@pnhsupport

pnhsupport has been a member of Linktree for 2 years and joined in January 2024. Resources pnhsupport has populated their site with include: • PNH Support – Welcome To PNH Support • PNH Global Alliance - PNH Awareness Campaign Resources • Sam and Emily's fundraiser for PNH Support • Rare Voices Podcast • What is #MedSafetyWeek and MHRA Yellow Card scheme? • Quality of Life Survey for PNH and/or AA patients • PNH Support (England, Wales and N.I) | Facebook • Pnh_support on Instagram • Super Rare – But not alone • Rare Voices Report • Super Rare Fundraising Pack • Benefit Advice and Support – Super Rare – But not alone • Emotional Wellbeing Support – Super Rare – But not alone • For schools – Super Rare – But not alone • Jovi’s Ellen MacArthur sailing trip article