@cppedsa

cppedsa has been a member of Linktree for 2 years and joined in November 2023. The social media accounts linked to from cppedsa are: Facebook, Instagram, Threads, X, Bluesky. Besides social media accounts, cppedsa has populated their site with My Ostomy Saved My Life – EDSAwareness.com - EDSAwareness.com, Explore writer role on chronicpainpartners.com, Hypermobility Happy Hour - Episodes, Podcasts Archive – EDSAwareness.com, HHH Ep 70 on Apple- Highly Sensitive People, Neurodivergency, ADHD & Advocacy: Donna Irene, A Mother’s Day Shout Out from An EDS Mom and The Producer of Complicated  – EDSAwareness.com, COMPLICATED Film Trailer, Complicated - the must-watch documentary on Ehlers-Danlos Syndrome – EDSAwareness.com, Much More Than That – EDSAwareness.com, Chronic Pain Partners Donations - THANK YOU!, Free Ticket | Daily Movie Pass | IBDFF, Filmmaker Andrew Abrahams on the New EDS Documentary 'Complicated' – EDSAwareness.com, EDS Awareness aka Chronic Pain Partners web page, In memory of John Ferman, Founder and President of Chronic Pain Partners / EDS Awareness – EDSAwareness.com - EDSAwareness.com, Much More Than That – showing May 29-31 in Toronto, Beyond the Myths: Four People Talk About the Reality of Living With EDS & HSD – EDSAwareness.com - EDSAwareness.com, Horizontal Parenting: 5 Strategies I Used After Surgery as a Disabled Single Mom – EDSAwareness.com - EDSAwareness.com, HHH Ep 70 on Soundcloud - Highly Sensitive People, Neurodivergency, ADHD & Advocacy: Donna Irene, Sat May 2nd Special online Screening of COMPLICATED! $3 •  2pm-4pm EST | Eventbrite, EDS Newsletter April 2026: Catch up on what you may have missed!, A Thank You to Karina Sturm for Her Leadership at Chronic Pain Partners – EDSAwareness.com - EDSAwareness.com, Why May is The Moment for “Complicated” – EDSAwareness.com - EDSAwareness.com, Remembering Beloved EDS Specialist Dr. Rodney Grahame (1932-2026) – EDSAwareness.com - EDSAwareness.com, Netflix’s Run Away Quietly Gets EDS Right: Ambulatory Wheelchair Use – EDSAwareness.com - EDSAwareness.com, The Silence After Survival – EDSAwareness.com - EDSAwareness.com, Measuring the Unmeasured – What Two New Studies Say About the Head, Neck, and hEDS, Schroth Therapy: An Expert Q&A on Scoliosis Care in EDS – EDSAwareness.com - EDSAwareness.com, Episode 3: Neurodivergence, with Jan Groh, author OhTWIST, From Patient to Researcher: An Interview with Jeevan Mann – EDSAwareness.com - EDSAwareness.com, EDS Newsletter February 2026: Neurodivergence Podcast, Book Review: The Chemistry Test – EDSAwareness.com - EDSAwareness.com, The Hidden Disabilities Sunflower Lanyard: Making the Invisible Visible – EDSAwareness.com - EDSAwareness.com, New App Can Help Screen for EDS – EDSAwareness.com - EDSAwareness.com, Research Round-up, Edition Six – EDSAwareness.com - EDSAwareness.com, Podcast - EDSAwareness.com, Navigating the Holidays with EDS – EDSAwareness.com - EDSAwareness.com, A Cheerful Gift Guide for People with EDS, Chronic Pain, Chronic Illness, Disability, and Those Who Love Them: Chronic Pain Partners’ 2025 Gift Guide – EDSAwareness.com - EDSAwareness.com, Episode 2: Medically Complex Children – EDSAwareness.com - EDSAwareness.com, “Watch Out For Mum” - Wrongful Child Abuse Allegations Harms Whole Family – EDSAwareness.com - EDSAwareness.com, Boston Screening of COMPLICATED Thu, Dec 11, 2025 at 7:00 PM | Eventbrite, EDS Newsletter December 2025: In