Your Support Matters!

Your Support Matters! has been a member of Linktree for 3 years and joined in January 2023. The social media accounts linked to from Your Support Matters! are: • Facebook Besides social media accounts, kcnt1 has populated their site with: • August's KCNT1 Grandparent Gathering: 8/16 3pm EST • July's KCNT1 Bereaved Parent Gathering: 7/26 8pm EST • July's KCNT1 Parent Hang Out: 7/21 7pm EST • MDBR - Donate to Team KCNT1 and Roman's Riders and help support KCNT1 research! • Sending Birthday Wishes for those with KCNT1 Disorders • Be Counted! KCNT1 Inaugural Census Count! • Citizen.Health • 'This is real': Newport Beach family seeks to ensure rare disease funding continues • Bilingual Volunteers Needed for KCNT1 • SAMi | The Nighttime Sleep Activity Movement Monitor • Subscribe to our Newsletter • Doctor Registration Home — KCNT1 Epilepsy Foundation • Join our Professional Network - For researchers and clinicians • KCNT1 Birthday Announcement Sign-up Form • Meet Alexandria Wild, @Georgia Power 's Environmental Affairs team and mother to Emmy • KABC KCNT1 Epilepsy 5-25-23.mp4 • Local Boy’s Journey With Rare Epilepsy Offers Hope to Others • ONCE UPON A GENE - EPISODE 182 - Doctor and Rare Disease Dad Is On A Mission to Accelerate Research — Once Upon A Gene • New hope for boy with rare epilepsy who has up to 50 seizures a day | ITV News • Contact Us and Join Our Mailing List • Parents: Register to receive our updates • Information for families • Videos on Vimeo • Digital Natural History Study with Invitae & Ciitizen • Website • Instagram • www.linkedin.com • Our Merch Shop on Bonfire