@ebresearch

ebresearch has been a member of Linktree for 1 year and joined in February 2025. The social media accounts linked to from ebresearch are: Facebook, Instagram, LinkedIn, X. Besides social media accounts, ebresearch has populated their site with Donate to unstoppable summer 2026, Donate to Unstoppable Summer 2026, New York Liberty Tickets, EBRP Suncatcher | 50% toward EB research, Donate in honor of Rare Disease Day and stand with 400+ million living with rare disease, Sign up for our special-edition Town Hall | Matter of Time: Behind the Film | February 26, REVIEW ON IMDB, REVIEW ON LETTERBOXD, Join us in Pittsburg - MATTER OF TIME (waitlisted), BILLBOARD Article - Eddie Vedder Talks Riding ‘The Surfboard of Hope’ at Tribeca ‘Matter of Time’ Film Premiere and Performance, NYS MUSIC Article - Matter of Time: Eddie Vedder, Butterfly Children and an Emotional Tribeca, TRAIN Impact Story, SPIN Article - Eddie, Jill Vedder Reveal The Human Side Of EB In ‘Matter Of Time’ Doc, Rowan Holler EBRP - St. Louis Magazine, Vedder Cup: Padres vs. Mariners Supporting EB Research Partnership, Breakthrough Gene Therapy For Butterfly Children’s Disease - Forbes, Share your story with FILSUVEZ®, Virtual Plunge | Donate Here!, LinkedIn, Instagram, X, Facebook, Help shape EB research: The COSEB Project: Development of a Core Outcome Set for EB Research - Interviews, Watch Matter of Time NOW on Netflix, Join us in Toronto - MATTER OF TIME, ebresearch.org, Donate today to help fund life‑saving research for EB 💙🦋, Venture into Cures is BACK! Join us November 11, 2026 in New York., Donate in honor of John Hudson x SBSK, Chicago - Sponsorship Opportunities, Join us in Chicago - MATTER OF TIME Tickets, Join The Effect | Monthly Giving, FORBES Article - Eddie Vedder Amplifies Fight Against Childrens Butterfly Disease, EB RESEARCH PARTNERSHIP AT THE NYSE (Youtube), ROLLING STONE Article - Eddie Vedder Raises Awareness for Rare Disease in New Docu Clip, ZEVASKYN™ (prademagene zamikeracel) | RDEB Treatment, Historic achievement: FDA approval of Abeona Therapeutics' ZEVASKYN accelerates momentum and expands treatment options for the EB community., CNN Article - Matter of Time, Apply for a Grant, Read anemia guidelines for epidermolysis bullosa, Supporter Spotlights, NY Liberty Tickets – Sept 9 | $10 per ticket to EBRP, Town Halls | Register + Read Recaps, Life with EB → Brooklyn’s Story, KB803 Eye Drop Trial → Looking for participants!, 🦋 Send EB West: Donate & Support Rich’s Ride for a Cure, Donation Form.