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@BDSRA has been a member of Linktree for 4 years and joined in September 2021. The social media accounts linked to from @BDSRA are: Facebook, Instagram, YouTube, LinkedIn, X, Website. Besides social media accounts, bdsra has populated their site with Batten Disease Global Research Initiative Announces 2026 Research Grant Recipients – BATTEN DISEASE GLOBAL RESEARCH INITIATIVE, Registration, Main Page, Hotel Reservations, BDSRA Foundation Announces Boys Town National Research Hospital as New Site in Clinical Centers of Excellence Program; Two Sites Earn CoE Promotions – Batten Disease Support & Research Association, Give to a Fam Fund, Ways to Give to the BDSRA Foundation, International Batten Disease Awareness Day Apparel, Grant Application, BDSRA Foundation Announces Children’s National Hospital as 12th Site in Batten Disease Clinical Centers of Excellence Program, Donate to BDSRA, BDCRC | Rare Diseases Clinical Research Network, Important Announcement: Building a Stronger Future for BDSRA, SIGN UP FOR OUR EMAIL LIST, Volunteer Info, Coffee Chats Registration, Board Meeting Minutes, Latest Batten Disease Research Updates with Dr. Ineka Whiteman, Fundraiser Shops, BDSRA Foundation Welcomes Four New Board Members, MAJOR GRANT NEWS, Batten Disease Global Research Initiative, Clinical Trials & Natural History Studies Chart, BDSRA Fam Funds, Batten Disease Centers of Excellence, BDSRA Family Grants, Financial Resources | EveryLife Foundation, BDSRA Family Register, $5 Fridays, NORD's Batten Disease Emergency Relief Program, FIND YOUR REPRESENTATIVE.