MSU - (@Myositis)
Patient-led, nonprofit Empowering the Myositis Community.
Your Diagnosis is Our Focus! - Register Here!
Your Diagnosis is Our Focus! - Register Here!
Myositis Patient Led Research Hub
Myositis Patient Led Research Hub
A global hub for patient-led myositis research, resources, and clinical trials—putting patients at the center to improve quality of life worldwide.
Finding Strength to Move Forward against Myositis(Friday) | Ntrust-2 study
Finding Strength to Move Forward against Myositis(Friday) | Ntrust-2 study
See if you may qualify for the Ntrust-2 study, a clinical trial researching a potential new treatment option to see if it can safely target the root cause of rare autoimmune diseases.
Finding the Strength to Move Forward against Myositis (Tuesday) | Ntrust-2 study
Finding the Strength to Move Forward against Myositis (Tuesday) | Ntrust-2 study
See if you may qualify for the Ntrust-2 study, a clinical trial researching a potential new treatment option to see if it can safely target the root cause of rare autoimmune diseases.
PSG Donor Form - Polymyositis
PSG Donor Form - Polymyositis
Weight Management Support for Myositis Patients - Myositis Support and Understanding
Weight Management Support for Myositis Patients - Myositis Support and Understanding
Join young adults myositis support
Join young adults myositis support
International myositis support group
International myositis support group
Join breathe easy lung support meeting
Join breathe easy lung support meeting
Wednesday evening myositis patient support
Wednesday evening myositis patient support
Join our free patient video support session. Ask questions, share your experiences, and meet others living with this same rare disease. This session is tailored to those living with myositis including Polymyositis (PM), Dermatomyositis (DM), Antisynthetase Syndrome (ASS), Immune-Mediated Necrotizing Myopathy (IMNM), Juvenile Dermatomyositis (JDM), nonspecific myositis, and overlapping myositis with other conditions such as with Mixed Connective Tissue Disease. sIBM patients are welcome to join this session, and we have a separately dedicated video support session for those living with sporadic inclusion body myositis.
Join women’s myositis support session
Join women’s myositis support session
Join the IMNM patient video support meeting
Join the IMNM patient video support meeting
This session is tailored to those diagnosed with immune-mediated necrotizing myopathy (IMNM), sometimes referred to as necrotizing autoimmune myopathy (NAM).
Finding balance with myositis and dysautonomia
Finding balance with myositis and dysautonomia
Join the IBM patient support meeting
Join the IBM patient support meeting
For inclusion body myositis patients and care partners only. Join our free online video support session for open discussion. Ask questions, share your experiences, meet others living with this same rare disease.
Pain Paper
Pain Paper
Pain in Myositis - Rheumatology
Right Now Research
Right Now Research
December 2025 Updates
Register for your FREE MSU Membership!
Register for your FREE MSU Membership!
Volunteer from home with MSU!
Volunteer from home with MSU!
Volunteer from home with Myositis Support and Understanding, an all-volunteer patient-led nonprofit organization. Volunteer to Empower the Myositis Community.
Join Club Myositis Support on Clubhouse here!
Join Club Myositis Support on Clubhouse here!
MSU - (@Myositis) Facebook
MSU - (@Myositis) Facebook
MSU - (@Myositis) Instagram
MSU - (@Myositis) Instagram
MSU - (@Myositis) YouTube
MSU - (@Myositis) YouTube
MSU - (@Myositis) LinkedIn
MSU - (@Myositis) LinkedIn
MSU - (@Myositis) Pinterest
MSU - (@Myositis) Pinterest
MSU - (@Myositis) Email
MSU - (@Myositis) Email
MSU - (@Myositis) Clubhouse
MSU - (@Myositis) Clubhouse
MSU - (@Myositis) X
MSU - (@Myositis) X
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