@raregivers
Raregivers™ is dedicated to improving the lives of people with Rare Disease.
Raregivers Film Night: The Greatest Showman @ RIVIAN South Coast Theater
Raregivers Film Night: The Greatest Showman @ RIVIAN South Coast Theater
Join us for an exclusive film screening and interview with Sam Humphrey ~ actor and advocate. Attend or Sponsor a Rare Mother ~ Raregivers supports 565,000+ families living with uncured genetic diseases. See you Feb 27th!
Website
Website
Raregivers™ provides emotional support and resources for rare disease caregivers, patients, and professionals. Our Emotional Journey Map Guidebook offers evidence-based guidance, distributed globally through key partnerships. Join us in amplifying emotional relief for the rare disease community.
Donate
Donate
#Raregivers100
#Raregivers100
Join the Raregivers100 movement to honor unsung heroes in rare disease care. Nominate influential figures who inspire and support in complex care communities.
Support Groups
Support Groups
Join our Raregivers Community
Join our Raregivers Community
Raregivers Inc. Email Forms
Raregivers Journey Map
Raregivers Journey Map
Blogs
Blogs
Discover empowering blogs for rare disease caregivers at Raregivers. Gain insights, support, and inspiration tailored to your journey.
Rare Disease Hotline
Rare Disease Hotline
Twitter
Twitter
YouTube
YouTube
Raregivers™ is a global network that delivers emotional support to caregivers, patients and professionals in rare, chronic and complex disease communities. We deliver daily compassion and relief to individuals who feel isolated and overwhelmed. Our organization provides mental health and wellness services - from support groups and transformative retreats to a connective peer-to-peer multilingual network. Raregivers currently supports over 565,000+ families across 38 countries, with a bold goal to connect and educate 3.5 million Raregivers by 2026. Raregivers: 1. Those rare individuals who hold both hope and grief in the same human heart. 2. Caregivers, patients, family, friends, teachers, doctors, medical professionals, patient organizations, payers, biopharmaceutical employees, researchers, academics, advocates, gamers, entertainers, technologists and all others in the community giving their talents, time and life-force to further and honor chronically medicalized lives.
Stay Calm Meditation
Stay Calm Meditation
Padma Gordon is a Spiritual Guide, Embodied Mindfulness Counselor, Movement Educator, Author of Being Together: Practical Wisdom for Loving Yourself and Your Partner (published August 2020), mother an
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Instagram
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