To help keep our community authentic, we're showing information about accounts on Linktree.
Patient Voice has been a member of Linktree for 4 years and joined in February 2022. The social media accounts linked to from Patient Voice are: Facebook, Instagram, TikTok, YouTube, LinkedIn, Email, Bluesky. Besides social media accounts, patientvoice has populated their site with Building the community she wishes had existed for her own mother: MJ’s story, Falling through the cracks: How stigma, screening gaps, and inequitable access to care are failing Canadians with HDV, Opinion: Parkinson’s doesn’t care who it impacts, but we should, Teaching by example: How Alex learned self-advocacy through rare kidney disease, Connecting the dots: How AI is unlocking new potential in rare disease diagnosis, treatment, and support, Rebuilding, one step at a time: Richard’s CIDP journey, Defying expectations: How Casey outruns (and outswims, and outcycles) dystonia, Fundraiser by Team Mackay, Website.