support