Your Support Matters!

Your Support Matters! has been a member of Linktree for 3 years and joined in January 2023. The social media accounts linked to from Your Support Matters! are: Facebook. Besides social media accounts, kcnt1 has populated their site with MDBR - Donate to Team KCNT1 and Roman's Riders and help support KCNT1 research!, Register for June's Bereaved Parent Gathering: 6/14 8pm EST, Understanding Mosaicism Webinar Registration: 6/16 12pm EST, Register for the June Parent Hang Out: 6/23 7pm EST, Understanding ASOs and Informed Consent Registration: 6/30 4:30pm EST, Sending Birthday Wishes for those with KCNT1 Disorders, Be Counted! KCNT1 Inaugural Census Count!, Citizen.Health, 'This is real': Newport Beach family seeks to ensure rare disease funding continues, Bilingual Volunteers Needed for KCNT1, SAMi | The Nighttime Sleep Activity Movement Monitor, Subscribe to our Newsletter, Doctor Registration Home — KCNT1 Epilepsy Foundation, Join our Professional Network - For researchers and clinicians, KCNT1 Birthday Announcement Sign-up Form, Meet Alexandria Wild, @Georgia Power 's Environmental Affairs team and mother to Emmy, KABC KCNT1 Epilepsy 5-25-23.mp4, Local Boy’s Journey With Rare Epilepsy Offers Hope to Others, ONCE UPON A GENE - EPISODE 182 - Doctor and Rare Disease Dad Is On A Mission to Accelerate Research — Once Upon A Gene, New hope for boy with rare epilepsy who has up to 50 seizures a day | ITV News, Contact Us and Join Our Mailing List, Parents: Register to receive our updates, Information for families, Videos on Vimeo, Digital Natural History Study with Invitae & Ciitizen, Website, Instagram, Facebook, www.linkedin.com, Our Merch Shop on Bonfire.