@patientled

patientled has been a member of Linktree for 3 years and joined in July 2022. The social media accounts linked to from patientled are: Facebook, Instagram, TikTok, YouTube, LinkedIn, X, Bluesky, Mastodon. Besides social media accounts, patientled has populated their site with Algorithm dependence of patient phenotypes in Long COVID: a patient-led, multi-method clustering of 6031 patients using 162 self-reported symptoms, TO: RECOVER-TLC Low-Dose Naltrexone (LDN) Treatment Trial, Low-Dose Sirolimus (Rapamycin) Clinical Trial, 2026 Long COVID Fact Sheet, Long COVID Treatment Guide | RTHM, Long COVID Treatment Trial, Scripps Research scientists launch new digital clinical trial to test repurposed drug for long COVID symptom relief | Scripps Research, PLRC member Dr. Alison Cohen on KCBS Radio, Access to Health Care in India Among Patients with Long COVID, Episodic disability framework in the context of Long COVID: Findings from a community-engaged international qualitative study, ADDRESS: Long COVID Clinical Study | BioVie Pharma, Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions., Learn How to Participate From Home | Long COVID Treatment Trial-Tirzepatide (LoCITT-T), Join the PLRC Registry, Donate to PLRC, Our website, Subscribe to our newsletter, “A morale boost”: Looking ahead to the 2025 Keystone Symposia Long COVID conference with Hannah Davis - The Sick Times, Visible | Enroll in Visible's Long COVID and ME/CFS study, Effect of nirmatrelvir/ritonavir (Paxlovid) on hospitalization among adults with COVID-19: An electronic health record-based target trial emulation from N3C, A cycle of invisibilisation: a qualitative study of Brazilian health system factors shaping access to long COVID care, Patient-Led Research Scorecards, A long COVID researcher continues to search for answers | Harvard T.H. Chan School of Public Health, Long COVID activists fought Trump team’s research cuts and won ― for now, 5 Years Since the COVID-19 Pandemic, Millions Like Me Are Still Sick, Trump abandons long COVID and ME/CFS patients again, Registration page - People living with Long COVID, Commenting Guide for HHS Section 504 Proposed Rule Updates, A Storm Is Gathering Around A CDC Committee For Its Controversial Infection Control Guidance, ME/CFS Research Roadmap Working Group of Council Webinar, National Survey on Health and Disability (NSHD), Covid Memorial Day Registration.