@FragileXAustralia
Empowering & supporting the Fragile X community
Webinar Q&A | FX Research Roundup, Tues 9 JULY 20 8PM AEST
Webinar Q&A | FX Research Roundup, Tues 9 JULY 20 8PM AEST
Presenters include: * KATIE CLAPP, Co-Founder FRAXA Research Foundation, sharing a perspective on early stage research and clinical trials in Fragile X syndrome * DR DAVID HESSL, from UC Davis MIND Institute, sharing an update on the International Fragile X Premutation Registry - a resource to advance knowledge about the Fragile X premutation, and support research Hosted by Dr Claudine Kraan PhD, Senior Research Fellow, MCRI. DO YOU HAVE A QUESTION FOR A PRESENTER? (1) ASK BEFORE THE WEBINAR * SHORT QUESTION - in the "Questions" box as you register, OR *DETAILED QUESTION - send email to wendy@fragilex.org.au (2) ASK DURING THE WEBINAR * Ask LIVE in the Q&A segment after the presentation WEBINAR TIME: THURSDAY 9 July 2026 ACT/NSW/QLD/TAS/VIC = 8pm AEST NT/SA = 7:30 pm ACST WA = 6pm AWST
Webinar Q&A | Sensory Processing & Fragile X syndrome, Tues 28 JULY 7:30PM AEST
Webinar Q&A | Sensory Processing & Fragile X syndrome, Tues 28 JULY 7:30PM AEST
Webinar Q&A | Guardianship & Administration in Victoria (only) . 23 JUNE 2026 7PM AEST
Webinar Q&A | Guardianship & Administration in Victoria (only) . 23 JUNE 2026 7PM AEST
Webinar Q&A - Special Disability Trusts, 2 JUNE 2026 7-8PM AEST
Webinar Q&A - Special Disability Trusts, 2 JUNE 2026 7-8PM AEST
Presenter | Margaret Duncan, Duncan Legal Host | Phil Eastbury, FXAA Board member Marg Duncan is Principal Lawyer at Duncan Legal, a Melbourne-based law firm which specialises in disability. In this session Marg will discuss the advantages and limitations of Special Disability Trusts in providing for the future for a person with disability. Please note: This webinar is Live Only and will not be recorded. DO YOU HAVE A QUESTION FOR THE PRESENTER? (1) ASK BEFORE THE WEBINAR * SHORT QUESTION - in the "Questions" box as you register, OR *DETAILED QUESTION - send email to wendy@fragilex.org.au (2) ASK DURING THE WEBINAR * In the Zoom CHAT BOX, OR * Ask LIVE in the Q&A segment after the presentation WEBINAR TIME: TUESDAY 2 June 2026 ACT/NSW/QLD/TAS/VIC = 7pm AEST NT/SA = 6:30 pm ACST WA = 5pm AWST
On youtube | Medications in Fragile X syndrome
On youtube | Medications in Fragile X syndrome
This webinar explores the medications used to manage conditions associated with Fragile X Syndrome, including anxiety, ADHD, mood disorders, OCD, aggression,...
Webinar Q&A - Disability Estate Planning, 19 MAY 2026 7-8 PM
Webinar Q&A - Disability Estate Planning, 19 MAY 2026 7-8 PM
Zoom is the leader in modern enterprise video communications, with an easy, reliable cloud platform for video and audio conferencing, chat, and webinars across mobile, desktop, and room systems. Zoom Rooms is the original software-based conference room solution used around the world in board, conference, huddle, and training rooms, as well as executive offices and classrooms. Founded in 2011, Zoom helps businesses and organizations bring their teams together in a frictionless environment to get more done. Zoom is a publicly traded company headquartered in San Jose, CA.
FX News Summer 2025
FX News Summer 2025
FX News Summer 2025
Win a JAC T9 Ute! Enter the raffle supporting FXAA
Win a JAC T9 Ute! Enter the raffle supporting FXAA
Win a JAC T9 Ute! Enter the raffle supporting FXAA
Survey | Measuring Quality of Life for People with Rare Genetic Conditions and their Carers
Survey | Measuring Quality of Life for People with Rare Genetic Conditions and their Carers
On YouTube | Creating Visuals and Social Stories to make routines and adventures feel calmer, more manageable and more connected for everyone.
On YouTube | Creating Visuals and Social Stories to make routines and adventures feel calmer, more manageable and more connected for everyone.
