@connectiveissues

connectiveissues has been a member of Linktree for 3 years and joined in May 2023. Besides social media accounts, connectiveissues has populated their site with The Ehlers-Danlos Society CORE Networks of Excellence Program - The Ehlers Danlos Society, Multidisciplinary EDS Clinic Development | JMDH, The need for primary care providers in the clinical management of hypermobility spectrum disorders and ehlers-danlos syndrome: a call to action - Rheumatology International, The VEDS Movement - Vascular Ehlers-Danlos Emergency Preparedness, VEDS Movement Medical ID Bracelet Request Form, VEDS First Responders Quick Guide, Heterozygous THBS2 pathogenic variant causes Ehlers–Danlos syndrome with prominent vascular features in humans and mice - European Journal of Human Genetics, Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome - PMC, Re-examination of the 2017 diagnostic criteria for hypermobile Ehlers-Danlos syndrome in patients evaluated at the University of Miami, EDS/HSD Reclassification: Patient Needs Survey - Independent Grassroots Survey, Utilization of the 2017 diagnostic criteria for hEDS by the Toronto GoodHope Ehlers–Danlos syndrome clinic: A retrospective review, Looking back and beyond the 2017 diagnostic criteria for hypermobile Ehlers‐Danlos syndrome: A retrospective cross‐sectional study from an Italian reference center, The Road to 2026: Community Questions & Hopes Feedback Form | WorkForms - English, The Road to 2026: A Path Toward Progress - The Ehlers Danlos Society, Case report: further delineation of AEBP1-related Ehlers–Danlos Syndrome (classical-like EDS type 2) in an additional patient and comprehensive clinical and molecular review of the literature, The International Consortium on Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders, Diagnosis and management of vascular Ehlers-Danlos syndrome: Experience of the UK national diagnostic service, Sheffield - European Journal of Human Genetics, The 2017 International Classification of the Ehlers–Danlos Syndromes, EDS Types - The Ehlers Danlos Society, Prof Rodney Grahame Natural History of Ehlers-Danlos Syndrome, British consultant rheumatologists' perceptions about the hypermobility syndrome: a national survey, Ehlers Danlos Syndrome | Saarah's Foundation, Professor Claude Hamonet's site - The Ehlers-Danlos Syndrome, Claude Hamonet, MD, PhD - The Ehlers Danlos Society, Marvel's New Spider-Verse Hero Shows the Struggle of a Real Disease, 'Spider-Man: Across the Spider-Verse' to feature Sun-Spider, a disabled Spider-Person, Comics | Dayn Broder - creator of Sun-Spider, Hypermobility Without Tears: Moving Pain-Free with Hypermobility and EDS, Transforming Ehlers-Danlos Syndrome, Saarah's Princess Throne, Understanding Hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disord | rchpublications, Disjointed: Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disorders, School toolkit for EDS and JHS, Perioperative Care in Patients with Ehlers Danlos Syndromes, Vascular Ehlers-Danlos Emergency Preparedness Kit & Card, The VEDS Movement, Book - Ehlers-Danlos Syndrome: A Multidisciplinary Approach, Ehlers-Danlos syndrome hypermobility type is associated with rheumatic diseases, Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes, Hospital Stay Considerations in Hypermobile Ehlers-Danlos Syndrome: An Exemplary Case With Insights for Coexisting Symptoms, The structure of the tooth and the types of collagen therein:, Hypermobile Ehlers-Danlos Syndromes: Complex Phenotypes, Challenging Diagnoses and Poorly Understood Causes, Dr Alan Pocinki presents "Sleep Disorders in EDS", Instagram, Facebook.