Sleep and person-centered care researcher at the University of Sydney

Aaron Schokman | Linktree

Lived Experience of Narcolepsy in Australia - PhD thesis 2023

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Sleep Down Under 2023

Making Sense of Narcolepsy: A Qualitative Exploration of How Persons with Narcolepsy Perceive Symptoms and Their Illness Experience - is a working paper that is currently under peer-review

More on Symptoms to Stigma 

Other research

We analysed written submissions made to the Parliamentary Inquiry into Sleep Health in Australia 2018 aimed at exploring how concerns of persons with narcolepsy and their family/carers concerns are translated by this process

How patient-centric was the Parliamentary Inquiry into Sleep Health Awareness 2018? 

This was a two-part systematic review: 
1. We explored the outcomes used to measure treatment efficacy in narcolepsy clinical trials (RCTs)
2. We assessed the psychometric properties of any patient-reported outcome measures used in part 1

Outcome measures used in narcolepsy RCTs and their psychometric properties - systematic review

ResearchGate

Aaron Schokman

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Aaron Schokman

Sleep and person-centered care researcher at the University of Sydney

Sleep Down Under 2023

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