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ACTION

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Improving Treatment & Outcomes for Children with Muscular Dystrophy - Advanced Cardiac Therapies Improving Outcomes Network
Events - Advanced Cardiac Therapies Improving Outcomes Network
ASAIO 2026 Abstract - D Tolani - Predictors of Major Adverse Events Among Pediatric Patients undergoing HeartMate 3 Implantation: An ACTION registry study
ACTION Publication Proposal Request - ACTION Learning Network
ASAIO 2026 Abstract - C Freitas - Invasive Fungal Infection in Pediatric Ventricular Assist Device Support: An ACTION Registry Analysis
ASAIO 2026 Abstract - K Puri - Development and Utilization of Stage of Pediatric Cardiogenic Shock (STOP-CS) Severity Classification
ASAIO - 72nd Annual Conference - June 17 - 20, 2026
Prospective Multicenter Evaluation of a Novel Active Driving System for Pediatric Ventricular Assist Device Support - Advanced Cardiac Therapies Improving Outcomes Network
Multicenter Registry Analysis of Bivalirudin for Primary Anticoagulation in Pediatric HeartMate 3 Recipients: ACTION Analysis - Advanced Cardiac Therapies Improving Outcomes Network
Improving Treatment & Outcomes for Children with Muscular Dystrophy - Advanced Cardiac Therapies Improving Outcomes Network
ACTION Events Calendar
Meeting Report: Expanding Access to Advanced Cardiac Therapies, Including Ventricular Assist Devices (VADs) and Heart Transplantation in Muscular Dystrophy - Advanced Cardiac Therapies Improving Outcomes Network
Pediatric Device Showcase: Cardiovascular Focus presented by MPDC & ACTION Tickets, Friday, May 15 from 8 am to 5:30 pm | Eventbrite
Double Bridge to Heart Transplantation: Outcomes of Early vs Delayed Extra Corporeal Membrane Oxygenator Crossover in Pediatric Population - Advanced Cardiac Therapies Improving Outcomes Network
Patients and Caregivers – myactioneducation.org
CPR Emergency Algorithms & Care Guide – myactioneducation.org
ACTION @ STS: Outcomes of Ventricular Assist Device Placement in Pediatric Patients with Renal Dysfunction Requiring Dialysis: An ACTION Registry Analysis - Advanced Cardiac Therapies Improving Outcomes Network
ACTION Publication Proposal Request - ACTION Learning Network
VAD and Heart Transplantation in DMD: Guidance for Providers - Advanced Cardiac Therapies Improving Outcomes Network
Faith, Fight, and a Second Heart: Marylu’s Story - Advanced Cardiac Therapies Improving Outcomes Network
Dystrophinopathy in ACTION: The first 500 males enrolled in the Advanced Cardiac Therapies Improving Outcomes Network prospective dystrophinopathy registry - Advanced Cardiac Therapies Improving Outcomes Network
Translating Vision into Reality: An Interview with Kurt Dasse, PhD - Advanced Cardiac Therapies Improving Outcomes Network
The Heart of Innovation: Dr. Rich Wampler’s Journey from Loss to Life-Saving Discovery - Advanced Cardiac Therapies Improving Outcomes Network
ACTION @ 2025 Scientific Sessions: Prevalence and Risk Factors for Ventricular Assist Device-Associated Infection in Children - Advanced Cardiac Therapies Improving Outcomes Network
NEW! Impella Patient Education Handbook - Advanced Cardiac Therapies Improving Outcomes Network
Use of SGLT2 inhibitors in pediatric heart failure: a multi-center study - Advanced Cardiac Therapies Improving Outcomes Network
30th Annual Congress of World Muscle Society - ACTION Abstract - Hayes et al
Patient & Family Stories - Advanced Cardiac Therapies Improving Outcomes Network
iDECIDE-VAD-PEDIATRIC: Development of a Decision Aid to Assist Children and Their Caregivers When Considering a Ventricular Assist Device - Advanced Cardiac Therapies Improving Outcomes Network
