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Agenda - 2026 TSC World Conference
Agenda - 2026 TSC World Conference
The TSC World Conference, held every four years, will bring together 1,000 participants from around the globe to learn about tuberous sclerosis complex.
Today, the TSC Alliance celebrates an incredible milestone—Kari Luther Rosbeck’s 25th anniversary with the TSC Alliance. - TSC Alliance
Today, the TSC Alliance celebrates an incredible milestone—Kari Luther Rosbeck’s 25th anniversary with the TSC Alliance. - TSC Alliance
For two and one-half decades, Kari has dedicated her life’s work to building a future where everyone affected by tuberous sclerosis complex (TSC) has what they need to live their
Give to TSC Research! #50Forward
Give to TSC Research! #50Forward
Run the Marine Corps Marathon with Team TSC!
Run the Marine Corps Marathon with Team TSC!
TSC Research Changes Lives: Jackson's Story
TSC Research Changes Lives: Jackson's Story
Support Kyle! Team TSC: Endurance
Support Kyle! Team TSC: Endurance
Apertura Gene Therapy and the TSC Alliance Announce Collaboration to Advance Gene Therapy Programs Designed to Treat Tuberous Sclerosis Complex (TSC) – Apertura Gene Therapy
Apertura Gene Therapy and the TSC Alliance Announce Collaboration to Advance Gene Therapy Programs Designed to Treat Tuberous Sclerosis Complex (TSC) – Apertura Gene Therapy
Join us for the 2026 TSC World Conference Webinar Series!
Join us for the 2026 TSC World Conference Webinar Series!
Apply today: Future Leaders Accelerator & Mentorship Program!
Apply today: Future Leaders Accelerator & Mentorship Program!
Step Forward to Cure TSC
Step Forward to Cure TSC - REGISTER TODAY!
Step Forward to Cure TSC - REGISTER TODAY!
{ city: ‘Baltimore, Maryland’, URL: ‘https://google.com’, lat: 39.2904, lng: -76.6122 }, { city: ‘Washington, D.C.’, URL: ‘https://google.com’, lat: 38.9072, lng: -77.0369 }, { city: ‘Philadelphia, Pennsylvania’, URL: ‘https://google.com’, lat: 39.9526, […]
TSC Buddy BINGO!
TSC Buddy BINGO!
Walk Resources & Tools Everything You Need for Walk Day Success Whether you’re just getting started or already fundraising, these resources are here to support you every step of the […]
Download your Flat TSC Buddy here!
Download your Flat TSC Buddy here!
Thank you to our sponsors - Nobelpharma America
Thank you to our sponsors - Nobelpharma America
Thank you to our sponsors - MassMutual SpecialCare
Thank you to our sponsors - MassMutual SpecialCare
Thank you to our sponsors - Neurelis®
Thank you to our sponsors - Neurelis®
Thank you to our sponsors - Upsher-Smith
Thank you to our sponsors - Upsher-Smith
Run for Team TSC in the 2026 Marine Corps Marathon
Run for Team TSC in the 2026 Marine Corps Marathon
Update on Federally Funded TSC Research - TSC Alliance
Update on Federally Funded TSC Research - TSC Alliance
Support Team TSC 2026
Support Team TSC 2026
Regulating Together – A Group Intervention to Address Emotion Dysregulation
Regulating Together – A Group Intervention to Address Emotion Dysregulation
REGISTER TODAY - 2026 TSC World Conference
REGISTER TODAY - 2026 TSC World Conference
TSC Alliance Giving Tuesday 2025
TSC Alliance Giving Tuesday 2025
Transition Webinar - The Psychological Impact on Caregivers 12.18.25 REGISTER HERE
Transition Webinar - The Psychological Impact on Caregivers 12.18.25 REGISTER HERE
Leave us a review on Great Nonprofits
Leave us a review on Great Nonprofits
Team TSC 2025 - Sponsor a Mile or a Runner here!
Team TSC 2025 - Sponsor a Mile or a Runner here!
