Heart of PPA2

Heart of PPA2 has been a member of Linktree for 1 year and joined in February 2025. The social media accounts linked to from Heart of PPA2 are: Instagram. Besides social media accounts, heartofppa2 has populated their site with heartofppa2.org, The heart of PPA2: building a global community of hope and advocacy, A Heart for Stella: How a Jerseyville 5-Year-Old’s Heart Transplant United Thousands, Colorado Springs girl one of 20 in the world living with rare genetic mutation, Irish girl with rare heart condition was given 24 hours to live. Six months later, she's home., A family’s genetic testing journey reveals the cause of their toddler’s sudden cardiac arrests, Floris (4) en zijn zusje Tessa (2 maanden) hebben allebei een metabole ziekte: "Het is niet te bevatten", Extremely rare disease causes sudden death of WA siblings, Mum 'broken' as girl, 2, dies from same rare disorder as brother, Raising Awareness: Madison’s Story - SADS Foundation, PPA2-associated sudden cardiac death: extending the clinical and allelic spectrum in 20 new families - PubMed.