Cardiotoxicity and Cancer Handout - ACTION & International Cardio-Oncology Society (IC-OS)
Fontan ACTION Plan for Patients - Advanced Cardiac Therapies Improving Outcomes Network
Critical care management of right ventricular failure in pediatric left ventricular assist devices: An advanced cardiac therapies improving outcomes network (ACTION) endorsed statement - Advanced Cardiac Therapies Improving Outcomes Network
Register Here: ACTION VAD Bootcamp | 10/15/2025
ACTION MD Gene Therapy – myactioneducation.org
Our Definitions
Pulmonary Artery Banding in Infants and Young Children with DCM - Advanced Cardiac Therapies Improving Outcomes Network
A Full-Circle Moment: 11 Years After Juliana’s Heart Transplant - Advanced Cardiac Therapies Improving Outcomes Network
ACTION Academic Process Road Map - Download
ACTION Publication Proposal Request - ACTION Learning Network
Contemporary Outcomes of Mechanical Circulatory Support Using Paracorporeal Continuous Flow Pump in Children: A Report From the ACTION Learning Network - Advanced Cardiac Therapies Improving Outcomes Network
VADs in Pediatric Patients Handout
Multi-institutional outcomes of Impella use in pediatric patients: A brief communication from the ACTION Network - Advanced Cardiac Therapies Improving Outcomes Network
2025 Fontan Advanced Therapies & Outcomes Slide Deck
Cardiac Medication Use in ACTION for Duchenne Muscular Dystrophy Cardiomyopathy - Advanced Cardiac Therapies Improving Outcomes Network
Harmonized Protocols - Updated! - Advanced Cardiac Therapies Improving Outcomes Network
Improving Pediatric Heart Failure Outcomes Through Collaboration and Innovation: The Current Status of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) - Advanced Cardiac Therapies Improving Outcomes Network
30th Annual Congress of World Muscle Society- ACTION Abstracts Poster Session - Advanced Cardiac Therapies Improving Outcomes Network
Ventricular Assist Device Use in Pediatric Restrictive and Hypertrophic Cardiomyopathy: An ACTION Registry Analysis - Advanced Cardiac Therapies Improving Outcomes Network
ASAIO - 2025 Preliminary Program
Practice Variation in Thromboprophylaxis Management of Outpatient Pediatric Cardiomyopathy Patients: Survey of ACTION Providers - Advanced Cardiac Therapies Improving Outcomes Network
ASAIO - Timing of a BiVAD: Does Earlier RVAD Implant Confer a Survival Advantage?
Impella®- One Page Summary (OPS) - Advanced Cardiac Therapies Improving Outcomes Network
Capturing Physiologic Data in Children with Heart Failure Using Wearable Digital Technology: Lessons From Pilot Project
Our Publications
The ACTION VAD registry: A collective five-year experience
ACTION @ ISHLT 2025 Details
ACTION @ Heart Rhythm 2025
Apixaban Anticoagulation for HeartMate 3 Ventricular Assist Device Support in Children and Young Adults: ACTION Analysis of Real World Utilization
Characteristics and Outcomes of the Impella VAD in Pediatric Patients: A Report from the ACTION Learning Network
Outcomes in Children Supported with Paracorporeal Continuous Compared to Paracorporeal Pulsatile Ventricular Assist Devices
ACTION Webinar Registration: HeartMate 3 Driveline Infections
Growing Understanding of Ventricular Assist Device Outcomes in Infants with Stage 1 Single Ventricle Palliation
A Contemporary Look at the Hazard of Stroke Across a Year of Support on Pediatric Paracorporeal VAD Support Using the ACTION Registry
Berlin Heart EXCOR Outcomes in the Current Era: A Report from the ACTION Registry
Evaluation of Gender Disparities Among Pediatric Patients with the Heartmate 3 Ventricular Assist Device @ ISHLT 2025
Bridging gaps in pediatric device development: The power of ACTION – a collaborative learning network