Join Helen Tozer, early-childhood educator and mum to a teenager with Fragile X Syndrome, as she shares real-life, practical strategies for using social stor...
On Youtube | Understanding FXTAS, webinar on 23 September 2025
On Youtube | Understanding FXTAS, webinar on 23 September 2025
Presented by Dr Alex Fois BSc(Adv; Hons I, Medal) BM BCh(Oxon) | MRCP FRACP. A discussion on Fragile X-associated Tremor Ataxia syndrome (FXTAS), a late ons...
Webinar | Microboards (live only). 23 AUGUST 2025
Webinar | Microboards (live only). 23 AUGUST 2025
Discussion: New Diagnosis of Fragile X syndrome - What Next. 19 AUGUST 2025
Discussion: New Diagnosis of Fragile X syndrome - What Next. 19 AUGUST 2025
22 July 2025 | Lighting up for World Fragile X Day
22 July 2025 | Lighting up for World Fragile X Day
Thanks to strong support from Councils, infrastructure operators, NGOs and businesses around the country - we have an incredible 124 landmarks involved in our lightup for World Fragile X Day! Brisbane City Council has promised an early kickoff on the night of Monday 21st - with Story Bridge, Victoria Bridge and other key city landmarks leading us into World Fragile X Day. What's lighting up near you?? Check out our list of supporters.
Webinar | FX Research Roundup. 17 JULY 2025
Webinar | FX Research Roundup. 17 JULY 2025
On Youtube | Snapshot on Supporting Behaviours in Young Children with Fragile X syndrome
On Youtube | Snapshot on Supporting Behaviours in Young Children with Fragile X syndrome
Introductory presentation by Dr Braden for a live Q&A on supporting behaviours in young children with Fragile X syndrome. This is a very useful overview lay...
On Youtube | Sensory Processing Diets and Fragile X syndrome, Bev Kadish. 12 JUNE AEST:30pm
On Youtube | Sensory Processing Diets and Fragile X syndrome, Bev Kadish. 12 JUNE AEST:30pm
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
On Youtube | IVF & PGD | Testing and Screening for Fragile X, Dr Mark Livingstone, 29 April 2025
On Youtube | IVF & PGD | Testing and Screening for Fragile X, Dr Mark Livingstone, 29 April 2025
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
Webinar Q&A | Special Disability Trusts, Marg Duncan. 29 MAY 7pm AEST
Webinar Q&A | Special Disability Trusts, Marg Duncan. 29 MAY 7pm AEST
On Youtube soon - Webinar Q&A | IVF and PGD and Fragile X. Dr Mark Livingstone, 29 April 2025
On Youtube soon - Webinar Q&A | IVF and PGD and Fragile X. Dr Mark Livingstone, 29 April 2025
Our 2025 webinar series presents speakers on a range of topics associated with Fragile X syndrome and the Fragile X premutation. The program for the first half of 2025 is varied, covering practical matters around supporting daily living for people living with Fragile X syndrome, and planning for the future, and health aspects for women who are Fragile X premutation carriers. We're delighted to welcome key speakers back to the program. Such as GP Dr Jonathan Cohen, occupational therapist Bev Kadish, endocrinologist Dr Amanda Vincent, IVF specialist Dr Mark Livingstone, disability-specialist lawyer Margaret Duncan and, later in the year, psychologist Dr Marcia Braden.
On Youtube |Fragile X syndrome & ASD, differential diagnosis, webinar recording (2024)
On Youtube |Fragile X syndrome & ASD, differential diagnosis, webinar recording (2024)
On Youtube | FXPOI - What do I Need to Know? webinar recording (17 March 2025)
On Youtube | FXPOI - What do I Need to Know? webinar recording (17 March 2025)
On Youtube | Medications and Fragile X syndrome, webinar recording (20 Feb 2025)
On Youtube | Medications and Fragile X syndrome, webinar recording (20 Feb 2025)
FX Webinar / Q&A Series 2025
FX Webinar / Q&A Series 2025
FX Webinar / Q&A Series 2025
Catch up on our news! 2024, and looking ahead to 2025
Catch up on our news! 2024, and looking ahead to 2025
On Youtube| Fragile X (FMR1) Premutation - an Update, webinar recording (Nov 2024)
On Youtube| Fragile X (FMR1) Premutation - an Update, webinar recording (Nov 2024)
Catchup | VIDEOS
Catchup | VIDEOS
Catchup | PODCASTS
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Podcast
Catchup | PODCASTS
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