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From Legacy to Future: 40th Anniversary Campaign
From Legacy to Future: 40th Anniversary Campaign
Artificial Intelligence in Healthcare Survey
Artificial Intelligence in Healthcare Survey
Thank you for participating in this voluntary, anonymous survey that will take less than 10 minutes to complete. The goal of this survey is to better understand how those living with histiocytic disorders use technology to better understand their health. Specifically, we are interested in learning how those with histiocytic disorders use "Artificial Intelligence" (AI), a computer program that can answer questions or chat with you. In this survey, we refer to general AI tools such as ChatGPT, Gemini, Claude, or chatbots in your patient portal.
Hank From the Heart (Hank Heren's Book)
Hank From the Heart (Hank Heren's Book)
Barnes & Noble’s online bookstore for books, NOOK ebooks & magazines. Shop music, movies, toys & games, too. Receive free shipping with your Barnes & Noble Membership.
Histio Community Roll Call
Histio Community Roll Call
We’re creating a map to better understand who we serve and where our community is located - it’s a bit of a “roll call” for our community. This is a quick and easy survey (just 6 questions, less than 1 minute to complete!). Your responses help shape our programs, services, and outreach, and may be shared in a general, ongoing way to highlight our community.
Support
Full Peer Support Schedule
Full Peer Support Schedule
Peer Connections (monthly) Registration
Peer Connections (monthly) Registration
The Peer Connection Call provides a welcoming space for individuals affected by histiocytosis to connect with others who understand. These calls are moderated by one of experienced volunteer adult histio patients. These calls focus on shared experiences, mutual support, and meaningful connection in a compassionate, confidential setting. All patients, caregivers, and family members are welcome.
Patient Support Group Sessions
Patient Support Group Sessions
Grief Support Meeting for Spouses
Grief Support Meeting for Spouses
Caregiver Support Groups 1st/3rd Thursdays 7:15pm ET
Caregiver Support Groups 1st/3rd Thursdays 7:15pm ET
Grief Support Meeting for Parents/Grandparents
Grief Support Meeting for Parents/Grandparents
Histio community forum FB group
Histio community forum FB group
Foro de la Comunidad de Histiocitosis en Español
Foro de la Comunidad de Histiocitosis en Español
Awareness Campaigns
Calling all Artists
Calling all Artists
Share Your Story - Boast.io
Share Your Story - Boast.io
Histio Awareness Kits
Histio Awareness Kits
Prepare for Awareness Month in September
Prepare for Awareness Month in September
Resources
Monkey Grins Request Form | Histiocytosis Association
Monkey Grins Request Form | Histiocytosis Association
Raregivers™ Emotional Journey Map
Raregivers™ Emotional Journey Map
Discover the Raregivers™ Emotional Journey Map, an evidence-based resource supporting caregivers and patients in rare and complex disease communities.
Raregivers™ Guide and Workbook
Raregivers™ Guide and Workbook
Beyond the Diagnosis
Beyond the Diagnosis
2025 Impact Report
2025 Impact Report
Scholarship Program | Histiocytosis Association
Scholarship Program | Histiocytosis Association
Histiocytosis Digital Brochures to Download
Histiocytosis Digital Brochures to Download
Read our new staff bios!
Read our new staff bios!
Pediatric Resource Guide - Financial
Pediatric Resource Guide - Financial
Upcoming Events
Los Angeles Regional Meeting
Los Angeles Regional Meeting
Research and Grants
2026 Request for Research Proposals
2026 Request for Research Proposals
Read about the 2025 Research Grant Awardees!
Read about the 2025 Research Grant Awardees!
Annual Research Funding Process
Annual Research Funding Process
Grant applications are available between mid-May - July and the Histiocytosis Association invites physicians and scientists to review the Request for Research Proposal guidelines. Find out more.
Grants Awarded | Histiocytosis Association
Grants Awarded | Histiocytosis Association
Education
Granted Part 2 - Scoring
Granted Part 2 - Scoring
Caring for Caregivers (Releasing 5/29)
Caring for Caregivers (Releasing 5/29)
Living With Histiocytosis: The Emotional Weight No One Sees
Living With Histiocytosis: The Emotional Weight No One Sees
Learn more about Monkey Grins
Learn more about Monkey Grins
Recording: Ten Essential Tips for Emotional Balance in a World of Chronic Medical Stress Webinar
Recording: Ten Essential Tips for Emotional Balance in a World of Chronic Medical Stress Webinar
Granted: Part 1: Conflict of Interest (COI)
Granted: Part 1: Conflict of Interest (COI)
Peer Support Blog Post
Peer Support Blog Post
Becoming Again- Finding Yourself in a New Season | Histiocytosis Association
Becoming Again- Finding Yourself in a New Season | Histiocytosis Association
eNewsletter Archive
eNewsletter Archive
Register for healthcare literacy and privacy webinar
Register for healthcare literacy and privacy webinar
Rare Disease Week 2026 Blog Post
Rare Disease Week 2026 Blog Post
HLH CME (Open only to medical professionals)
HLH CME (Open only to medical professionals)
Sign up for our mailing list
Sign up for our mailing list
Histio eStore
Histio eStore
Share your story!
Share your story!
INTO-HLH Registry
INTO-HLH Registry
Find a Doctor
Find a Doctor
Educational Webinars
Educational Webinars
Beyond the Diagnosis Podcast
Beyond the Diagnosis Podcast
Charity Navigator 4 Stars
Charity Navigator 4 Stars
Histiocytosis Association of Canada
Histiocytosis Association of Canada
Learn About Histio
Learn About Histio
Donate
Donate
Like us on Facebook
Like us on Facebook
@histio Instagram
@histio Instagram
@histio LinkedIn
@histio LinkedIn
@histio YouTube
@histio YouTube
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