@tscalliance

tscalliance has been a member of Linktree for 5 years and joined in March 2021. The social media accounts linked to from tscalliance are: • Facebook • Instagram • TikTok • YouTube • LinkedIn • Threads • X Besides social media accounts, tscalliance has populated their site with: • TSC Now | a podcast from the TSC Alliance® • Biosample Repository and Natural History Database • Baby Talk in TSC Study • Nominate someone in the TSC community for a volunteer award • Purchase your tickets today for the 24th Annual Comedy for a Cure! • 2025 Step Forward to Cure TSC! • Update on Medicaid and TSCRP Funding • TSC Research Changes Lives: Rosy’s Story • Support Team TSC! • Subscribe to TSC Alert eNewsletter • Clinician Survey on TAND Patient-Reported Outcome Measures • Research Funding Survey • TSC Biosample Repository • Support Emily • Support Gadi • 2024 TSC Alliance Annual Report • Support Margie • Support Jen • Behavioral Impact Project Survey – Patient Journeys • Partners Against Mortality in Epilepsy | Working together to understand & prevent epilepsy mortality • Team TSC 2025 - Sponsor a Mile or a Runner here! • Give to TSC Research! • Take Action: Cuts to Special Education Protections Are Happening NOW • Federal Special Education Offices Hollowed Out, Putting Students’ Rights at Risk - The Arc • Join the 2026 Step Forward to Cure TSC National Planning Committee! • Transition Webinar - The Psychological Impact on Caregivers 12.18.25 REGISTER HERE • TSC Alliance Giving Tuesday 2025 • ISAW - 2025 • Nominate a someone you know for a Volunteer Award! • Cardiac Rhabdomyomas in Pregnancy Survey - Take the survey here! • TSC Alliance Holiday Giving - Give Here! • Run with Team TSC in the 2026 United Airlines NYC Half Marathon • The TSC Alliance announces the retirement of Chief Scientific Officer Steven L. Roberds, PhD. - TSC Alliance • Regulating Together Webinar - 1/15/26 @ 7 pm ET REGISTER HERE • Scholarships - 2026 TSC World Conference • Team TSC: Endurance 2026 - Support Emma! • Government Action Alert! - TSC Alliance • REGISTER HERE - Ask an Advocate session 2/9/26: Making Advocacy Simple for you and your family • Thank you to our sponsors - Nobelpharma America • 25th Annual Comedy for a Cure Purchase your tickets here! • Thank you to our sponsors - Upsher-Smith • Thank you to our sponsors - MassMutual SpecialCare • Seizure Action Plan Awareness Week 2026 • Show Your Heart, Send A Heart! Give to the Bcureful Travel Fund • Join us for an Adult Topic Call on 3/18/26 • Thank you to our sponsors - Neurelis® • TSC Buddy BINGO! • Join us for the 2026 TSC World Conference Webinar Series! • Identifying Neuropsychiatric Barriers in TSC: Supporting Academic and Community Success 4/13/26 • Open Forum Adult Topic Call 5/20/26 - REGISTER HERE • TSC Awareness Month: Global Virtual Relay • Ask an Advocate 6/15/26 • Help us identify the most important aspects of TSC! • Today, the TSC Alliance celebrates an incredible milestone—Kari Luther Rosbeck’s 25th anniversary with the TSC Alliance. - TSC Alliance • Agenda - 2026 TSC World Conference • Day Camp - 2026 TSC World Conference • Ask an Advocate Session 8/10/26 Register here! • Run for Team TSC in the 2027 ASICS Los Angeles Marathon • Join us for an Ask an Advocate Session 10/12/26 • Infantile Spasms: Know the Signs & Act Early | Infantile Spasms Action Network • Adult Topic Call 9/16/26 Register