@scdaa

scdaa has been a member of Linktree for 6 years and joined in August 2020. The social media accounts linked to from scdaa are: • Facebook • Instagram • YouTube • LinkedIn • X Besides social media accounts, scdaa has populated their site with: • Sickle Cell Voices Alliance: SCDAA, SCDA (Canada), SCS (UK) - Help Shape the Future of Treatments for Sickle Cell Disease! Survey • SCD Voices Shaping Change - ELPFDD • SCD Masterclass - Chronic or Acute? Rethinking the Approach to Sickle Cell Disease Care • SCDAA Virtual Blood Drive • SCDAA 54th Annual National Convention - Registration • SCDAA CHW Training • Schedule a Blood, Platelet or Plasma Donation | American Red Cross • Make a Gift to SCDAA • SCDAA Website • 2025 Impact Report - SCDAA • Donate to SCDAA • SCDAA Weekly E-newsletter • Mental Health and Wellness - Sickle Cell Disease Association of America Inc. • The P.O.W.E.R ECHO Project - Sickle Cell Disease Association of America Inc. • SCDAA and MedicAlert Pilot Program • SCDAA Masterclass on Sickle Cell Disease • Share Your Story Form • MARAC Statements • MARAC Statement: Vaccinations - SCDAA • Steps to Take to Prepare for Medicaid Changes • Gene Therapy: What You Need to Know - Sickle Cell Disease Association of America Inc. • SCDAA Statement About Gene Therapy Approval • SCD Clinical Trial Finder • I Want to Talk About It: Clinical Trials • Olivia's Clinical Trial Journey • SCD C.A.R.E.S. Consortium - Sickle Cell Disease Association of America Inc. • P.O.W.E.R ECHO CHW and CBO Trainings • Newsroom - Sickle Cell Disease Association of America Inc. • Mindful Mondays • SCDAA Statement on Exa-cel Gene Therapy • 51st Annual Convention Photos • CHOICES study • FDA Approves First Gene Therapies to Treat Patients with Sickle Cell Disease • SCD Sexual Experiences Study • CMMI Announces the Cell and Gene Therapy Access Model • Job Openings - Sickle Cell Disease Association of America Inc. • Board Members Needed! - Sickle Cell Disease Association of America Inc. • SCDAA Statement: Know Your Rights in the ER - Sickle Cell Disease Association of America Inc. • Community Health Worker Training - Sickle Cell Disease Association of America Inc. • P.O.W.E.R CHW Nominations • Transformers Meet up August 6 • Register - SCDAA 52nd Annual National Convention • Book your Room • Things to Do in Midtown Atlanta | Loews Atlanta Hotel • MARAC Statement: Pfizer's Voxelotor (Oxbryta®) Withdrawal. • Community Town Hall & Education Webinar: Oxybryta • 10 must-know African American nonprofits making a lasting impact • Convention Attendee Hub - Agenda, Floor Plan and More • 53rd Annual National Convention Photos • CMS Guidelines • 4th Annual Caregiver Summit • Caregiver Resources • Parent and Caregiver Handbook for SCD • Blood Donor Month ACR - 2025Sleeves Up Campaign • NHLBI Infographic • ED Webinar • MARAC Statement: ASH Report on Exercise and Crisis Risk • Black History Month 2025: Dr. Charles F. Whitten • Protect Yourself from Social Security Scams | Social Media Resources | SSA • SCDAA Statement on the Measles Outbreak - Sickle Cell Disease Association of America Inc. • Hemoglobinopathy Counselor Training Course - Cincinnati Children's Hospital Medical Center • Angel Flight NE | Free Air Transportation for Patients • April is National Minority Health Month • CRISIS: Experiences of People with Sickle Cell Disease Seeking Health Care for Pain • SCDAA Masterclass - The Current State of Sickle Cell Disease Treatments: Pipelines or Pipe Dreams? • 2025 Abstract Competition • Summer Sickletini Happy Hour: A World Sickle Cell Day Event • RECORDING: SCD Masterclass - The Current State of Sickle Cell Disease Treatments: Pipelines or Pipe Dreams? • Menstrual Cycle May Contribute to SCD Pain Crises _ ASH Research • Complications of SCD: Stroke • In Memory of Dr. Winfred Wang • 2025 Advocacy Days Facts Sheets • Blood Pressure and SCD • CRISPR’s new era: Hope, hype, and hard truths • Men’s Health and Sickle Cell Disease - Sickle Cell 101 • Donate Blood for Sickle Cell • World Sickle Cell Day - Sickle Cell Disease Association of America Inc. • Shine the Light on Sickle Cell • 24-Hour Sickle Cell Awareness and Action Event • FINAL CHANCE: Register for the CHOICES Study • 12th Annual SCDAA Warrior Walkathon • Walkathon Fundraising Tips • Inaugural SCDAA Golf Classic • 2025 Walkathon Photos • MARAC Statement: Pfizer Inclacumab Announcement • Part 1: Department of Health and Human Services Webinar • Part 2: Department of Health and Human Services Webinar • lp.constantcontactpages.com • RSVP to SCDAA's Social Media Party on Instagram • Acute Chest Syndrome | American Lung Association • VA delegate’s daughter dies after battling sickle cell disease – NBC4 Washington • Download Our Mental Health Toolkit • Order Convention Shirts • 53rd Annual National Convention - Full Photo Album • Surviving SCD Pain Fuels Physician’s Drive to Reform Care • SCDAA Response to National Academies Release of Final Report on Sickle Cell Disease and Social Security Disability Evaluations - SCDAA • Clinical Research Participation and Important Outcomes for the SCD Community • December Legislative Briefing • Get Resources — National Blood Donor Month • Community Health Worker Training • Congress Passes Government Funding Bill with Big Wins for the SCD Community - SCDAA • 2026 Rare Disease Day • Register: May 28 P.O.W.E.R. ECHO CHW Training - Why Mental Health Matters • MedicAlert Foundation, SCDAA & Fulcrum Therapeutics Partner • RECORDING - P.O.W.E.R. ECHO CHW Training: How to Become a Radical CHW • Sign Up for Summer CHW Training • SCDAA Masterclass - Sickle Cell in the Media: Scene & Heard (Hosted by agios Cheat Codes) • Pfizer's Sickle Cell Scholarship Program • Vertex Foundation Scholarship for SCD & TDT Scholars • NHLBI & SCDAA Community Forum - Research That Heals: Partnering with Patients to Transform SCD Care • Gene therapy for sickle cell disease given for first time in Maryland - The Baltimore Banner • SCDAA Sickletini Summer Soiree Virtual Happy Hour • Sickle Cell 101: #OurVoice Community-Powered Global Survey - Sickle Cell 101 • 24-hour Virtual World Sickle Cell Day Event • P.O.W.E.R. ECHO Project - SCDAA • 13th Annual SCDAA Warrior Walkathon • FDA Approves First Gene Therapy for Young Children with Sickle Cell Disease | FDA • MARAC Statement: Response to Oxbryta® Update - SCDAA • 2026 CHW P.O.W.E.R Award Nominations • Sickletini on the Hill • MARAC Statement: SCDAA Encourages Individuals with SCD to Get Vaccinated • 2nd Annual SCDAA Golf Classic • Sickle Cell Disease Awareness Night at Camden Yards