@connectiveissues

connectiveissues has been a member of Linktree for 3 years and joined in May 2023. Resources connectiveissues has populated their site with include: • The Ehlers-Danlos Society CORE Networks of Excellence Program - The Ehlers Danlos Society • Multidisciplinary EDS Clinic Development | JMDH • The need for primary care providers in the clinical management of hypermobility spectrum disorders and ehlers-danlos syndrome: a call to action - Rheumatology International • The VEDS Movement - Vascular Ehlers-Danlos Emergency Preparedness • VEDS Movement Medical ID Bracelet Request Form • VEDS First Responders Quick Guide • Heterozygous THBS2 pathogenic variant causes Ehlers–Danlos syndrome with prominent vascular features in humans and mice - European Journal of Human Genetics • Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome - PMC • Re-examination of the 2017 diagnostic criteria for hypermobile Ehlers-Danlos syndrome in patients evaluated at the University of Miami • EDS/HSD Reclassification: Patient Needs Survey - Independent Grassroots Survey • Utilization of the 2017 diagnostic criteria for hEDS by the Toronto GoodHope Ehlers–Danlos syndrome clinic: A retrospective review • Looking back and beyond the 2017 diagnostic criteria for hypermobile Ehlers‐Danlos syndrome: A retrospective cross‐sectional study from an Italian reference center • The Road to 2026: Community Questions & Hopes Feedback Form | WorkForms - English • The Road to 2026: A Path Toward Progress - The Ehlers Danlos Society • Case report: further delineation of AEBP1-related Ehlers–Danlos Syndrome (classical-like EDS type 2) in an additional patient and comprehensive clinical and molecular review of the literature • The International Consortium on Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders • Diagnosis and management of vascular Ehlers-Danlos syndrome: Experience of the UK national diagnostic service, Sheffield - European Journal of Human Genetics • The 2017 International Classification of the Ehlers–Danlos Syndromes • EDS Types - The Ehlers Danlos Society • Prof Rodney Grahame Natural History of Ehlers-Danlos Syndrome • British consultant rheumatologists' perceptions about the hypermobility syndrome: a national survey • Ehlers Danlos Syndrome | Saarah's Foundation • Professor Claude Hamonet's site - The Ehlers-Danlos Syndrome • Claude Hamonet, MD, PhD - The Ehlers Danlos Society • Marvel's New Spider-Verse Hero Shows the Struggle of a Real Disease • 'Spider-Man: Across the Spider-Verse' to feature Sun-Spider, a disabled Spider-Person • Comics | Dayn Broder - creator of Sun-Spider • Hypermobility Without Tears: Moving Pain-Free with Hypermobility and EDS • Transforming Ehlers-Danlos Syndrome • Saarah's Princess Throne • Understanding Hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disord | rchpublications • Disjointed: Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disorders • School toolkit for EDS and JHS • Perioperative Care in Patients with Ehlers Danlos Syndromes • Vascular Ehlers-Danlos Emergency Preparedness Kit & Card • The VEDS Movement • Book - Ehlers-Danlos Syndrome: A Multidisciplinary Approach • Ehlers-Danlos syndrome hypermobility type is associated with rheumatic diseases • Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes • Hospital Stay Considerations in Hypermobile Ehlers-Danlos Syndrome: An Exemplary Case With Insights for Coexisting Symptoms • The structure of the tooth and the types of collagen therein: • Hypermobile Ehlers-Danlos Syndromes: Complex Phenotypes, Challenging Diagnoses and Poorly Understood Causes • Dr Alan Pocinki presents "Sleep Disorders in EDS" • Instagram • Facebook