@histio

histio has been a member of Linktree for 6 years and joined in June 2020. The social media accounts linked to from histio are: • Instagram • YouTube • LinkedIn Besides social media accounts, histio has populated their site with: • 2025 Histiocytosis Summit Registration • How to prioritize self care when a loved one's diagnosis is challenging • Mental Health and Rare Disease Q&A • Summer FUNdraising Sign Up • Awareness poster contest for Awareness Month • What Does It Really Mean to Be Well? | Histiocytosis Association • Get your Awareness Kit Today! (for only the cost of shipping) • ECD with Large Vessel Disease Treated by Cobimentinib Interview • Proclamation Forms and Samples • Get your Awareness Month Photo Frame • Beyond the Diagnosis Podcast Ep 82 - Continuing Medical Education and the Patient Voice • Diana Interviewing her mom • Peer Support Group Meetings • Ep 84 – Meet the New Histiocyte Society President, Vasanta Nanduri | Histiocytosis Association • Recap of Histio at NORD summit • Giving Tuesday: A Day of Generosity, Hope, and Community • Encuesta de traducción al español • Sharing Memories of Jeff Toughill • Living in Jeff’s Legacy Blog Post • Our Latest Blog Post: Chasing a Vision • New Patient Peer Support Meetings - Every Other Tuesday • Charity Navigator - Rating for Histiocytosis Association • Register for healthcare literacy and privacy webinar • Histio Hike Shenandoah 2026 Registration • Rare Disease Poem • Rare Disease Day Profile Picture (English) • Foto de perfil del Día de las Enfermedades Raras (En Español) • Defined by Humanity Blog Post • Foro de la Comunidad de Histiocitosis en Español • 2025 Impact Report • Rare Disease Week 2026 Blog Post • Patient Support Group Sessions • eNewsletter Archive • Calling all Artists • Becoming Again- Finding Yourself in a New Season | Histiocytosis Association • Ten Essential Tips for Emotional Balance in a World of Chronic Medical Stress • Raregivers™ Emotional Journey Map • Raregivers™ Guide and Workbook • Peer Support Blog Post • Registration for Tools to Thrive: Everyday Habits for Healing and Whole-Body Wellness • 2026 Request for Research Proposals • Meet the New Board Members • Histio Community Roll Call • Granted: Part 1: Conflict of Interest (COI) • Monkey Grins Request Form | Histiocytosis Association • Recording: Ten Essential Tips for Emotional Balance in a World of Chronic Medical Stress Webinar • Learn more about Monkey Grins • Living With Histiocytosis: The Emotional Weight No One Sees • Hank From the Heart (Hank Heren's Book) • Caring for Caregivers (Releasing 5/29) • Artificial Intelligence in Healthcare Survey • Los Angeles Regional Meeting • Granted Part 2 - Scoring • T-Shirt Contest Submission • Meet the Team: Staff Highlight Series with Kristen, Our Chief Program and Development Officer | Histiocytosis Association • The Healing Power of Journaling: Writing Your Way Through Life’s Difficult Seasons • Histio Blue Ribbon Run 2026 • Sign up for our Newsletter and Emails | Histiocytosis Association • Meet the Artists 2026 • Donate to Histiocytosis Association Inc by rounding up • Submit Your Nomination for a Youth Ambassador • Histio eStore • Histio Fact Cards • Histiocytosis Brochures • When the Holidays Feel Heavy: Holding Space for Hardship This Season • From Legacy to Future: 40th Anniversary Campaign • HLH and Cancer: Translating Research into Patient Care • Caregiver Support Groups 1st/3rd Thursdays 7:15pm ET • Request a Receipt • Request Barb Adams' Histio Books • Structure in the Summer Blog Post • Reducing Inflammation in Secondary HLH Interview • Histio Book Fund • Beyond the Diagnosis • Casey and the Messy Clean Up Crew Book • HLH CME (Open only to medical professionals) • Grief Support Meeting for Spouses • Grief Support Meeting for Parents/Grandparents • Sign up for our mailing list • Prepare for Awareness Month in September • Someone I Know has Histio Book • Annual Research Funding Process • Summer FUNdraising Ideas • Peer Connections (monthly) Registration • Share Your Story • Meet the Team! • Histio Awareness Kits • Pediatric Resource Guide - Financial • Read about the 2025 Research Grant Awardees! • INTO-HLH Registry • Full Peer Support Schedule • Houston Regional Meeting at Texas Children's • Find a Doctor • Backyard movie night fundraiser checklist • Histiocytosis Digital Brochures to Download • Histio community forum FB group • Educational Webinars • Blog Digest of best of 2024 videos and resources so far • Grants Awarded | Histiocytosis Association • Beyond the Diagnosis Podcast • Grief Webinar Recording • Scholarship Program | Histiocytosis Association • Charity Navigator 4 Stars • Grief Support Monthly Call Registration • Histiocytosis Association of Canada • Episode 064 Voices of Dedication-Honoring Our Histio Volunteers | Histiocytosis Association • Read our new staff bios! • Learn About Histio • Blog Post: Pediatric to Adult: Our Focus on Transitions • Donate • BTD Episode 063 – Heartbeats of Hope: The Histio Caregiver | Histiocytosis Association • Like us on Facebook • Recording: Histio patients: What diabetes insipidus is (AVP-D / CDI) and how to manage it. • Grabación: Seminario web sobre deficiencia de vasopresión de arginina en español • Calling All Artists! • Plan de acompañamiento emocional para pacientes /as con Histiocitosis - OR Asociación • 2024 Scholarship Reaction Compilation • Adult LCH Publication Interview • 2024 Histio Student Scholarship Winners • LUMINARY ORDERS • Register for Orange County Regional Meeting • PCORI Blog Post • HLH/MAS CME for Healthcare Professionals • 2024 Grant Cycle Request for Proposals (Starting 4/17) • Share Your Story - Boast.io • 7 Mayo 2024 Grupo Internacional de pacientes con Histiocitosis | crm.orasociacion.org • Spread the Word T-shirt- New Item! • HopeCast 2022 • HopeCast 2023 on Facebook Live • Giving Tuesday 2023 • UAB Study • BTD Episode 059 – HopeCast 2023 • Electra sHLH Clinical Trial