here! • 2026 TSC World Conference Session Recordings • View and download 2026 TSC World Conference photos • Host a Step Forward to Cure TSC walk in 2027! • Perspective Magazine Winter 2023 Issue • Support Diana • Download your Flat TSC Buddy here! • Step Forward to Cure TSC - REGISTER TODAY! • Give to TSC Research! #50Forward • 2022 World TSC Conference Videos • Run the Marine Corps Marathon with Team TSC! • TSC Alliance 2022 Annual Report • Apply here: Future Leaders Class of 2025 • 50 Forward Fund - TSC Alliance DONATE HERE • Introducing the 50 Forward Fund • TSC Research Changes Lives: Jackson's Story • Perspective Magazine Fall 2024 • Support Kyle! Team TSC: Endurance • Check out the agenda here! • Apertura Gene Therapy and the TSC Alliance Announce Collaboration to Advance Gene Therapy Programs Designed to Treat Tuberous Sclerosis Complex (TSC) – Apertura Gene Therapy • REGISTER HERE - Los Angeles, CA • Apply today: Future Leaders Accelerator & Mentorship Program! • Ask an Advocate Session - 10/13/25 REGISTER HERE • Host a Step Forward to Cure TSC event in 2026! • Run for Team TSC in the 2026 Marine Corps Marathon • Register here for a TAND Transition Webinar on 10/15/25! • Update on Federally Funded TSC Research - TSC Alliance • Microsoft Forms • Support Team TSC 2026 • Iowa City, IA - TSC Regional Conference Agenda • Regulating Together – A Group Intervention to Address Emotion Dysregulation • August is Make a Will Month. Plan your legacy here! • REGISTER TODAY - 2026 TSC World Conference • Join us for Ask an Advocate on 8/11/25! • Leave us a review on Great Nonprofits • Join us for a Transition Webinar on 8/21/25 at 7 pm ET • 2026 TSC World Conference • Register here: Ask an Advocate 6/9/25 • Register here: 6/17/25 Transition Webinar • Accelerate TSC Research: Give to the 50 Forward Fund! YOUR DONATION MATCHED 2X • View the Boston, MA Regional Conference Agenda Here • Adult Topic Call 5/21/25: Register here! • TSC Global Awareness Day - TSCI - Tuberous Sclerosis Complex International • Create your own TSC Awareness Month Facts Template! • TSC Now Episode 50: What happens when a clinical trial fails? • TSC Alliance RPH Webinar 4/30 - Register here! • 2025 Step Forward to Cure TSC 2025 National Planning Committee Interest Form • Learn more about clinical trials • 2024 Step Forward to Cure TSC® • Reproductive and Perinatal Health Initiative - Participate in the survey here! • Hope for Research | Research for Hope: DONATE HERE! • NORD Rare Disease Day • 50th Anniversary Spotlight – Shonnie Johnson | TSC Now • Support Team TSC 2025 • TSC Alliance 50th Anniversary Gala • Register today for the 2025 Step Forward to Cure TSC! • 24th Annual Comedy for a Cure® • The Arc Take Action Toolkit • Seizure Action Plan Awareness Week 2025 • Adult Topic Call 3/19/25 Register here • Sources of Distress Survey Tool • Support Team TSC 2025 - Shelly • TSC Navigator • Support Team TSC 2025 - Tatiana • Home - Infantile Spasms Action Network • Support Team TSC 2025 - Jackie • Support Team TSC 2025 - Matthew • Support Team TSC 2025 - Eddie • A Clinical Study for children and adults with TSC | Epicom Study • Support Team TSC 2025 - Kacey • EPICOM Study Webinar: Looking Beyond Seizure Control - 9/26/24 • Adult Topic Call 4/16/25 • Bid on AMAZING Comedy for a Cure Auction Items HERE • TSC Alliance Endowment Fund - Plan my Legacy! • 2025 Transition