Initial ACTION Multicenter Experience with Wireless Pulmonary Artery Pressure Monitoring in Children and Adults with Congenital Heart Disease
Current Global Trends and Challenges Utilizing Pediatric Ventricular Assist Devices: An ACTION Collaborative Survey
Outcomes for Children With Congenital Heart Disease Undergoing Ventricular Assist Device Implantation: An ACTION Registry Analysis
Long-Term Outcomes of Ventricular Assist Devices in Obese Pediatric Patients: An ACTION Registry Study
Beta-Blocker Initiation in Pediatric Heart Failure
Over 100 Fontan Patients on Systemic Ventricular Assist Device Support: An ACTION Update
Cardiac treatment for Duchenne muscular dystrophy: consensus recommendations from the ACTION muscular dystrophy committee
Registration for The Apixaban Experience in the HeartMate3 Patient Population | 4/10/25 4:30pm ET
Ventricular assist device implantation in children with a mechanical valve: An ACTION registry analysis
Current state of neurodevelopmental and psychosocial care practices for paediatric patients with ventricular assist devices: an Advanced Cardiac Therapies Improving Outcomes Network and Cardiac Neurodevelopmental Outcome Collaborative collaborative survey
Proposal Submissions
Taking ACTION to detect myocarditis related to recombinant gene transfer therapy for Duchenne Muscular Dystrophy; Consensus recommendations for cardiac surveillance
ACTION @ Cardiology 2025: Use of SGLT-2 inhibitors in patients with Dystrophinopathy
ACTION @ Cardiology 2025: Visit the ACTION Booth!
Understanding Genetics - ACTION
Improving Treatment & Outcomes for Children with Muscular Dystrophy - Advanced Cardiac Therapies Improving Outcomes Network
Owen’s Story: A Journey of Resilience and Hope - Advanced Cardiac Therapies Improving Outcomes Network
Understanding Your HF Diagnosis
MyACTIONEducation.org
Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience
HeartMate3 LVAD – Updated Patient Education Handbook
ACTION Centers Collaborate with Johnson & Johnson MedTech to Secure FDA Labeling for Impella Support System in Pediatric Patients - Advanced Cardiac Therapies Improving Outcomes Network
Suboptimal Titration of Heart Failure Medications in Pediatric Patients: Baseline Data from ACTION
ACTION/PHTS Virtual Donor Decision Conference December 13, 2024 | 1-6pm ET
DONATE | ACTION
Development and Validation of a Novel Pediatric Mechanical Circulatory Support Risk Stratification Tool: The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Ventricular Assist Device Score
Pediatric Learning Health Networks in Solid Organ Transplantation—Engaging all Stakeholders to Achieve Health for Children Who Require Transplantation
ACTION-ARC Pediatric and Adult Congenital Heart Disease Ventricular Assist Device Adverse Event Definitions-2023
ACTION Abstracts Poster Session | 2024 PCICS Annual Meeting
Proposal Submission Form
ACTION Abstracts Poster Session | 29th Annual Congress of World Muscle Society
Improving Treatment & Outcomes for Children with Muscular Dystrophy
ACTION @ CNOC in St. Louis - An ACTION and CNOC Collaborative Survey - Advanced Cardiac Therapies Improving Outcomes Network
Exploring Medicine Treatment Options – myactioneducation.org
Fontan Advanced Therapies & Outcomes Slide Deck
ACTION Fellows Survey
HeartMate 3â„¢ LVAD Patient Education Handbook for ADULTS
Improving Treatment & Outcomes for Children with Muscular Dystrophy - Advanced Cardiac Therapies Improving Outcomes Network
ASAIO - Christopher Knoll MD - Clinical Characteristics and Outcomes of Pediatric Destination Ventricular Assist Devices
Sarepta Therapeutics Announces Expanded US FDA Approval of ELEVIDYS to Duchenne Muscular Dystrophy Patients Ages 4 and Above | Sarepta Therapeutics, Inc.
