@patientled

patientled has been a member of Linktree for 4 years and joined in July 2022. The social media accounts linked to from patientled are: • Facebook • Instagram • TikTok • YouTube • LinkedIn • X • Bluesky • Mastodon Besides social media accounts, patientled has populated their site with: • Algorithm dependence of patient phenotypes in Long COVID: a patient-led, multi-method clustering of 6031 patients using 162 self-reported symptoms • TO: RECOVER-TLC Low-Dose Naltrexone (LDN) Treatment Trial • Low-Dose Sirolimus (Rapamycin) Clinical Trial • 2026 Long COVID Fact Sheet • Long COVID Treatment Guide | RTHM • Long COVID Treatment Trial • Scripps Research scientists launch new digital clinical trial to test repurposed drug for long COVID symptom relief | Scripps Research • PLRC member Dr. Alison Cohen on KCBS Radio • Access to Health Care in India Among Patients with Long COVID • Episodic disability framework in the context of Long COVID: Findings from a community-engaged international qualitative study • ADDRESS: Long COVID Clinical Study | BioVie Pharma • Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions. • Learn How to Participate From Home | Long COVID Treatment Trial-Tirzepatide (LoCITT-T) • Join the PLRC Registry • Donate to PLRC • Our website • Subscribe to our newsletter • “A morale boost”: Looking ahead to the 2025 Keystone Symposia Long COVID conference with Hannah Davis - The Sick Times • Visible | Enroll in Visible's Long COVID and ME/CFS study • Effect of nirmatrelvir/ritonavir (Paxlovid) on hospitalization among adults with COVID-19: An electronic health record-based target trial emulation from N3C • A cycle of invisibilisation: a qualitative study of Brazilian health system factors shaping access to long COVID care • Patient-Led Research Scorecards • A long COVID researcher continues to search for answers | Harvard T.H. Chan School of Public Health • Long COVID activists fought Trump team’s research cuts and won ― for now • 5 Years Since the COVID-19 Pandemic, Millions Like Me Are Still Sick • Trump abandons long COVID and ME/CFS patients again • Registration page - People living with Long COVID • Commenting Guide for HHS Section 504 Proposed Rule Updates • A Storm Is Gathering Around A CDC Committee For Its Controversial Infection Control Guidance • ME/CFS Research Roadmap Working Group of Council Webinar • National Survey on Health and Disability (NSHD) • Covid Memorial Day Registration