@scdaa

scdaa has been a member of Linktree for 5 years and joined in August 2020. The social media accounts linked to from scdaa are: • Facebook • Instagram • YouTube • LinkedIn • X Besides social media accounts, scdaa has populated their site with: • Schedule a Blood, Platelet or Plasma Donation | American Red Cross • FDA Approves First Gene Therapy for Young Children with Sickle Cell Disease | FDA • 13th Annual SCDAA Warrior Walkathon • P.O.W.E.R. ECHO Project - SCDAA • 24-hour Virtual World Sickle Cell Day Event • Sickle Cell 101: #OurVoice Community-Powered Global Survey - Sickle Cell 101 • SCDAA Sickletini Summer Soiree Virtual Happy Hour • Gene therapy for sickle cell disease given for first time in Maryland - The Baltimore Banner • NHLBI & SCDAA Community Forum - Research That Heals: Partnering with Patients to Transform SCD Care • Vertex Foundation Scholarship for SCD & TDT Scholars • Pfizer's Sickle Cell Scholarship Program • SCDAA Masterclass - Sickle Cell in the Media: Scene & Heard (Hosted by agios Cheat Codes) • Sign Up for Summer CHW Training • RECORDING - P.O.W.E.R. ECHO CHW Training: How to Become a Radical CHW • MedicAlert Foundation, SCDAA & Fulcrum Therapeutics Partner • Register: May 28 P.O.W.E.R. ECHO CHW Training - Why Mental Health Matters • 2026 Rare Disease Day • Congress Passes Government Funding Bill with Big Wins for the SCD Community - SCDAA • Community Health Worker Training • Get Resources — National Blood Donor Month • SCDAA Response to National Academies Release of Final Report on Sickle Cell Disease and Social Security Disability Evaluations - SCDAA • Order Convention Shirts • Donate Blood for Sickle Cell • Olivia's Clinical Trial Journey • 2025 Advocacy Days Facts Sheets • ED Webinar • NHLBI Infographic • 53rd Annual National Convention Photos • Newsroom - Sickle Cell Disease Association of America Inc. • SCDAA 54th Annual National Convention - Registration • Clinical Research Participation and Important Outcomes for the SCD Community • Make a Gift to SCDAA • December Legislative Briefing • I Want to Talk About It: Clinical Trials • Surviving SCD Pain Fuels Physician’s Drive to Reform Care • SCDAA Website • 2025 Impact Report - SCDAA • MARAC Statement: Pfizer Inclacumab Announcement • Donate to SCDAA • 53rd Annual National Convention - Full Photo Album • Parent and Caregiver Handbook for SCD • SCDAA Weekly E-newsletter • Caregiver Resources • Mental Health and Wellness - Sickle Cell Disease Association of America Inc. • The P.O.W.E.R ECHO Project - Sickle Cell Disease Association of America Inc. • CHOICES study • Download Our Mental Health Toolkit • SCDAA and MedicAlert Pilot Program • SCDAA Masterclass on Sickle Cell Disease • Share Your Story Form • MARAC Statements • MARAC Statement: Vaccinations - SCDAA • 2025 Walkathon Photos • Steps to Take to Prepare for Medicaid Changes • Gene Therapy: What You Need to Know - Sickle Cell Disease Association of America Inc. • Acute Chest Syndrome | American Lung Association • SCDAA Statement About Gene Therapy Approval • VA delegate’s daughter dies after battling sickle cell disease – NBC4 Washington • Inaugural SCDAA Golf Classic • Part 2: Department of Health and Human Services Webinar • Part 1: Department of Health and Human Services Webinar • RSVP to SCDAA's Social Media Party on Instagram • lp.constantcontactpages.com • SCD C.A.R.E.S. Consortium - Sickle Cell Disease Association of America Inc. • SCD Clinical Trial Finder • 12th Annual SCDAA Warrior Walkathon • Walkathon Fundraising Tips • FINAL CHANCE: Register for the CHOICES Study • World Sickle Cell Day - Sickle Cell Disease Association of America Inc. • Summer Sickletini Happy Hour: A World Sickle Cell Day Event • Shine the Light on Sickle Cell • 24-Hour Sickle Cell Awareness and Action Event • 2025 Abstract Competition • Men’s Health and Sickle Cell Disease - Sickle Cell 101 • Community Health Worker Training - Sickle Cell Disease Association of America Inc. • CRISPR’s new era: Hope, hype, and hard truths • Menstrual Cycle May Contribute to SCD Pain Crises _ ASH Research • Complications of SCD: Stroke • In Memory of Dr. Winfred Wang • RECORDING: SCD Masterclass - The Current State of Sickle Cell Disease Treatments: Pipelines or Pipe Dreams? • Blood Pressure and SCD • April is National Minority Health Month • CRISIS: Experiences of People with Sickle Cell Disease Seeking Health Care for Pain • SCDAA Masterclass - The Current State of Sickle Cell Disease Treatments: Pipelines or Pipe Dreams? • Mindful Mondays • Hemoglobinopathy Counselor Training Course - Cincinnati Children's Hospital Medical Center • Angel Flight NE | Free Air Transportation for Patients • SCDAA Statement on the Measles Outbreak - Sickle Cell Disease Association of America Inc. • MARAC Statement: ASH Report on Exercise and Crisis Risk • MARAC Statement: Pfizer's Voxelotor (Oxbryta®) Withdrawal. • CMS Guidelines • Protect Yourself from Social Security Scams | Social Media Resources | SSA • Black History Month 2025: Dr. Charles F. Whitten • Blood Donor Month ACR - 2025Sleeves Up Campaign • 10 must-know African American nonprofits making a lasting impact • 4th Annual Caregiver Summit • Community Town Hall & Education Webinar: Oxybryta • P.O.W.E.R CHW Nominations • Book your Room • Things to Do in Midtown Atlanta | Loews Atlanta Hotel • Register - SCDAA 52nd Annual National Convention • Convention Attendee Hub - Agenda, Floor Plan and More • SCDAA Statement: Know Your Rights in the ER - Sickle Cell Disease Association of America Inc. • P.O.W.E.R ECHO CHW and CBO Trainings • CMMI Announces the Cell and Gene Therapy Access Model • Job Openings - Sickle Cell Disease Association of America Inc. • Board Members Needed! - Sickle Cell Disease Association of America Inc. • Transformers Meet up August 6 • 51st Annual Convention Photos • FDA Approves First Gene Therapies to Treat Patients with Sickle Cell Disease • SCDAA Statement on Exa-cel Gene Therapy • SCD Sexual Experiences Study