Pfizer Provides Update on Phase 3 Study of Investigational Gene Therapy for Ambulatory Boys with Duchenne Muscular Dystrophy | Pfizer
Mechanical Ventilation and Outcomes of Children Who Undergo Ventricular Assist Device Placement: 2014–2020 Linked Analysis From the Advanced Cardiac Therapies Improving Outcomes Network and Pediatric Cardiac Critical Care Consortium Registries - Advanced
Outcomes of Intracorporeal Continuous and Paracorporeal Pulsatile Ventricular Assist Devices in Pediatric Patients 10–30 kg - Advanced Cardiac Therapies Improving Outcomes Network
June 3 @ 12pm ET | ACTION Global Learning Session - Global Pediatric VAD Use
Transcatheter Axial Pump Use in Pediatric Patients on Veno-Arterial Extracorporeal Membrane Oxygenation: An ACTION Collaborative Experience - Advanced Cardiac Therapies Improving Outcomes Network
An Introduction to Myocarditis | ACTION Educational Handout
Heart Transplant Waiting List Process & Resources – My ACTION Education
2024 Pediatric Transplant Conference
Aamir Jeewa - April 2024 ACTION Member of the Month
ISHLT 2024 Abstract Schedule
Multicenter outcomes for ventricular assist device support for failed stage II palliation - Advanced Cardiac Therapies Improving Outcomes Network
Impact of HeartWare VAD discontinuation on the pediatric population: An ACTION registry analysis - Advanced Cardiac Therapies Improving Outcomes Network
February's National Heart Health Month: 66 Hospitals Unite Nationwide under ACTION to Bridge Gaps in Pediatric Cardiac Care - Advanced Cardiac Therapies Improving Outcomes Network
Care Across State Lines: Ricky's Journey to Life-Saving Surgery - Advanced Cardiac Therapies Improving Outcomes Network
NEW Fontan Referral & Surveillance Roadmap (for Providers)
RSVP | ACTION at CHOP Cardiology Conference | Scottsdale - February 2024
Stretching – Cross Body | Heart Healthy Exercise Series with Julian Lerner | ACTION x Julian
Check out ACTION ambassador, Julian Lerner, on the kid-friendly Zigazoo social media platform!
Full Body – Lunge & Raise | Heart Healthy Exercise Series with Julian Lerner | ACTION x Julian
Warmup – High Knees | Heart Healthy Exercise Series with Julian Lerner | ACTION x Julian
Cardio - Star Jump | Heart Healthy Exercise Series with Julian Lerner | ACTION x Julian
Legs - Curtsy Squats | Heart Healthy Exercise Series with Julian Lerner | ACTION x Julian
Arms - YTW | Heart Healthy Exercise Series with Julian Lerner | ACTION x Julian
Outcomes after initial heart failure consultation in Fontan patients - Advanced Cardiac Therapies Improving Outcomes Network
Heart Healthy Video Series - Advanced Cardiac Therapies Improving Outcomes Network
Reducing donor acceptance practice variation – Learnings from a discussion forum - Advanced Cardiac Therapies Improving Outcomes Network
IDECIDE for Pediatrics - English
IDECIDE for Pediatrics- Spanish
ASAIO Abstracts Submission Site
Clinical Outcomes of SARS-CoV-2 Infection in Pediatric Patients on Ventricular Assist Device Support: An Action Registry Analysis - Advanced Cardiac Therapies Improving Outcomes Network
2022 ACTION-VAD Registry data report
Proposal Submission Site
Muscular Dystrophy Resource Tools - Advanced Cardiac Therapies Improving Outcomes Network
PediMagâ„¢ & CentriMagâ„¢ OPS
Muscular Dystrophy: An Introduction to Heart Failure
Berlin Heart EXCOR® Patient & Family Education Handbook Now Available in Spanish! - Advanced Cardiac Therapies Improving Outcomes Network
Improving Treatment & Outcomes for Children with Muscular Dystrophy - Advanced Cardiac Therapies Improving Outcomes Network
8th World Congress of Pediatric Cardiology and Cardiac Surgery
Successful Implementation of Telehealth Visits in the Paediatric Heart Failure and Heart Transplant Population - Advanced Cardiac Therapies Improving Outcomes Network
FDA grants approval via accelerated approval pathway to ELEVIDYS: First-ever gene therapy for individuals with Duchenne ages 4-5
Taking ACTION: A Prognostic Tool for Pediatric Ventricular Assist Device Mortality - Advanced Cardiac Therapies Improving Outcomes Network
First Pediatric Cardiac Device IDE Trial (Berlin Heart EXCOR® Active Driver) has Completed Enrollment Using the ACTION Registry - Advanced Cardiac Therapies Improving Outcomes Network
Book Club Recording | Things My Therapist Doesn't Want Me to Say - Ten Years Post Transplant - Emma Rothman
From ACTION Patient to Summer Intern: Sam’s Story
VAD Discharge at Pediatric Centers- Why can't we get home? | Dr. Hari Tunuguntla et al.