Loving Memory of John Ferman, our Founder, EDS Holiday Hacks: Twelve Tips for Setting Yourself Up for Success by Realigning Your Expectations – EDSAwareness.com - EDSAwareness.com, Cerebral Venous Outflow Disorders: What it is and Why EDS Patients Should Know About it – EDSAwareness.com - EDSAwareness.com, My Wife Had EDS and Did Not Know IT! - EDSAwareness.com, AWOL Zebra Podcast: Building Community (and Laughs) Around EDS – EDSAwareness.com - EDSAwareness.com, New Study Reveals Immune Dysfunction in Hypermobile Ehlers–Danlos Syndrome – EDSAwareness.com - EDSAwareness.com, EDS Unplugged Podcast, Episode 1: Invisible Disabilities Awareness with Kate Schultz – EDSAwareness.com - EDSAwareness.com, Interview with Georgina Frankie: Author of "The Chemistry Test" – EDSAwareness.com - EDSAwareness.com, From Diagnosis Odyssey to Scientific Vision: A New Genetics EDS Lab in Norway Opens Its Doors – EDSAwareness.com - EDSAwareness.com, Update On Gene Linked to Hypermobile EDS – EDSAwareness.com - EDSAwareness.com, Building a Supportive and Caring Medical Team No Matter Where You Live – EDSAwareness.com - EDSAwareness.com, EDS Newsletter October 2025: New Study hEDS gene, New EDS Podcast, September is Pain Awareness Month – EDSAwareness.com - EDSAwareness.com, Can I Pet It?: Understanding Animal Helpers – EDSAwareness.com, Research Round-up, Edition Five: Pediatrics – EDSAwareness.com, Discover Chronius health care on edsawareness.com, The Quiet Weight of Chronic Illness Grief – EDSAwareness.com, “It’s All in Your Head”: New Study Confirms What hEDS Patients Have Been Told for Decades – EDSAwareness.com, Out of Spoons: A Spoonie-Centered Coloring Book from Author and Artist Jules Machias – EDSAwareness.com, EDS Newsletter August 2025: Service Animals, Grief, New EDS Care and more, Slamdance Unstoppable Road Tour - COMPLICATED film showings, EDS Awareness's Patient Guides, EDS Types, Symptoms, and Prevalence | EDSAwareness.com, Welcome to Lipedema Awareness Month – EDSAwareness.com, POTS, EDS, and the Scorching Sun: Heat Intolerance & Your Summer Survival Guide – EDSAwareness.com, The World Premiere of Complicated: The Film That Named Itself! – EDSAwareness.com, The Extra Mile: Why This 79-Year-Old Pioneering Physician Is Running the Boston Marathon – EDSAwareness.com, Hyp+Care: A New Clinic for Chronic Conditions including EDS In New York & Beyond – EDSAwareness.com, Film Review: “Exhausted Existence – An EDS Story” – EDSAwareness.com, Jen Kain about her new EDS doc “Exhausted Existence” – EDSAwareness.com, We’re Not Confused - The System Is: Community Survey Shouts for EDS/HSD Classification Change – EDSAwareness.com, EDS Awareness newsletters archive, It's EDS Awareness Month! - EDS Newsletter May 2025, New CCI Research: Understanding the Frequency of Neurosurgical Interventions in Connective Tissue Disorders – EDSAwareness.com, Why Is It So Hard To Get A Genetics Appointment For My Child? – EDSAwareness.com, Understanding Your Flare Fettered Friend – EDSAwareness.com, New Pain Killer on the Market: Suzetrigine – EDSAwareness.com, 22 Ways to Celebrate EDS and HSD Awareness Month – EDSAwareness.com, Current Administration Threatens Medicaid - April 2025 – EDSAwareness.com, Documentary Films on Ehlers-Danlos Syndrome – EDSAwareness.com, Proud Stutter – EDSAwareness.com, Much More Than That – EDSAwareness.com, EDS & Neurodivergence Special - EDS Newsletter March 2025, Research