@aldconnect

aldconnect has been a member of Linktree for 5 years and joined in October 2020. Resources aldconnect has populated their site with include: • Voice of the Patient Report • C26:0-lysophosphatidylcholine in X-linked adrenoleukodystrophy • Minoryx - Press Release • Construction and Validation of the Infantile Neurodevelopmental Rating Scale (iNDRS) • 2023 Annual Report • Transplant: Donor Search & Selection • Webinar: Grief 101: Updates, Hard Truths, and Myths • ALD Connect - 2026 Community Campaign • Words of Wisdom for Newly Diagnosed ALD Patients and Families • Clinically Relevant Outcome Measures in Women With Adrenoleukodystrophy • 2024 Annual Report • Wheelchair Travel Guide • ALD Connect Newsletter • 2025 Annual Meeting and Patient Learning Academy • The Grey Zone: My Genetic Test Comes Back 'Variant of Uncertain Significance' – Now What? • Emerging Investigators • Adrenal Insufficiency Starter Pack: Basics for Newly Diagnosed ALD Families • ALD Landscape • Cerebral ALD in Adults • ALD Connect website • An Exploratory Study of Disclosure of X-linked Conditions between Mothers and Daughters • ALD Connect - Protocol for Making Dried Blood Spot Cards at Home • EL-PFDD Poster • ALD and Me: A Kid's Guide to ALD • Subscribe to the ALD Connect Newsletter • International Recommendations for the Diagnosis and Management of Patients with Adrenoleukodystrophy • MRI Information Sheet • ALD Community Calendar (Register for Community Calls) • The Grey Zone • ALD Connect YouTube Channel • Patient and Family Support Program Application • Peer Mentor Program