Heart of PPA2

Heart of PPA2 has been a member of Linktree for 1 year and joined in February 2025. The social media accounts linked to from Heart of PPA2 are: • Instagram Besides social media accounts, heartofppa2 has populated their site with: • heartofppa2.org • The heart of PPA2: building a global community of hope and advocacy • A Heart for Stella: How a Jerseyville 5-Year-Old’s Heart Transplant United Thousands • Colorado Springs girl one of 20 in the world living with rare genetic mutation • Irish girl with rare heart condition was given 24 hours to live. Six months later, she's home. • A family’s genetic testing journey reveals the cause of their toddler’s sudden cardiac arrests • Floris (4) en zijn zusje Tessa (2 maanden) hebben allebei een metabole ziekte: "Het is niet te bevatten" • Extremely rare disease causes sudden death of WA siblings • Mum 'broken' as girl, 2, dies from same rare disorder as brother • Raising Awareness: Madison’s Story - SADS Foundation • PPA2-associated sudden cardiac death: extending the clinical and allelic spectrum in 20 new families - PubMed