Usher Syndrome Coalition

Usher Syndrome Coalition has been a member of Linktree for 4 years and joined in October 2021. The social media accounts linked to from Usher Syndrome Coalition are: • Facebook • Instagram • YouTube • LinkedIn • Bluesky Besides social media accounts, ushcoalition has populated their site with: • Share Your Story • Become an USH Visionary • Register for the USH2026 Conference • Awesome Moms With USH • Genetic Testing for Usher Syndrome • Merch Store • Donate • Books on Usher Syndrome: Stories, Memoirs & Resources for Families • USH Data Collection Program powered by Rare-X • Contact Us • Join our Mailing List • Join the USH Trust • Submit Grounded in Science topic ideas • Advocate for USH Research Funding • Living with USH • What is Usher Syndrome? • USH Science News • Current USH Research • Nacuity Pharmaceuticals Clinical Trial Update AUS