Webinar Se: Helping Secure the Financial Future of Individuals (of all ages) with Disabilities • 2024 Regional TSC Conference and Transition Workshop Series • TSC Biosample Repository & Natural History Database • Steven Sparagana Legacy Fund • Ask an Advocate Session - 2/10/25 8 pm ET *REGISTER HERE* • Perspective Magazine - Spring 2024 • 2/23/25: 2025 Transition Webinar Series- Medical Transition Guidelines and Toolkit - REGISTER HERE • #50Forward • Show Your Heart, Send A Heart! Support the Bcureful Travel Fund this Valentine's Day! • Contact Us! • 50th Anniversary Gala Commemorative Program Book • Share your story of hope! • Nominate a volunteer leader in your community for a TSC Alliance Volunteer Award! • Celebrate 50 years of the TSC Alliance and share your story! Complete the form here. • ISAW - Infantile Spasms Action Network • Support the TSC Alliance this Holiday Season! • Self Report Portal How-to Video • Sudden Unexpected Death in Epilepsy (SUDEP) Individual with TSC or Caregiver QI Survey • TSC Alliance - Great Nonprofits • 2023 TSC Alliance Annual Report • In Memoriam: Gina Lee, PhD, University of California Irvine • Apply here: TSC Alliance Community Alliance Leadership • Epilepsy Foundation • TSC- STEPS • 2024 Transition Workshop Series • Subscribe to Perspective magazine • Purchase your Honorary Name Listing here! • Learn more about Team TSC 2024 • Support Team TSC - Jason Lavallee • Support Team TSC 2024 - Jurriaan Peters • Support Team TSC 2024- Shannon Suarez • Support Team TSC 2024- Joshua Cohen • Support Team TSC 2024 - Jeff Perry • Support Team TSC 2024 - Lauren Perry • Adult Topic Call 11/20/24 REGISTER HERE • Regional TSC Conference Palo Alto, CA - 11/16/24 REGISTER HERE • Regional TSC Conference Palo Alto, CA - AGENDA • United Airlines NYC Half Marathon Team TSC Interest Form • TSC Alliance Giving Tuesday 2024 • Adult Topic Call - 10/16/24 @ 8 pm ET • Ask an Advocate - 10/14/24 @ 8 pm ET • 2025 Step Forward to Cure TSC Walk Host Application • Salt Lake City, Utah TSC Transition Workshop AGENDA • Adult Topic Call 9/18/24 @ 8 PM ET - Register here! • Iris Mustich Team TSC 2023 • Spookygrams! Send a Halloween e-card! • 2023 Volunteer of the Year Award • Episode 49: Community Spotlight – Gloria Triebenbach | TSC Now • Home | UCB • 2023 Dreamer Award • Home - Nobelpharma America • Upsher-Smith | U.S. Pharmaceutical Company • Medical Devices for Head and Heart | LivaNova • BridgeBio | Biotechnology Company | Designing Transformative Medicines • www.massmutual.com • Explore our new website! • Ask an Advocate 8/12/24 • TSC Transition Workshop: Memphis, TN - AGENDA • Adult Topic Call 7/17/24 • Patient Journeys - TSC Quality of Life Survey • Step Forward to Cure TSC - Team/Individual/Clinic Spotlight Form • Home - TSCI - Tuberous Sclerosis Complex International • How to participate in behavior and TAND research Webinar - 5/13/24 • Ask an Advocate Session 6/10/24 • Victory Junction Webinar 4/23/24 Register Today! • Purple Day – Supporting Epilepsy Around The World! • Ask an Advocate Session 4/8/23 • Kimberly Moran Puerta Team TSC 2024 • Kristi Lengyel Team TSC 2024 • Taylor Ryan Team TSC 2024 • Margaret Gabriel Team TSC 2024 • Adult Topic Call 3/20/24 • Adult Topic Call 1/17/24 • Show Your Heart, Send A Heart! Support the Bcureful Travel Fund • Adult Topic Call 2/21/24 • Register for an Ask an Advocate Q&A TONIGHT 2/12/24