BarbiB17

BarbiB17 has been a member of Linktree for 1 year and joined in January 2025. The social media accounts linked to from BarbiB17 are: • Payment • Website Besides social media accounts, barbib17 has populated their site with: • 🥊 Stanford MECFS Initiative (Ron Davis, father of Whitney DaFoe) • 🥊 ...and/or Open Medicine Foundation • ME ACT NET: What's ME/MECFS? (& Long-COVID) • Researchers (STANFORD, Bateman Horne, NCRI Chicago, etc) • QEEG BRAIN SCANNING! - NCRI Chi (NeuroCognitive Research Institute) • BATEMAN HORNE: PEM (Post-Exertional Malaise) • ME-PEDIA: for pals/docs (Films, Proved Physical Illness, Bad Treatments, Onset, Deaths, etc) • CDC: MECFS Basics (MYALGIC ENCEPH-ALO-MY-EL-ITIS) • CHART/JOURNAL: QUALITY OF LIFE LOWEST: MECFS Patients • DePAUL COLLEGE Chi: Symptoms/PEM Questionnaires • ME-PEDIA: Guide for Surgery/Proced/Anesthetics w/MECFS, POTS, MCAS, EDS, Spinal Probs, etc • MAYO CLINIC: Preparing for your Appt • ME/FIBRO Help: PACING Tutorial (Treatment at Home) • CDC: Epstein-Barr Virus / EBV / Mono • ME/FIBRO Help: SEVERITY RATING SCALE and Other Docs • SOLVE MECFS: Patient/Caregiver Resources • HOW TO GET ON: Dr Co-Sign Letter for SSDI/DISABILITY APPLICATION • QEEG BRAIN SCAN NCRI Chi helped SSDI Case (Court Doc incl) • ME ACT NET: Exercise & Psych Care NOT SAFE for MECFS Patients! • WORKWELL FOUNDATION: EXERCISE NOT SAFE, LETTER TO Dr's • HEALTH RIS: Show Your Dr You Have MECFS, Not Depression • WORKWELL FOUNDATION: PACING/HEART RATE Monitoring • BING SEARCH: EBV/Mono and MECFS • SSA.GOV: Eligibility/Applying for SSDI • GOOD TROUBLE Sam (TT) - Political Debates, Anti-Fa, Cats, Yums • GOOD TROUBLE Sam (Everywhere else) • Chambo - Mario Kaizo GAYMER • PAPER: CEREBRAL BLOOD FLOW Reduced in MECFS • RESEARCHERS: MECFS 200 MILLION GLOBAL NOW (up from 20 Mil) - OPEN MED FOUNDTN • MY STORY - Share & DONATE please! • Joel Van Vliet (YT etc) - Hilarious Atheist vs Christians Debates • Joel's "LIPs" (List of Irreconcilable Passages) (BBDs) • IAmTheRatio - Mario Kaizo GAMER • Sis23344 - Mario Kaizo Gamer Woman • *WISH LIST - FOOD etc (If ya know a thing better than Bezos, tell me!) • Emily/Shoujo - Mario Kaizo Gamer Transgender Woman • Brett Cross - Political - lost son, Uzi, in school shooting • Santana - Political Debates • 🍃 PAYPAL (BarbiB17) (last resort) • 🍃 CASH APP ($BarbiB17) (preferred) • 🍃 VENMO (BarbiB17) (next best) • CHART: BIOMARKERS! v non-MECFS! Exercise Response! Pg 3-4 marked on Pg Bottom. • 🎵 SoundCloud • 🎵 YouTube (BarbiBoo) • 📌 TikTok (@BarbiBoo17) • 📌 BlueSky (@JKsBlueWhisper) • 📌 Substack (BarbiBoo) • 📌 Twitch (BarbiBoo17)