@BDSRA

@BDSRA has been a member of Linktree for 5 years and joined in September 2021. The social media accounts linked to from @BDSRA are: • Facebook • Instagram • YouTube • LinkedIn • X • Website Besides social media accounts, bdsra has populated their site with: • Batten Disease Global Research Initiative Announces 2026 Research Grant Recipients – BATTEN DISEASE GLOBAL RESEARCH INITIATIVE • International Batten Disease Awareness Day Apparel • SIGN UP FOR OUR EMAIL LIST • Latest Batten Disease Research Updates with Dr. Ineka Whiteman • Donate to BDSRA • Ways to Give to the BDSRA Foundation • Give to a Fam Fund • Coffee Chats Registration • BDSRA Foundation Announces Children’s National Hospital as 12th Site in Batten Disease Clinical Centers of Excellence Program • BDSRA Foundation Announces Boys Town National Research Hospital as New Site in Clinical Centers of Excellence Program; Two Sites Earn CoE Promotions – Batten Disease Support & Research Association • Important Announcement: Building a Stronger Future for BDSRA • BDSRA Foundation Welcomes Four New Board Members • MAJOR GRANT NEWS • Board Meeting Minutes • Clinical Trials & Natural History Studies Chart • BDCRC | Rare Diseases Clinical Research Network • Batten Disease Global Research Initiative • Batten Disease Centers of Excellence • BDSRA Family Grants • BDSRA Family Register • NORD's Batten Disease Emergency Relief Program • Financial Resources | EveryLife Foundation • BDSRA Fam Funds • Fundraiser Shops • $5 Fridays • FIND YOUR REPRESENTATIVE • Main Page • Registration • Hotel Reservations • Grant Application • Volunteer Info