@IDefine

@IDefine has been a member of Linktree for 4 years and joined in September 2021. The social media accounts linked to from @IDefine are: • Facebook • Instagram • YouTube • Email Besides social media accounts, IDefine has populated their site with: • HELEN Journal: KS Cover Story • Family Conference Livestream (Emerson Room) • Family Conference Livestream (Edenvale B + C Room) • Family Conference Agenda • Press Release: IDefine Joins Research Collaboration with Johns Hopkins • IDefine Blog • IDefine Joins Multi-Foundation Research Collaboration with Johns Hopkins to Advance Novel RNA Therapeutic Platform • Join Us: Ella's All-star Lineup Concert (May 12) • Get Tickets: I Love Someone Rare Benefit Concert (May 22) • Recent Announcements • Visit Our Website: IDefine.org • Get Tickets: 2026 Southern Roots Reunion (April 11) • KS Day Photo Submission Form (Due 9/10/24) • Donate to IDefine • CSO Corner Blog • Shop "I Love Someone Rare" Gifts + Apparel • Meet Ari: Your new teammate for the hard work of Kleefstra caregiving • Simons Searchlight: Help Advance Knowledge in Kleefstra Syndrome • Register today: 2024 North American Kleefstra Syndrome Family Conference • Genetic Counseling Sessions in the Caregiver Village • Our Rare Journey: Stories from our Kleefstra Community • ICD-10 Code ID Card for Kleefstra Syndrome • Sign up for the Biorepository Collection at the Conference! • Watch Presentations: 2024 North American Kleefstra Syndrome Family Conference • Newsletter Sign Up • Join the Kleefstra Syndrome Worldwide Map • Citizen Health: Navigate Care Decisions with Personalized Support