Round-Up, Edition 4: Neurodivergence – EDSAwareness.com, Exhausted Existence – A New Documentary on Living with EDS   – EDSAwareness.com, EDS Community Favorites List - add yours!, Neurodiversity Celebration Week March 17-23rd 2025, EDS Expenses Exposed: Report Peeks at Financial Burden of Living with Ehlers-Danlos – EDSAwareness.com, Neurodivergence and Hypermobility: The Autism-EDS Connection  – EDSAwareness.com, Volunteer Writer sought, Webinar Coordinator sought, 2025 Feb Slamdance Lineup includes COMPLICATED film, How Rebecca Yarros’ “Fourth Wing” Embodies Ehlers-Danlos Syndrome  – EDSAwareness.com, Digesting the Facts: Tackling Gastrointestinal Challenges in EDS – EDSAwareness.com, EDS and Neurodiversity: The Connection, EDS & Autism Special - EDS Newsletter January 2025, EDS Awareness Feedback Survey - drive 2025 for us, Research Round-Up, Edition Three – EDSAwareness.com, Part Six: Dear Doctor: How To Avoid Causing Clinician-Associated Trauma – EDSAwareness.com, Jacqueline L. Wolf, M.D. - About the Author, EDS and Liver Disease Survey - Dr. Jacqueline Wolf at Beth Israel, EDSed Episode 4: Dr. Jacqueline Wolf on GI symptoms & Endometriosis, New Research Study Finds Everything is Connected, As Many Patients Suspected – EDSAwareness.com, Emotions When Choosing Self-Health Over Dysfunctional Family Dynamics – EDSAwareness.com, Navigating the Holidays with EDS – EDSAwareness.com, Research News: Could a Blood Test for hEDS & HSD Be Possible? – EDSAwareness.com, POTS vs. Anxiety: The Misdiagnosis Maze – EDSAwareness.com, Chronic Illness Apps: Why Use Them and Ones to Try for EDS Management – EDSAwareness.com, Low-Dose Naltrexone: Possible Pain Relief in a Small Package – EDSAwareness.com, New HEDS Biomarker found - EDS Newsletter November 2024, Overcoming Barriers With Creativity: Watch Lego Oma – EDSAwareness.com, Nat Geo: Why double-jointed people are more likely to have health problems, Dysautonomia International: Dysautonomia Awareness, Dysautonomia Advocacy, Dysautonomia Advancement, Research News: Could a Blood Test for hEDS & HSD Be Possible? – EDSAwareness.com, New Research Identifies Potential Biomarkers for Diagnosing Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders - The Ehlers Danlos Society, Book Review of Rebel Health: Pioneering Patient-Led Solutions in Healthcare by Susannah Fox – EDSAwareness.com, Part 5: Healing the Hurt: How To Handle Clinician-Associated Trauma – EDSAwareness.com, Book Review of New EDS Book Symptomatic  – EDSAwareness.com, Research Round-Up, volume 2 – EDSAwareness.com, Live Webinar Aug 9 with Susannah Fox, Author of Rebel Health – EDSAwareness.com, Find Answers Faster: The EDS411 Living Library – EDSAwareness.com, Documentary Films on Ehlers-Danlos Syndrome – EDSAwareness.com, Follow us on Facebook, Understanding the EDS Pain Maze during Pain Awareness Mont (Sept), EDS Back to School Special – Prep for K-12, College & Accommodations – EDSAwareness.com, Explore Our Revamped Website & New Content! 