@scdaa

scdaa has been a member of Linktree for 5 years and joined in August 2020. The social media accounts linked to from scdaa are: Facebook, Instagram, YouTube, LinkedIn, X. Besides social media accounts, scdaa has populated their site with FDA Approves First Gene Therapy for Young Children with Sickle Cell Disease | FDA, 24-hour Virtual World Sickle Cell Day Event, Sickle Cell 101: #OurVoice Community-Powered Global Survey - Sickle Cell 101, SCDAA Sickletini Summer Soiree Virtual Happy Hour, Gene therapy for sickle cell disease given for first time in Maryland - The Baltimore Banner, NHLBI & SCDAA Community Forum - Research That Heals: Partnering with Patients to Transform SCD Care, Vertex Foundation Scholarship for SCD & TDT Scholars, Pfizer's Sickle Cell Scholarship Program, SCDAA Masterclass - Sickle Cell in the Media: Scene & Heard (Hosted by agios Cheat Codes), Sign Up for Summer CHW Training, RECORDING - P.O.W.E.R. ECHO CHW Training: How to Become a Radical CHW, MedicAlert Foundation, SCDAA & Fulcrum Therapeutics Partner, Register: May 28 P.O.W.E.R. ECHO CHW Training - Why Mental Health Matters, 2026 Rare Disease Day, Congress Passes Government Funding Bill with Big Wins for the SCD Community - SCDAA, Community Health Worker Training, Get Resources — National Blood Donor Month, Schedule a Blood, Platelet or Plasma Donation | American Red Cross, SCDAA Response to National Academies Release of Final Report on Sickle Cell Disease and Social Security Disability Evaluations - SCDAA, Order Convention Shirts, Donate Blood for Sickle Cell, Olivia's Clinical Trial Journey, 2025 Advocacy Days Facts Sheets, ED Webinar, NHLBI Infographic, 53rd Annual National Convention Photos, Newsroom - Sickle Cell Disease Association of America Inc., 13th Annual SCDAA Warrior Walkathon, P.O.W.E.R. ECHO Project - SCDAA, Clinical Research Participation and Important Outcomes for the SCD Community, December Legislative Briefing, Make a Gift to SCDAA, I Want to Talk About It: Clinical Trials, Surviving SCD Pain Fuels Physician’s Drive to Reform Care, MARAC Statement: Pfizer Inclacumab Announcement, SCDAA Website, 2025 Impact Report - SCDAA, 53rd Annual National Convention - Full Photo Album, Donate to SCDAA, Parent and Caregiver Handbook for SCD, Caregiver Resources, SCDAA Weekly E-newsletter, Mental Health and Wellness - Sickle Cell Disease Association of America Inc., CHOICES study, Download Our Mental Health Toolkit, The P.O.W.E.R ECHO Project - Sickle Cell Disease Association of America Inc., SCDAA and MedicAlert Pilot Program, SCDAA Masterclass on Sickle Cell Disease, Share Your Story Form, 2025 Walkathon Photos, MARAC Statements, MARAC Statement: Vaccinations - SCDAA, Steps to Take to Prepare for Medicaid Changes, Acute Chest Syndrome | American Lung Association, Gene Therapy: What You Need to Know - Sickle Cell Disease Association of America Inc., VA delegate’s daughter dies after battling sickle cell disease – NBC4 Washington, SCDAA Statement About Gene Therapy Approval, Inaugural SCDAA Golf Classic, Part 2: Department of Health and Human Services Webinar, Part 1: Department of Health and Human Services Webinar, RSVP to SCDAA's Social Media Party on Instagram, lp.constantcontactpages.com, SCD C.A.R.E.S. Consortium - Sickle Cell Disease Association of America Inc., SCD Clinical Trial Finder, 12th Annual SCDAA Warrior Walkathon, Walkathon Fundraising Tips, FINAL CHANCE: Register for the CHOICES Study, World Sickle Cell Day - Sickle Cell Disease Association of America Inc., Donate Blood for Sickle Cell, Summer Sickletini Happy Hour: A World Sickle Cell Day Event, Shine the Light on Sickle Cell, 24-Hour Sickle Cell Awareness and Action Event, 2025 Abstract Competition, Men’s Health and Sickle Cell Disease - Sickle Cell 101, Community Health Worker Training - Sickle Cell Disease Association of America Inc., CRISPR’s new era: Hope, hype, and hard truths, Menstrual Cycle May Contribute to SCD Pain Crises _ ASH Research, Complications of SCD: Stroke, In Memory of Dr. Winfred Wang, RECORDING: SCD Masterclass - The Current State of Sickle Cell Disease Treatments: Pipelines or Pipe Dreams?, Blood Pressure and SCD, April is National Minority Health Month, CRISIS: Experiences of People with Sickle Cell Disease Seeking Health Care for Pain, SCDAA Masterclass - The Current State of Sickle Cell Disease Treatments: Pipelines or Pipe Dreams?, Mindful Mondays, Hemoglobinopathy Counselor Training Course - Cincinnati Children's Hospital Medical Center, Angel Flight NE | Free Air Transportation for Patients, SCDAA Statement on the Measles Outbreak - Sickle Cell Disease Association of America Inc., MARAC Statement: ASH Report on Exercise and Crisis Risk, MARAC Statement: Pfizer's Voxelotor (Oxbryta®) Withdrawal., CMS Guidelines, Protect Yourself from Social Security Scams | Social Media Resources | SSA, Black History Month 2025: Dr. Charles F. Whitten, Blood Donor Month ACR - 2025Sleeves Up Campaign, 10 must-know African American nonprofits making a lasting impact, 4th Annual Caregiver Summit, Community Town Hall & Education Webinar: Oxybryta, P.O.W.E.R CHW Nominations, Book your Room, Things to Do in Midtown Atlanta | Loews Atlanta Hotel, Register - SCDAA 52nd Annual National Convention, Convention Attendee Hub - Agenda, Floor Plan and More, SCDAA Statement: Know Your Rights in the ER - Sickle Cell Disease Association of America Inc., P.O.W.E.R ECHO CHW and CBO Trainings, CMMI Announces the Cell and Gene Therapy Access Model, Job Openings - Sickle Cell Disease Association of America Inc., Board Members Needed! - Sickle Cell Disease Association of America Inc., Transformers Meet up August 6, 51st Annual Convention Photos, FDA Approves First Gene Therapies to Treat Patients with Sickle Cell Disease, SCDAA Statement on Exa-cel Gene Therapy, SCD Sexual Experiences Study.