@sacfa

sacfa has been a member of Linktree for 2 years and joined in April 2024. Resources sacfa has populated their site with include: • Cystic Fibrosis Awareness Bracelet - Coji with love • CF Awareness frame 2026 - SACFA • CF Genes Day 2026 - SACFA • Born With a Death Sentence. Now He's Racing for a World Championship. • Life with CF – How is it Treated - SACFA • Doctor using donated ‘miracle’ cystic fibrosis drug to save lives • Watch Jason van't Slot everesting video • Cycle for CF in 2026 - SACFA • More Than Just Sparkle: How Coji with Love Illuminates Lives at the SA Cystic Fibrosis Clinic - SACFA • Breathing Barriers - The Struggle Against Cystic Fibrosis (Viewing Copy) • www.woolworths.co.za • About Cystic Fibrosis - SACFA • Winter Update: Visits, Victories & Upcoming Events for CF Awareness • ACTION: Access is not secured • PRESS RELEASE: Access is not secured • Holiday Tips for Happy Lungs: Fun Lung Clearance Ideas for Kids with Cystic Fibrosis - SACFA • Travel Like a Pro: Tips for Safe Adventures with Cystic Fibrosis - SACFA • Spotlight on SACFA: Supporting the Cystic Fibrosis Community Across South Africa - SACFA • Live Screening: Doctor Safety Flipbooks | World Patients Alliance • Nutrition & Cystic Fibrosis in South Africa - SACFA • Spotlight: SACFA's Patient Empowerment Manager - SACFA • CF Awareness Frame '25 • CF Genes Day 2025 • Autumn Update • Survey for CF Modulator Therapy Research • Thriving at University with Cystic Fibrosis: My Journey - SACFA • Registry Project - SACFA • Cycle for CF in 2025 - SACFA • We Demand Access for All - SACFA • Cystic Fibrosis Annual Golf Day 2024: A Recap - SACFA • CF Golf Challenge 2024 - SACFA • Welcome! You are invited to join a meeting: Access to CFTR Modulators in South Africa - Next Steps. After registering, you will receive a confirmation email about joining the meeting. • Glenn Close, Anne Wojcicki Honor Cystic Fibrosis Treatment Heroes: 2024 Breakthrough Prize Ceremony • Answers about the Insulin Pump - Live talk with specialist Dr Lombard • Virtual 6.5km challenge • Unexpected Moments - The Trikafta Journey - SACFA • Resources • The View From My Hospital Room • The FatSecret App - Takes the Guesswork Out Of Every Meal - SACFA • CF Genes Day Official Virtual Sticker - SACFA • Andy Grammer - "Don't Give Up On Me" [Official Video from the Five Feet Apart Film] • Navigating Nutrition - with your young CF child - SACFA • OneRepublic - I Lived (Official Music Video) • CF Genes Day 2023 • Ask Us About CF and Genetics • Ask Us About CF and Genetics Registration • CF Fact - The term Cystic Fibrosis coined in 1938 • Book tickets for 5KM RUN OR WALK FOR CYSTIC FIBROSIS • Webinar Recording: CF in 2024- New Treatments, New Disease. Dr Zampoli & Pathcare • sacfa.org.za • Algoa FM Listen Live • Merchandise - SACFA • ‘Running Saved my Life’: Sophie Grace Holmes on Living with Cystic Fibrosis • SACFA and its affiliated doctors announcement on Trikafta - SACFA • South Africans take on big pharma for access to ‘miracle’ cystic fibrosis drug • Chest Treatment for a sick baby or toddler • A story about feeding tubes and CF • Guide for Parent/Caretaker of Child Living with CF • 2022 - A different dream for Wits teacher with cystic fibrosis - Wits University • Woman defies the odds and reaches 10-year 'lungaversary' | Fourways Review • Cystic fibrosis: treatment in S Africa as breakthrough meds out of reach • Facebook Live | Jason Van't Slot • CF Registry - Annual Report 2021 • Facebook Group • LinkedIn • SACFA Blog • CF Registry Project • New Frontiers Committee