@rarediseaseadvisor

rarediseaseadvisor has been a member of Linktree for 3 years and joined in May 2023. The social media accounts linked to from rarediseaseadvisor are: • Facebook • Instagram • LinkedIn • X Besides social media accounts, rarediseaseadvisor has populated their site with: • IgG4-Related Disease (IgG4-RD) • Rare Disease Day Is a Grass Roots Endeavor - Tara Keith • Pulmonary Arterial Hypertension (PAH) • Jaimie Sheil, CIDP Contributor • Idiopathic Pulmonary Fibrosis (IPF) • Liliana Solis: Hemophilia’s Grip on My Life Since Childhood • Cystic Fibrosis (CF) • How Platelet and Plasma Donations Saved My Life With ITP • Alpha-1 Antitrypsin Deficiency (AATD) • Bruce Campbell: My Yearly Battle to Obtain Treatment for a Chronic Lifelong Disease • Medullary Thyroid Carcinoma (MTC) • Faye Adams: “You Have ATTR-CM,” Now What? • Hepatocellular Carcinoma (HCC) • Ed Tobias: The Check-Out Aisle Challenge • Chronic Lymphocytic Leukemia (CLL) • Living With ITP Can Be Tough During the Holidays - Rare Disease Advisor • Cholangiocarcinoma (CCA) • Danielle Alstat: Women May Benefit From Routine Liver Function Tests to Aid in PBC Diagnosis • Acute Lymphoblastic Leukemia (ALL) • Kirsty Coleman: Advocacy Helps Me Manage ITP • Thymidine Kinase 2 Deficiency (TK2d) • Is it Just Pins and Needles? My Journey to a CIDP Diagnosis - Rare Disease Advisor • Transthyretin Amyloid Polyneuropathy (ATTR-PN) • MS Can Force Tough Disability Disclosure Decisions - Ed Tobias • Spinal Muscular Atrophy (SMA) • Keyana Sullivan: Starting Physical Therapy Again for My Pompe Disease • Neuromyelitis Optica Spectrum Disorder (NMOSD) • With Mom's Help, MIT Math Whiz Makes His Mark Despite Lifelong SMA Challenges • Myasthenia Gravis (MG) • Living With AATD Means Watching What I Smell • Multiple Sclerosis (MS) • Lennox-Gastaut Syndrome (LGS) • Huntington Disease (HD) • Friedreich Ataxia (FA) • Duchenne Muscular Dystrophy (DMD) • Dravet Syndrome (DS) • Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) • Fabry Disease • Hereditary Angioedema (HAE) • Cold Agglutinin Disease (CAD) • ANCA-Associated Vasculitis (AAV) • Wilson Disease (WD) • Lysosomal Acid Lipase Deficiency (LAL-D) • Gaucher Disease (GD) • Alagille Syndrome (ALGS) • Systemic Mastocytosis (SM) • Sickle Cell Disease (SCD) • Primary Central Nervous System Lymphoma (PCNSL) • Systemic Mastocytosis (SM) Companion • Paroxysmal Nocturnal Hemoglobinuria (PNH) • Primary Biliary Cholangitis (PBC) Companion • Myelofibrosis (MF) • Hemolytic Disease of the Fetus and Newborn (HDFN) Companion • Myelodysplastic Syndromes (MDS) • Immune Thrombocytopenia (ITP) • Hemophilia • Hemolytic Disease of the Fetus and Newborn (HDFN) • Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT) • Diffuse Large B-Cell Lymphoma (DLBCL) • Primary Biliary Cholangitis (PBC) • Gastrointestinal Stromal Tumor (GIST) • Prader-Willi Syndrome (PWS) • Achondroplasia • Systemic Sclerosis (SSc) • Generalized Pustular Psoriasis (GPP) • Transthyretin Amyloid Cardiomyopathy (ATTR-CM) • Pompe Disease (PD) • Long Chain Fatty Acid Oxidation Disorder (LC-FAOD) • Visit our website!