
To help keep our community authentic, we're showing information about accounts on Linktree.
Lipodystrophy United has been a member of Linktree for 1 year and joined in October 2024. The social media accounts linked to from Lipodystrophy United are: • Facebook • Instagram • YouTube • Email • X • Bluesky • Website Besides social media accounts, lipodystrophyunited has populated their site with: • Special World Lipodystrophy Day Event. • Register - EL-PFDD Meeting - Lipodystrophy United • 25 for $25k Fundraiser • EL-PFDD Pre-meeting Survey • Submit a Comment - Lipodystrophy United • Give an Hour Debrief • Pancreatitis & Mental Health: What You Should Know (Part 1) - Mission:Cure • Meeting Registration - Tea with LU June 23 • Genotype-first approach reveals monogenic lipodystrophy is underdiagnosed, with health and mortality risks - eBioMedicine • Polyendocrine Metabolic Ovarian Syndrome: New name to improve diagnosis and care of condition affecting 170 million women worldwide | Endocrine Society • Chicago Photoshoot for the Lipodystrophy Community • Patient Meetings – LMNA Cardiac • Study on Generalized Lipodystrophy, Compensation $150 • Lipodystrophy United Patient Advisory Board Application • Advocacy in Action: I'll Never Forget Your Story | News | Patient Advocacy Initiative | University of Notre Dame • Nutritional Guide Testimonial Feedback Form • Something Only I Can See - This American Life • Research, News, and Clinical Trials • Chiesi "Your Guide to Living with Lipodystrophy" • Lipodystrophy United | Official Merchandise | Bonfire • Lipodystrophy United • Subscribe for Newsletter • Living with Lipodystrophy | Facebook • Tea With LU - register here • How to Donate • How to Volunteer • Lipodystrophy United | LinkedIn