@thegfpd

thegfpd has been a member of Linktree for 6 years and joined in June 2020. The social media accounts linked to from thegfpd are: • Facebook • Instagram • YouTube • X Besides social media accounts, thegfpd has populated their site with: • HELP CARD • T-Shirts • GFPD Care in Action: Empowering Caregivers Webinar • Webinar: Portrait of the Prospective Vision Study. • GFPD Top 3! | WorkForms • GFPD | Webinar - Palliative Care: Who Needs It? • GFPD Bereaved Parent Virtual Event • Sign up for GFPD Top 3! • Webinar: Landscape of Current Treatments for Peroxisomal Disorders: What we learned from the EL-PFDD meeting – Part 2 • GFPD Family Friday - Holiday Edition! • Report on adrenal insufficiency and other symptoms • VIRTUAL EVENT: Why We Use Hand-Under-Hand Facilitation • What Are Peroxisomal Disorders • EL-PFDD Findings One-Pager • GFPD Bereaved Parent Support Planning Survey | WorkForms • Comparison of Caregiver-Reported Dietary Intake Methods in Zellweger Spectrum Disorder • Welcome! You are invited to join a meeting: Community Conversation: Building Awareness and Support through Rare Disease Day . After registering, you will receive a confirmation email about joining the meeting. • Events - The Global Foundation for Peroxisomal Disorders • GFPD EL PFDD Meeting Speaker Interest Form | WorkForms • Italian Family Making a Global Impact and Shines a Light on Rare Disease Day - The Global Foundation for Peroxisomal Disorders • Deafblind Day On The Hill • Print Your Rare Disease Day Sign • Print Your Caregiver HELP CARD • THE GFPD ANNOUNCES NEXT EXECUTIVE DIRECTOR • Join a Committee - The Global Foundation for Peroxisomal Disorders • Information for Newly Diagnosed Patients - The Global Foundation for Peroxisomal Disorders • Extended Family of the GFPD | Facebook • Join a GFPD Committee • GFPD Website • BLOG • Update our Directory! • GFPD Support Groups • Equipment Exchange Program