CASK Research

CASK Research has been a member of Linktree for 3 years and joined in March 2023. Resources caskresearch has populated their site with include: • Family Priorities Survey 2026 • 2026 CASK Rare disease day profile picture • 2026 Rare disease day profile picture • CASK Gene Awareness Day - CASK Research Foundation • I love someone 1 in a million! • RARE-X data insights for the CASK community 2025 • Our latest publication: The neurodevelopmental spectrum of CASK-related disorder • CASK community Data Collection Programme - Register now! • Counting CASK - the global CASK census • Link to our newsletters, past and present • The Kicking CASK podcast • Our Podcast on Spotify • The Kicking CASK Shop • Rare Beauty prints - Etsy • CASK RACE FOR RESEARCH Europe 2025 • Yorkshire Three Peaks Trek • OASIS Sibling Sleep Study • Get involved in research! • UK Counselling Survey • UK and Ireland CASK registry form - CASK Research UK • GENiDA CASK registry • CASK BINGO study on behaviour and emotions • 2 min survey for UK families • ACNRF Therapeutic Research Project Update August 2023 • Launch of CURE CASK research project • How to upload Genetic Reports on RARE-X • RARE-X talk about the CASK Data Collection Program • Ciitizen - When You Control Your Health Data,You Control Your Options. • Frequently Asked Questions • CASK UK and Ireland Families Facebook support group • Premier of 'Life with CASK' • Expert Panel Q&A • Meet our founder • Meet Laura and Sarah • Professor Kerstin Kutsche discussing CASK gene disorders • CASK Research Foundation - Home • Home - The Cask Coalition