Usher Syndrome Coalition

Usher Syndrome Coalition has been a member of Linktree for 4 years and joined in October 2021. The social media accounts linked to from Usher Syndrome Coalition are: • Facebook • Instagram • YouTube • LinkedIn • Bluesky Besides social media accounts, ushcoalition has populated their site with: • Ask Your State to Recognize Usher Syndrome Awareness Day • Usher Syndrome Awareness Day 2026 • Share The Whole Story • Become an USH Visionary • Sepul Bio LUNA Trial Press Release • Donate • Merch Store • Genetic Testing for Usher Syndrome • Awesome Moms With USH • Join the USH Trust • Join our Mailing List • Contact Us • USH Data Collection Program powered by Rare-X • Books on Usher Syndrome: Stories, Memoirs & Resources for Families • Advocate for USH Research Funding • Submit Grounded in Science topic ideas • What is Usher Syndrome? • Current USH Research • USH Science News • Nacuity Pharmaceuticals Clinical Trial Update AUS