Over 100 Fontan Patients on Ventricular Assist Device Support: An ACTION Update | Dr. Sharon Chen, et al.
Improving Treatment Options & Outcomes for Children with Heart Dysfunction - Advanced Cardiac Therapies Improving Outcomes Network
8/3 Book Club RSVP | Things My Therapist Doesn’t Want Me to Say: Ten Years Post Heart Transplant by Emma Rothman
Fall ACTION Mtg - 9/21 in St. Louis, MO - RSVP Today!
Expanding Use of the HeartMate 3 VAD in Patients within ACTION
ACTION SGLT2 Inhibitor Info Sheet
Upcoming ACTION Events
ACTION Abiomed Impella OPS
Berlin Heart Active Driver Trial Update from ACTION and Berlin Heart, Inc.
Network Stroke Data- Updated April 2023
Spring 2023 Meeting - Advanced Cardiac Therapies Improving Outcomes Network
Andrea Fasbinder | Featured ACTION Member
Congenital Cardiology Today Article
International Pediatric VAD and Heart Failure Summit , Sept 22-23, 2023
National Donate Life Month
ACTION Meeting @ ISHLT 2023
Dr. Carlos Bonilla Ramirez | ACTION @ ISHLT '23
Dr. Erik Frandsen | ACTION @ ISHLT '23
Dr. Edon Rabinowitz | ACTION @ ISHLT '23
Dr. Carol Wittlieb-Weber | ACTION @ ISHLT '23
Dr. Joey Spinner | ACTION @ ISHLT '23
Dr. Deip Nandi | ACTION @ ISHLT '23
Dr. Sabena Hussain | ACTION @ ISHLT '23
Dr. Rob Niebler | ACTION @ ISHLT '23
Hearts & Minds: Neurodevelopment in Pediatric Heart Failure and VAD Patients
ACTION Member of the Month Nomination
Innovative Technologies for Monitoring Children with Heart Failure
Ventricular Assist Device Development: Women and Children... : ASAIO Journal
VAD Discharge & De-Escalation of Care
Innovative Technologies for Monitoring Children with Heart Failure
Our Patients
iDecide VAD Pediatric Patient Decision Aid Infosheet
Our Sites
Our Projects
Our Collaborative
Patient Education
Jennie McAllister | Featured Member
July 14 Virtual Learning Session
Brynn's Story
Press Release | Parent Project Muscular Dystrophy
Research Highlights
Rachel White | Member of the Month
Deip Nandi | Member of the Month
Berlin Heart EXCOR® handbook
HeartMate 3â„¢ LVAD Patient Education Handbook
Nancy Jaworski | Member of the Month
Farhan Zafar | Member of the Month
Nora Hammond | Member of the Month
Raylan's Story
Julianna's Story
Member of the Month Nomination Form
Patient Stories
Brandon's LVAD Story
Infographic: ACHD Patient Journey with HeartMate 3â„¢ LVAD
Research Highlights
2020 Data Report
2020 Highlights Report