Usher Syndrome Coalition
Connecting the global Usher syndrome community.
Register for the USH2026 Conference
Register for the USH2026 Conference
The USH2026 Connections Conference for the Usher syndrome community is a hybrid event taking place in Bloomington, Minnesota and online, July 17-19, 2026.
Awesome Moms With USH
Awesome Moms With USH
The latest news and announcements affecting the Usher syndrome community as a whole, including Usher families and researchers.
Ways to Give Back
Become an USH Visionary
Become an USH Visionary
Invest monthly in the Usher Syndrome Coalition and change the future of Usher syndrome.
Donate
Donate
Your gift helps build and connect a global Usher community, moving us all closer to treatments and a cure.
Merch Store
Merch Store
The Usher Syndrome Coalition: connecting the global Usher community.
Share Your Story
Share Your Story
Access Google Forms with a personal Google account or Google Workspace account (for business use).
Accelerate Research
Join the USH Trust
Join the USH Trust
USH Data Collection Program powered by Rare-X
USH Data Collection Program powered by Rare-X
Become part of the change! The Usher Syndrome Coalition's data collection tool empowers researchers and transforms data into solutions. Join us now.
Connect with USH
Join our Mailing List
Join our Mailing List
Contact Us
Contact Us
You are not alone. Contact us for information about the Usher Syndrome Coalition and the resources available to you.
Books on Usher Syndrome: Stories, Memoirs & Resources for Families
Books on Usher Syndrome: Stories, Memoirs & Resources for Families
Explore a curated list of books by and about people with Usher syndrome — personal memoirs, children’s stories, and guides offering insight, hope, and connection for individuals and families.
USH Resources
What is Usher Syndrome?
What is Usher Syndrome?
Usher syndrome is the most common genetic cause of combined deafness and blindness. More than 400,000 people are affected by this genetic disorder worldwide.
Living with USH
Living with USH
Discover resources for living your best life!
Genetic Testing for Usher Syndrome
Genetic Testing for Usher Syndrome
Genetic testing is the only way to get a definitive diagnosis of Usher syndrome.
Submit Grounded in Science topic ideas
Submit Grounded in Science topic ideas
The Grounded in Science Newsletter seeks to offer you a balance of Usher syndrome research news and well-being insights. In the coming months, what topics would YOU like to dive into? Fill out this quick poll to let us know.
USH Science & Research
Current USH Research
Current USH Research
Here you will find research advances for all types of Usher syndrome; summaries of the gene-specific treatment approaches and research progress for all subtypes of Usher syndrome, as well as gene-inde
USH Science News
USH Science News
Summaries of the latest research and science news relevant to those living with Usher syndrome, organized by categories such as gene therapy, stem cell therapy, understanding genetics, etc.
Nacuity Pharmaceuticals Clinical Trial Update AUS
Nacuity Pharmaceuticals Clinical Trial Update AUS
Usher Syndrome Coalition LinkedIn
Usher Syndrome Coalition LinkedIn
Usher Syndrome Coalition Bluesky
Usher Syndrome Coalition Bluesky
Usher Syndrome Coalition YouTube
Usher Syndrome Coalition YouTube
Usher Syndrome Coalition Instagram
Usher Syndrome Coalition Instagram
Usher Syndrome Coalition Facebook
Usher Syndrome Coalition Facebook
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