Lindsey Fuller
C3G patient, advocate, and community leader dedicated to supporting those affected by rare kidney diseases through resources and connections.
Lindsey Fuller Email
Lindsey Fuller Email
Contact Lindsey Fuller
Contact
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Lindsey Fuller
Contact Lindsey Fuller
Patient Support Groups
C3G Warriors Support Group (IC-MPGN also welcome)
C3G Warriors Support Group (IC-MPGN also welcome)
UK MPGN/DDD Support Group
UK MPGN/DDD Support Group
NKF C3G Community
NKF C3G Community
We are the world's largest online support network. Ask questions. Get answers. Talk to others who've been there before. #UnlockYourHealth
Stay Up to Date
C3G & IC-MPGN Newsletter/Email List Signup
C3G & IC-MPGN Newsletter/Email List Signup
C3G Resource Email Forms
Read the June 2026 C3G/IC-MPGN Newsletter
Read the June 2026 C3G/IC-MPGN Newsletter
News, events, and updates for C3G/IC-MPGN patients and caregivers
Education & Resources
CompCure C3G/IC-MPGN Patient Guide (free download)
CompCure C3G/IC-MPGN Patient Guide (free download)
University of Iowa C3G Education Pamphlet
University of Iowa C3G Education Pamphlet
Interpreting MORL Complement‐Mediated Kidney Disease Genetic and Functional Results
Interpreting MORL Complement‐Mediated Kidney Disease Genetic and Functional Results
The University of Iowa Patient Education and Resources for Complement-Mediated Kidney Disease | Molecular Otolaryngology and Renal Research Laboratories
The University of Iowa Patient Education and Resources for Complement-Mediated Kidney Disease | Molecular Otolaryngology and Renal Research Laboratories
Previous University of Iowa C3G Family Conference Recordings and Resources | Molecular Otolaryngology and Renal Research Laboratories - The University of Iowa
Previous University of Iowa C3G Family Conference Recordings and Resources | Molecular Otolaryngology and Renal Research Laboratories - The University of Iowa
Patient/Family Conferences
University of Iowa C3G/DDD Family Conference Information
University of Iowa C3G/DDD Family Conference Information
conferences, meetings, resources for patients and families
International and German Conference for people and families affected by aHUS, C3G and IC-MPGN (2026)
International and German Conference for people and families affected by aHUS, C3G and IC-MPGN (2026)
Please click the link to complete this form.
Treatment Support
EMPAVELI® (pegcetacoplan) Patient Resources
EMPAVELI® (pegcetacoplan) Patient Resources
Explore EMPAVELI, used in patients aged 12 years and older with C3 glomerulopathy (C3G) and primary immune complex membranoproliferative glomerulonephritis (IC-MPGN)
FABHALTA® (iptacopan) Patient Resources
FABHALTA® (iptacopan) Patient Resources
Learn about FABHALTA. See full Prescribing and Safety Info, including BOXED WARNING and Medication Guide.
Research & Registry Participation
Folia: Join At-Home C3G Study
Folia: Join At-Home C3G Study
Join KidneyCARE Research Study
Join KidneyCARE Research Study
The KidneyCARE Study is a patient registry for people at all stages and with all types of kidney disease. As part of the KidneyCARE Study, you help research by answering survey questions about your experience with kidney disease.
Hospitals & Registry | Compcure
Hospitals & Registry | Compcure
CompCure have 4 main Objectives. We strengthen the understanding of complement driven kidney disease. Improve the long-term outcome for patients. A platform to generate evidence, knowledge, and productively address the high unmet medical needs and rare disease burden beyond kidney diseases.
Organizations
CompCure: C3G & IC-MPGN Research
CompCure: C3G & IC-MPGN Research
Committed to improve outcome in C3G and IC-MPGN. CompCure is a Danish non-for-profit Association founded by Marianne Silkjær Nielsen and Thomas Rask Nielsen who are patents to an affected child.
Kidneeds: C3G Family Support & Research
Kidneeds: C3G Family Support & Research
Welcome to Kidneeds.
National Kidney Foundation
National Kidney Foundation
37 million people in the U.S. have kidney disease but only 10% know it. NKF is a lifeline for all people affected by kidney disease—the largest public health issue you'll ever hear about.
NephCure | For Rare Kidney Diseases
NephCure | For Rare Kidney Diseases
Founded in 2000, NephCure is the only organization focused on rare kidney diseases, empowering patients and driving research, treatments, and care.
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