#MEAction Maryland

#MEAction Maryland has been a member of Linktree for 4 years and joined in May 2022. The social media accounts linked to from #MEAction Maryland are: • Facebook • Instagram • Email • X • Bluesky Besides social media accounts, meactmd has populated their site with: • 11/3 @7pm Advocacy Mtg (1st Tues at 7pm) Followed by Dec 1st. Email us for the link! • 10/20 @ 4pmET Community Support Zoom - (3rd Tues at 4pm) Email us for the link! (11/17; 12/15) • #MEAction Maryland Diagnosis & Management LinkTree #2 • U.S. ME/CFS Clinician Coalition • How to Get On - Resource Blog • Clinical Care Guide ME: Bateman Horne Center • Mayo Clinic Proceedings: Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome • ME Act Net X link to Jaime Seltzer, MS & Stephanie Grach, MD talk • Dr Kristina Hallett • About Blue Sunday • CovidSafeMD - Together, for a safer Maryland • Chimére L. Smith Sweeney • Long COVID & ME: Understanding the Connection • YouTube - Ep3: Joint Hypermobility/EDS in Pediatric ME/CFS by Dr. Peter Rowe • Slides - Ep3: Joint Hypermobilit/ EDS episode 3 Rowe slides.pptx - Google Slides • Transcript Ep3: Joint Hypermobility & EDS in Pediatric ME/CFS • Sources Cited - Ep3: Joint Hypermobility/ EDS in Pediatric ME/CFS Dr Rowe Webinar • Md Legislators Committee Info Google Doc • VERY helpful MGA testimony pdf • Help! Submit Written MD LC Bill Testimony with help • Instructions: Submitting written testimony on the MD LC bill • My MGA Account - Register (Maryland General Assembly) • Find My Maryland Representatives • Md Senate Finance Committee info • YouTube - Ep5: Neuroanatomic Considerations in Pediatric ME/CFS • Sources - Ep5: Neuroanatomic Considerations in Pediatric ME/CFS • Transcript - Ep5: Neuroanatomic Considerations in Pediatric ME/CFS • Slides - Ep5: Neuroanatomic Considerations in Pediatric ME/CFS • Home | *Long COVID R&D Bill * • Sign-On in Support of HB0027: Md LC Innovation Grant & Loan Program • Committee Contact Info: HB27/SB392 Google Sheet • Petition · Advocate for Maryland HB 0027 for Long COVID R&D - United States · Change.org • HB0027 LC Innovation Grant & Loan Program FULL TEXT • FULL Letter - HB0027 Legislation • YouTube - Ep1: Evidence-Based Pediatric ME/CFS (Myalgic Encephalomyelitis) Webinar Series by Dr. Peter Rowe • Slides - Ep1: Evidence-Based Pediatric ME/CFS • Transcript - Ep1: Evidence Based Pediatric ME/CFS • Sources - Ep1: Evidence-Based Pediatric ME/CFS Dr Rowe Webinar 1 • YouTube - Ep2: Pediatric Orthostatic Intolerance: A Focus on Management. Medical Education webinar with Dr. Peter Rowe • Slides - Ep2: Pediatric OI Rowe.pptx - Google Slides • Transcript - Ep2: Orthostatic Intolerance in Pediatric ME/CFS • Sources - Ep2: Orthostatic Intolerance Dr Rowe Webinar 2 • YouTube - Ep4: Biomechanical Considerations in Pediatric ME/CFS • Slides - Ep4: Biomechanical Considerations in Pediatric ME/CFS • Transcript - Ep4: Biomechanical Considerations in Pediatric ME/CFS • Sources - Ep4: Biomechanical Considerations in Pediatric ME/CFS • YouTube - ep6: Q & A Rowe Interview • Transcript - Ep6: Q & A Rowe Interview • Sources Cited - ep6: Q & A Rowe Interview • Boston Globe Article: "Long COVID patients aim to educate doctors about their disease" • "What Fatigue Really Means " by Ed Yong • Melinda & Whitney on WYPR On The Record • Capital Gazette OpEd 5/8/22 Gwynn Dujardin: "Those with ME, a debilitating illness, deserve our support" • Ed Yong - Fatigue Can Shatter A Person_01.wav • Fatigue Can Wreck You • Letters: Absenteeism high because kids are sick • #MEAction Maryland on YouTube • Donate: #MEAction Maryland • #Meaction Membership • #MEAction Maryland Chapter webpage • Join us on FB! • #MEAction Maryland on Twitter • #MEAction Maryland Calendar Google Calender Link • #ME Action Maryland Calendar iCalendar Link • Pajama Party Blue Sunday! • Tell your Reps to support the TREAT Long COVID Act! • 4/20 CAREGIVER SUPPORT CALL @ 3:30pmEST • Support Long COVID Legislation to Help ~50 Million People & Counting in the U.S. • Addressing Long COVID: Advancing Research and Improving Patient Care | The U.S. Senate Committee on Health, Education, Labor & Pensions • Senate Hearing LC T-Shirt Order Form • St. Patrick's Day Holiday Party! • Ryan Prior in conversation with Susannah Fox for The Long Haul • The looming public health challenge of long covid