@ebresearch

ebresearch has been a member of Linktree for 1 year and joined in February 2025. The social media accounts linked to from ebresearch are: • Facebook • Instagram • LinkedIn • X Besides social media accounts, ebresearch has populated their site with: • Apply for an EB research grant (OPEN UNTIL SEPTEMBER 11, 2026) • Donate to unstoppable summer 2026 • New York Liberty Tickets • EBRP Suncatcher | 50% toward EB research • Donate in honor of Rare Disease Day and stand with 400+ million living with rare disease • Sign up for our special-edition Town Hall | Matter of Time: Behind the Film | February 26 • REVIEW ON IMDB • REVIEW ON LETTERBOXD • Join us in Pittsburg - MATTER OF TIME (waitlisted) • BILLBOARD Article - Eddie Vedder Talks Riding ‘The Surfboard of Hope’ at Tribeca ‘Matter of Time’ Film Premiere and Performance • NYS MUSIC Article - Matter of Time: Eddie Vedder, Butterfly Children and an Emotional Tribeca • TRAIN Impact Story • SPIN Article - Eddie, Jill Vedder Reveal The Human Side Of EB In ‘Matter Of Time’ Doc • Rowan Holler EBRP - St. Louis Magazine • Vedder Cup: Padres vs. Mariners Supporting EB Research Partnership • Breakthrough Gene Therapy For Butterfly Children’s Disease - Forbes • Share your story with FILSUVEZ® • Virtual Plunge | Donate Here! • Help shape EB research: The COSEB Project: Development of a Core Outcome Set for EB Research - Interviews • Watch Matter of Time NOW on Netflix • Join us in Toronto - MATTER OF TIME • ebresearch.org • Donate today to help fund life‑saving research for EB 💙🦋 • Venture into Cures is BACK! Join us November 11, 2026 in New York. • Donate in honor of John Hudson x SBSK • Chicago - Sponsorship Opportunities • Join us in Chicago - MATTER OF TIME Tickets • Join The Effect | Monthly Giving • FORBES Article - Eddie Vedder Amplifies Fight Against Childrens Butterfly Disease • EB RESEARCH PARTNERSHIP AT THE NYSE (Youtube) • ROLLING STONE Article - Eddie Vedder Raises Awareness for Rare Disease in New Docu Clip • ZEVASKYN™ (prademagene zamikeracel) | RDEB Treatment • Historic achievement: FDA approval of Abeona Therapeutics' ZEVASKYN accelerates momentum and expands treatment options for the EB community. • CNN Article - Matter of Time • Apply for a Grant • Read anemia guidelines for epidermolysis bullosa • Supporter Spotlights • NY Liberty Tickets – Sept 9 | $10 per ticket to EBRP • Town Halls | Register + Read Recaps • Life with EB → Brooklyn’s Story • KB803 Eye Drop Trial → Looking for participants! • 🦋 Send EB West: Donate & Support Rich’s Ride for a Cure • Donation Form