@globalgenes

globalgenes has been a member of Linktree for 7 years and joined in October 2019. The social media accounts linked to from globalgenes are: • Facebook • TikTok • LinkedIn • X Besides social media accounts, globalgenes has populated their site with: • Global Genes Expands Rare Disease Research and Advocacy • Global Genes + Simons Searchlight: Event Planning Toolkit • RAREly Told Stories Toolkit, 2024 • Become A Global Advocacy Alliance Member • Mental Health in Rare Disease • Patient Services • Join the Global Genes RARE Disease Community Facebook Group • Sign the Petition - Why Can’t People with RARE Diseases & Wheelchairs Fly Major Airlines? • RARE-X Launches Pompe Consortium to Support Patient-Owned Data • Newly Diagnosed with a Rare Disease? Here are our Top Tips. • Social Media Templates for Attendees - RARE Drug Development Symposium • 2024 Week in RARE Call for Proposals • Zebra Tales: Download Your Zebra Tail Here! • Watch the Full Zebra Tales Video! - Learn More about World Rare Disease Day • Access the Global Genes Rare Disease Day Media Kit 2024 • Share Your Story: Ken Santoso - Love Isn't Rare • Rare Drug Development Symposium Poster Guide • RARE Daily Round Up April 1-5 • RARE Xtra Podcast: Changing the Understanding of Rare Diseases with Data • NEXT Report 2024: Rewriting the Rules • Share Your Story: Meredith "This Isn't My Body" • Financings of Public Rare Disease Drug Developers Soar & More -- This Week in RARE Daily • The Impact of Grants Provided For Ukraine Relief • The Making of MOGAD Awareness Month and the Creation of “The Flock” • Expanding Access to Genome Sequencing in Rural Populations & More -- This Week in RARE Daily • Sharing Fibrodysplasia Ossificans Progressiva Stories During Global FOP Awareness Day • What Being Undiagnosed Means in the Rare Community • Profluent Releases AI-Created and Open-Source Gene Editor & More -- This Week in RARE Daily • FDA Clears First Trial of Prime Medicine's Editing Therapy & More -- This Week in RARE Daily • Beyond the Diagnosis: The Critical Need for Mental Health Support in the Rare Community • RARE Mental Health Grant Recipents • RARE Research Readiness Fellowship Recipents • Bright Future for Thalassemia Despite Complexities That Persist • Rare Disease Focused Therapeutics M&A Soars & More -- This Week in RARE Daily • The War May End but the Fight Continues After Rare Disease Diagnosis • RARE Storytelling Workshop Webinar Registration • "Showing Up 101" - Aug. 15th Webinar Registration • Financial Assistance Webinar: Part 1 Zoom Registration • Sign The Petition • Register