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Six Months In: Here Is What We Have Built Together
Six Months In: Here Is What We Have Built Together
In just six months, #MEAction has taken on some of the biggest issues facing people with ME and Long COVID. A small, dedicated staff, an extraordinary group of volunteers, and generous donors like you have gotten us here. I want to take a moment to tell you what we have accomplished together, because celebrating our collective work is important. We Showed Up Around the WorldThis year, the #MillionsMissing campaign was amplified globally. From Brazil to France, the UK to Mexico, Germany, Canada,
Join our FRAIL & FURIOUS campaign
Join our FRAIL & FURIOUS campaign
New Medicaid work requirements could put people with ME/CFS, Long COVID, and other infection-associated chronic conditions (IACCs) at risk of losing health coverage. We're fighting to ensure our communities are recognized under medical frailty protections.
Severe ME Artists Project 2026 — Call for Entries!
Severe ME Artists Project 2026 — Call for Entries!
Submit your work and join us for this year's Severe ME Artists Project!
Art Workshop with Nyx Mir | #MEAction
Art Workshop with Nyx Mir | #MEAction
We're excited to invite you to a special art workshop with multidisciplinary artist Nyx Mir on Thursday, July 16, 2026 at 2pm ET. Click for details.
Disability Pride Writing Workshop
Disability Pride Writing Workshop
July is Disability Pride Month, and we're celebrating with a special Writing Workshop presented by our Narrative Working Group on July 9th 2026 at 2pm ET. We'd love for you to join us. Click for details.
#MillionsMissing 2026 Community Meeting
#MillionsMissing 2026 Community Meeting
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
Frail and Furious: 10 Things You Need to Know About New Changes to the Medicaid Program
Frail and Furious: 10 Things You Need to Know About New Changes to the Medicaid Program
People with ME and Long Covid should be exempt from work requirements, period. Join our fight.
Juneteenth article
Juneteenth article
Juneteenth is a moment to celebrate freedom and reckon honestly with who that freedom has and has not reached. For the ME and Long COVID community, that reckoning is personal.
Public Template for CMS public comment - Frail + Furious June 2026
Public Template for CMS public comment - Frail + Furious June 2026
Frail and Furious Community Template for Public Comments to CMS re their Interim Final Rule on Medicaid work requirements Call to action Public comment - template Instructions for submission Background/context Share on Social! This is a Level 2-3 Battery task. Pace accordingly! Skip to the ...
#MillionsMissing Fundraiser
#MillionsMissing Fundraiser
#MEAction is on the precipice of our most important work yet, and it couldn’t be at a more crucial time for ME. This year, you can pick where your money goes—either to specific programming or to where #MEAction thinks it is most needed.
Accessible Virtual Pride 2026 - Calling Up Justice!
Accessible Virtual Pride 2026 - Calling Up Justice!
Join us for our Fourth Annual Accessible Virtual Pride produced with and for our disabled community and our LGBTQIA2s+ community, with allies welcome.
#MillionsMissing 2026
#MillionsMissing 2026
#MEAction is dedicated to taking action in places that affect people with ME, Long COVID, and other chronic illnesses. Join us!
SUBSCRIBE | #MEAction
SUBSCRIBE | #MEAction
Join our mailing list to get the latest at #MEAction. Be the first to know about actions, trainings, community events, and art salons.
PENPALS - short story
PENPALS - short story
Penpals: Letters and Healings From the Edge of Severe Chronic Illness is a short story written by Charley Kakel. The story is told in the form of letters written to various friends and family.
#MEAction Store | Official Merchandise | Bonfire
#MEAction Store | Official Merchandise | Bonfire
#MEAction is igniting a global revolution in ME care. Our movement fights for recognition, education, and research. . At #MEAction, we're building a global movement to...
JessNeedstoRest Store to benefit MEAction
JessNeedstoRest Store to benefit MEAction
Artist and Advocate living with ME/CFS. All proceeds benefit #MEAction Network.
#MEAction Sends Letter to Dr. OZ Urging for Medicaid Protection
#MEAction Sends Letter to Dr. OZ Urging for Medicaid Protection
Join our fight to protect Medicaid for our community!
#MEAction + Mayo Algorithm’s Effect on ME/CFS Care
#MEAction + Mayo Algorithm’s Effect on ME/CFS Care
We have a new research paper out, and it marks an important milestone in a collaboration that set out to improve care for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The paper is co-first-authored by Jaime Seltzer, Scientific Director at #MEAction, and Dr. Stephanie Grach, an Assistant Professor of Medicine at Mayo Clinic Rochester, and a clinician-researcher specializing in ME/CFS care.Through a small grant from the Society to Improve Diagnosis in Medicine (SIDM), #
Join our board!
Join our board!
Pacing and Management Guides
Pacing and Management Guides
Find #MEAction's original Pacing Guide and Pediatric Pacing and Management Guide for ME/CFS and Long COVID, with translations.
Spotlight on Black women and medical racism
Spotlight on Black women and medical racism
#MEAction - Dealing with Grief and Chronic Illness: A Workshop with Marisa Renee Lee
#MEAction - Dealing with Grief and Chronic Illness: A Workshop with Marisa Renee Lee
Check Out our 3 New Resources for Caregivers!
Check Out our 3 New Resources for Caregivers!
Severe ME Artists Projects
Severe ME Artists Projects
Near- Life Experiences: The Pillow Writers Anthology, Issue 2
Near- Life Experiences: The Pillow Writers Anthology, Issue 2
Near- Life Experiences 2: The Pillow Writers Anthology
Near- Life Experiences 2: The Pillow Writers Anthology
Preparing for Your Medicaid Home Assessment
Preparing for Your Medicaid Home Assessment
Donate to #MEAction!
Donate to #MEAction!
Telehealth | Take Action
Telehealth | Take Action
Minnesota Home Help Navigation
Minnesota Home Help Navigation
Protest Guide by MEAction
Protest Guide by MEAction
Modified Movement Classes and Meditations with Nourish Therapeutic Yoga
Modified Movement Classes and Meditations with Nourish Therapeutic Yoga
Pillow Writers Anthology 1: Near-Life Experiences
Pillow Writers Anthology 1: Near-Life Experiences
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Chronically Complex: The #MEAction Podcast
Chronically Complex: The #MEAction Podcast
Petition for Marcia
Petition for Marcia
Start your #MEAction fundraiser
Start your #MEAction fundraiser
Volunteer with MEAction
Volunteer with MEAction
Sign the Petition for Karen Gordan
Sign the Petition for Karen Gordan
Beth Mazur Memorial Fund
Beth Mazur Memorial Fund
www.mayoclinicproceedings.org
www.mayoclinicproceedings.org
Caregivers resources
Caregivers resources
MEpedia
MEpedia
Subscribe to #MEAction emails
Subscribe to #MEAction emails
Support and Crisis Resources
Support and Crisis Resources
#MEAction Board
#MEAction Board
#MEAction Scientific and Medical Advisory Board
#MEAction Scientific and Medical Advisory Board
#MEAction website
#MEAction website
#MEAction Events and Calls
#MEAction Events and Calls
#MEAction Support & Local Groups
#MEAction Support & Local Groups
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