RareKids-CAN

RareKids-CAN has been a member of Linktree for 10 months and joined in September 2025. The social media accounts linked to from RareKids-CAN are: • Facebook • Instagram • LinkedIn • Email • Bluesky • Website Besides social media accounts, rarekidscan has populated their site with: • Reflections from EURORDIS Open Academy: Learning, Partnership, and the Future of Rare Disease Engagement — RareKids-CAN • Webinar Registration: From Evidence to Access: Advancing Pediatric Rare Disease Drug Availability in Canada • Register for Delivering Gene Therapy Trials: Understanding Clinical Workflows, Operations, and the Patient Journey • Rare Methods Workshop: December 17 2025 • Canadian National Mirror Group Contributes to International Discussion on Rare Disease Registries — RareKids-CAN • New Paper Provides Practical Guide to Cell and Gene Therapies in Pediatric Rare Disease Research • Thierry Lacaze Highlights the Importance of Global Collaboration at the World Orphan Drug Congress USA — RareKids-CAN • Rewriting Rare Disease Care: How Collaboration and Clinical Trials Are Transforming Pediatric Research and Access to Treatment — RareKids-CAN • Clinical Trials Day: Humaira Ahmed • Clinical Trials Day: Cara Grobbecker • Clinical Trials Day: Davy Eng • Clinical Trials Day: Daislyn Vidal • Learn more about the Winter FER cohort • Write to your MP in support of Bill C-265 • IMPaCT Training Program Wallace Wee: Seeing What Matters in Pediatric Research — RareKids-CAN • IMPaCT Training Program Busisiwe Zapparoli: Advancing Equity and Outcomes in Rare Disease Research — RareKids-CAN • Why Caregiver Voices Matter in Global Rare Disease Research — RareKids-CAN • Rare Disease Day Celebrations 2026 — RareKids-CAN • RareKids-CAN Leaders Present Vision for Advancing Pediatric Clinical Trials at ACCESS Annual Meeting • Press Release: New legislation to improve access to essential pediatric and rare disease medications introduced in Parliament — RareKids-CAN • RareKids-CAN Strategic Plan 2025-2029 • Webinar Registration: Rare Methods Workshop Series: Eliciting prior distributions for rare disease clinical trials • Highlighting the RKC Indigenous Community Engagement Team and its Navigator • Access the Recording for 'Bayesian Approaches to Pediatric Rare Disease Clinical Trials' Here • IMPaCT Training Awards • New Participation Opportunity with our Pharmacology Sub-Platform • Participation Opportunities — RareKids-CAN • RareKids-CAN Represents at the 6th Nordic Conference on Pediatric and Orphan Medicines • Highlighting Youth Partner, Simone, for International Youth Day! • Congratulations, Dr. Andrea Tricco and Registry Sub-Platform member Catherine Stratton, on their CIHR Project Grant! • RareKids-CAN Participates in the ERDERA National Mirror Group International Workshop • Patient Partner Spotlight: Advocating for Timely Access to Clinical Trials in Canada • Success Story - When Standard Treatments Fail: A Case for Virus-Specific T Cell Therapy • About RareKids-CAN • Patients and Families • News