ARRE Foundation
Improving life for those with ASXL syndromes through research and education
Top news and updates
ASXL Family Conference
Participate in research
Family resources
Raise awareness and funds
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About this account
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ARRE Foundation has been a member of Linktree for 5 years and joined in February 2021. The social media accounts linked to from ARRE Foundation are: • Facebook • Instagram • YouTube • Email • X Besides social media accounts, arrefoundation has populated their site with: • SSA adds Bainbridge-Ropers Syndrome to Compassionate Allowances list • ARRE Foundation hires David Bettoun, PhD as first Chief Scientific Officer • Watch conference recordings • Research studies • Free genetic testing • Newly diagnosed resources • ASXL Resource Library • Virtual events & webinars • ASXL Care Directory • ASXL Clinics • Newsletter sign up • Family Feature submission • Volunteer • Awareness Days • Donate • Shop awareness gear • Referral code: 15% of your BILLY Footwear purchase supports us
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