Accelerate TSC Research: Give to the 50 Forward Fund! YOUR DONATION MATCHED 2X
Accelerate TSC Research: Give to the 50 Forward Fund! YOUR DONATION MATCHED 2X
2025 TSC Research Conference
Subscribe to TSC Alert eNewsletter
Subscribe to TSC Alert eNewsletter
Clinician Survey on TAND Patient-Reported Outcome Measures
Clinician Survey on TAND Patient-Reported Outcome Measures
Research Funding Survey
Research Funding Survey
TSC Biosample Repository
TSC Biosample Repository
50 Forward Fund
50 Forward Fund - TSC Alliance DONATE HERE
50 Forward Fund - TSC Alliance DONATE HERE
Introducing the 50 Forward Fund
Introducing the 50 Forward Fund
TSC Research Changes Lives: Rosy’s Story
TSC Research Changes Lives: Rosy’s Story
Rosy was just four months old when she was diagnosed with tuberous sclerosis complex (TSC), a rare disease that would upend her family’s lives. Then the TSC ...
Support Team TSC!
Support Team TSC!
Update on Medicaid and TSCRP Funding
Update on Medicaid and TSCRP Funding
Step Forward to Cure TSC
2025 Step Forward to Cure TSC!
2025 Step Forward to Cure TSC!
{ city: ‘Baltimore, Maryland’, URL: ‘https://google.com’, lat: 39.2904, lng: -76.6122 }, { city: ‘Washington, D.C.’, URL: ‘https://google.com’, lat: 38.9072, lng: -77.0369 }, { city: ‘Philadelphia, Pennsylvania’, URL: ‘https://google.com’, lat: 39.9526, […]
TSC Now Episode 50: What happens when a clinical trial fails?
TSC Now Episode 50: What happens when a clinical trial fails?
Learn more about clinical trials
Learn more about clinical trials
Reproductive and Perinatal Health Initiative - Participate in the survey here!
Reproductive and Perinatal Health Initiative - Participate in the survey here!
NORD Rare Disease Day
NORD Rare Disease Day
Support Team TSC 2025
Support Team TSC 2025
Register today for the 2025 Step Forward to Cure TSC!
Register today for the 2025 Step Forward to Cure TSC!
Register today for the 2025 Step Forward to Cure TSC!
The Arc Take Action Toolkit
The Arc Take Action Toolkit
Seizure Action Plan Awareness Week 2025
Seizure Action Plan Awareness Week 2025
Sources of Distress Survey Tool
Sources of Distress Survey Tool
TSC Navigator
TSC Navigator
Home - Infantile Spasms Action Network
Home - Infantile Spasms Action Network
Give to TSC Research!
Give to TSC Research!
Volunteer Opportunities
Apply here: Future Leaders Class of 2025
Apply here: Future Leaders Class of 2025
A Clinical Study for children and adults with TSC | Epicom Study
A Clinical Study for children and adults with TSC | Epicom Study
EPICOM Study Webinar: Looking Beyond Seizure Control - 9/26/24
EPICOM Study Webinar: Looking Beyond Seizure Control - 9/26/24
TSC Alliance Endowment Fund - Plan my Legacy!
TSC Alliance Endowment Fund - Plan my Legacy!
TSC Biosample Repository & Natural History Database
TSC Biosample Repository & Natural History Database
Steven Sparagana Legacy Fund
Steven Sparagana Legacy Fund
Perspective Magazine - Spring 2024
Perspective Magazine - Spring 2024
#50Forward
#50Forward
Contact Us!
Contact Us!
Share your story of hope!
Share your story of hope!
TSC Navigator
TSC Navigator
ISAW - Infantile Spasms Action Network
ISAW - Infantile Spasms Action Network
Sudden Unexpected Death in Epilepsy (SUDEP) Individual with TSC or Caregiver QI Survey
Sudden Unexpected Death in Epilepsy (SUDEP) Individual with TSC or Caregiver QI Survey
TSC Alliance - Great Nonprofits
TSC Alliance - Great Nonprofits
Give to TSC Research!
Give to TSC Research!
Apply here: TSC Alliance Community Alliance Leadership
Apply here: TSC Alliance Community Alliance Leadership
Resources
TSC- STEPS
TSC- STEPS
Subscribe to Perspective magazine
Subscribe to Perspective magazine
TSC Navigator
TSC Navigator
Subscribe to our email list
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