🌐💡 - EDS Newsletter September 2024, Follow us on Instagram, Beth O'Hara Memorial Service – August 29th, 2024, Research Round-Up, Edition One – EDSAwareness.com, Help Shine a Spotlight: Unveiling the Hidden Triad of MCAS, Hypermobility, and Dysautonomia Through an Upcoming Film – EDSAwareness.com, Got the Barometric Blues? – EDSAwareness.com, You Made a Difference in Scientific Research for hEDS – EDSAwareness.com, Norris Lab Finds HEDS Gene: Kallikrein - EDSAwareness.com, July 2024: Scientific Breakthrough: Possible hEDS Gene Found! - Ehlers-Danlos News, Podcasts on Ehlers-Danlos Syndrome - EDSAwareness.com, POTS, EDS, and the Scorching Sun: Heat Intolerance & Your Summer Survival Guide - EDSAwareness.com, Top Ten Reasons EDS SUCKS! - EDSAwareness.com, 2022 Interview with Dr. Norris on finding the genetic cause(s) for hypermobile EDS and much more - EDSAwareness.com, EDSed Episode 1: The Norris Lab - EDSAwareness.com, You Made a Difference in Scientific Research for hEDS - EDSAwareness.com, Lipedema Foundation, Clinician-Associated Trauma Series, EDS Types, Symptoms, and Prevalence | EDSAwareness.com, Books on Ehlers-Danlos Syndrome - EDSAwareness.com, THINGS THAT SUCK ABOUT EDS--WHICH ONE IS THE WORST?, Play it Forward: Contribute to the EDS Community Playlist on Spotify This May! - EDSAwareness.com, Grab your Play-It- Forward t-shirt here before May 21, 2024!, Complicated - the must-watch documentary on Ehlers-Danlos Syndrome - EDSAwareness.com, Chronic Pain Partners impact over the last twelve years, A Mother’s Day Shout Out from An EDS Mom and The Producer of Complicated  - EDSAwareness.com, EDS Awareness Month Special Edition: New EDS Film! EDS books, Awareness Campaign!, Filmmaker Andrew Abrahams on the New EDS Documentary 'Complicated' - EDSAwareness.com, A Mother’s Day Shout Out from An EDS Mom and The Producer of Complicated  - EDSAwareness.com, The Rise of Clinician-Associated Trauma in the Doctor-Patient Relationship - EDSAwareness.com, CPP EDS Awareness Patient Guides, April EDS News: New EDS Clinic! Tax Deductions and more., Outcomes of Craniocervical Instability Fusion Surgery in People with EDS - EDSAwareness.com, Decoding Medical Deductions: A Chronic Illness Patient’s Guide to Navigating Healthcare-Related Expenses and Taxes - EDSAwareness.com, HEDS or HSD: Study Questions Diagnostic Criteria - EDSAwareness.com, Complicated — Open Eye Pictures - a film about medical kidnapping and EDS, A New EDS Clinic Coming to a Town Near You (Via Telehealth) - EDSAwareness.com, Popular People With Ehlers-Danlos Syndrome - EDSAwareness.com, Unraveling Tethered Cord for EDS Patients (simplified version) - EDSAwareness.com, Medical Gaslighting as a Source of Clinician-Associated Trauma - EDSAwareness.com, EDS Advocates to Follow on Social Media - EDSAwareness.com, February 2024 EDS News & Updates, Children’s Book about Ehlers-Danlos Published - EDSAwareness.com, Know Your Love Language? Learn to Speak it Well Despite Chronic Illness - EDSAwareness.com, Tethered Cord in EDS: A Patient Guide to Symptoms, Diagnostics, Treatments, and Risks - EDSAwareness.com, 2024 EDS Awareness Survey - What Topics to see?, A New EDS Clinic Coming to a Town Near You (Via Telehealth) - EDSAwareness.com, December 2023 EDS News & Updates, New 2023 MCAS Patient Guide, It’s Worth a Shot: Prolotherapy, PRP & related therapy for EDS, Rising Doctor Making an Impact on hEDS: Q&A with MUSC MD/PhD Student Roman Fenner, hEDS researchers explain clinician-associated trauma - Part II, 10 clever comebacks for handling offensive comments about hEDS - EDSAwareness.com, Gut Check: Gluten Intolerance, Celiac Disease, or Mast Cell Reaction? - EDSAwareness.com, Toxic Positivity: Recognizing It and Preserving Your Spoons - EDSAwareness.com, EDS & Psychological Medical Trauma: An Introduction (Part I), EDS, Dating & Internalized Ableism - EDSAwareness.com.