Andrea K

Andrea K has been a member of Linktree for 2 months and joined in June 2026. The social media accounts linked to from Andrea K are: • Instagram Besides social media accounts, andreakuhne has populated their site with: • ⭐️ EDS Patients often Victims of Abusive Psychiatrization - www.researchgate.net • COMPLICATED (2025) Documentary on EDS — Open Eye Pictures • The Ehlers Danlos Society (USA) • Ehlers-Danlos Support UK • Dysautonomia Support Network (USA) • Dysautonomia International: Dysautonomia Awareness, Dysautonomia Advocacy, Dysautonomia Advancement • Los Angeles Dysautonomia Network (SoCal USA) • The Mast Cell Disease Society, Inc (USA) • National Organization for Rare Disorders | NORD (USA) • Independent Patient Advocates | Get Help Now - GNA (USA) • Grey's Anatomy TV Show (multiple episodes on EDS) - ABC.com • Bendy Bodies: Your Guide to Hypermobility Health and EDS • Chimera-Health: Online Physical Therapy for EDS & Hypermobility (USA+) • The Mend Collective (UK) | Doctor-Led Chronic Illness Recovery • Ehlers-Danlos Syndrome Treatment | Casa Colina Hospital and Centers for Healthcare • The EDS Clinic: Medical Care for Ehlers Danlos Syndrome via Telehealth • www.childrenshospital.org: EDS (Boston USA) • www.brighamandwomens.org - EDS (Boston USA) • POTS in hEDS: Dinstinct Subtype? (Stanford CA USA) • Vascular Ehlers-Danlos Syndrome (VEDS) - Stanford Medicine Children's Health • Marfan Syndrome and Related Aortic Conditions (Stanford CA USA) • Stanford: Immunology & Rheumatology Program (Connective Tissue Disorders)| Stanford Health Care • POTS in hEDS: Dinctinct Subtype? (Full study NIH 2017) • Marfans, LDS, vEDS: Stanford Center for Inherited Cardiovascular Disease | Stanford Health Care • Connective Tissue Disorders: USC Genetic Aortic and Related Disorders (GARD) Center • USC Neurology: Headaches, MS, Rehab - Patient Care (USC CA USA) • USC Chan Division of Occupational Science and Occupational Therapy • Dysautonomia Research: Chen Lab - Los Angeles, CA • Understanding Physical Medicine & Rehabilitation (Cedars CA USA) • EDS at Cedars • Dysautonomia: Cedars - Cardiac Electrophysiology Care | Heart Experts • EDS and POTS: A Relationship Study (2014) • Association of POTS and EDS with MCAD (2018) • Ehlers-Danlos Syndrome/epidemiology[MAJR] - Search Results - PubMed • Ehlers-Danlos Syndrome - MeSH - NCBI • Postural Orthostatic Tachycardia Syndrome/epidemiology[MAJR] - Search Results - PubMed • Postural Orthostatic Tachycardia Syndrome - MeSH - NCBI • POTS and Ehlers-Danlos Syndrome: Why They Travel Together, and What That Means • EDS Clinic: Dr. Adam Brown, MD - Cleveland, OH - Rheumatology - Request Appointment • Hopkins: Our Team of POTS Specialists • Hopkins: Postural Orthostatic Tachycardia Syndrome (POTS) Program • UCLA: Neurology Clinical Divisions (POTS,MS) • UCLA POTS Clinic - Meeryo Choe MD Child Neurologist • UCLA Health Long COVID clinic marks two years of caring and learning • EDS Research | The Norris Lab (MUSC) • Rethinking hEDS (MUSC Kimberly McGhee 2025) • Franklin Cardiovascular Ass. PA: EDS & POTS Treatment Center in the USA • Ehlers-Danlos Syndrome Clinic in Florida Mayo Clinic - Overview • Ehlers-Danlos syndrome - Care at Mayo Clinic - Mayo Clinic (USA Multiple Locations) • Hypermobility and EDS Clinic (online USA) • Ehlers-Danlos Syndrome in Children | Diagnosis & Treatment (Cin OH USA) • Stanford Medicine Children's Health (vEDS) - Connective Tissue Disorders • cchmc.cloud-cme.com: HSD Fact Sheet (Cincinnati OH) • UVA Health EDS and Hypermobility Disorders Center in Charlottesville, VA • UVA Health Launching Comprehensive, National Program for Connective Tissue Disorders - Clinical - Medicine in Motion News • EDS: Pain Management - The Kaplan Center, No VA • MediFind: EDS Providers in Richmond VA (see University) • SEDSConnective (UK) | Hypermobility, EDS & Neurodivergence Charity • EDS Awareness - Chronic Pain Partners (LA CA USA) • Connective Wellness | EDS Lifestyle Health Clinic - virtual & Amherst NH New England • Healthcare Professionals Directory - The Ehlers Danlos Society • Research - The Ehlers Danlos Society • Community Voices - The Ehlers Danlos Society • EDS & HSD Marketplace - The Ehlers Danlos Society • Migrastil: 15% off MigraineStrong; 20% off AWARE2026 (June’26 only) • EDS Society: Resource Hub - US Listings • Support Group and Charity Directory - The Ehlers Danlos Society • EDS Society: Support Group and Charity Directory - Gobal • EDS Society: Community Voices: Blogs/Vlogs/Podcasts • EDS Society: Community Voices: Magazines & Publications • EDS Society: Community Voices: Documentaries • Supacore: 15% off EDS15, LADN20 20%off, KOEHL15, OURCHRONICILLNESSTRIBE3O(Compression Garments) • Alignmed: 10% off EHLERS10, (Compression) • Jelliebend: 10% off EDSHSD10 (Compression) • Springrose (Adaptive Bras): 15% off EDS10, • Armbie: 10% off EDS10, (Travel) • Vertige (Adaptive Fashion): 10% off EDS10 • Sodii (Electrolytes AU): 15% off EDS15 • Buoy (Electrolytes - Drops): 20% off Link • Kate Farms (Vegan Shakes): 10% off Link, 20%off 1st Buy/email • Strike (Electrolytes): 15%off Link • Flow Neuroscience (tDCS device): 10%off Link • Healf (wellness devices UK): 10%off Link • Visible (Heart Rate Tracker): $20 off Link • Nurosym™ (Vagus Nerve Device): 5%off Link • Rest® (Cooling Bedding): 10%off Link • Roga (Vagus Nerve Device): 10%off Link or EDS10 • EmeTerm (eTNS/Nausea Device): 10%off EHLERSDANLOSSOC • Apollo (Sleep/Energy Device): $60off EDSOCIETY • DNA Vibe (Red Light): 15%off Link • Body Braid (Posture Support): 10%off EDSMP10 • Alinker (Mobility Device US): 25%off EDS2025 • Ziirobot (Light Powered Mobility Device): • VOCIC (Mobility Devices): VOCIC5/VOCIC10: 5 or 10%off (select products) • Modular Pillow® (Bedding): EDS-SOCIETY or 10%off Link • Rollz (Rollators): EDS5 5%off • VintageBrooklyn1924/Etsy (Cane Strap): 10%off EHLERS10 • Lauren’s Hope (Medical ID): ? • Cool Crutches (Mobility Aids): 10%off EDS15 • SmartCrutch (Mobility Aids/Forearm): ? • The Zebra Club (PT App): 20%? EDSSOCIETY • Relivra (Pain Support App): free 60 min use • Guava (Heath Tracker App): ? • Whealth (online PT): $200 off EDS200 • Management and Care Guidelines - The Ehlers Danlos Society • CHADD - Improving the lives of people affected by ADHD (USA) • ADDitude - ADD/ADHD (USA) • Creative Healing for Youth in Pain | CHYP (USA) • @TheEhlersDanlosSociety - EDS Society Youtube Channel • Etsy - editable hEDS emergency info cards • Etsy - POTS Medical Alert Card • Etsy - Personalized Emergency Medical Information Cards and Home Sheet • Etsy - Personalized Emergency Medical Info Sheet • Etsy - Ehlers-Danlos (EDS) Awareness Bundle, Letter Template, Fact Sheet, Support Poster, Self-Advocacy at School & Medical Appt, Instant Download • clarkson.edu - Surgery Info pdf for hEDS/HSD • tmsforacure.org - fillable TMS/MCAS Emergency Protocol • EDS Society: hEDS Criteria Checklist pdf • AAFP - hEDS/HSD - Diagnostics - Providers Guide • 🩺 Management of Common Respiratory Manifestations in EDS and HSD. • History Form for EDS 📋 - www.researchgate.net • EDS: Analysis of Current Treatment Options (2020) • hEDS/HSD: Distressing Bleeding Symptoms (2025) • EDS: Multidisciplinary Approach to Treating Chronic Pain (2022) • EDS Society: MCAD in EDS for NonExperts (2021 - pdf 4 pg) • Fascial Pathophysiology in HSD/hEDS (2025 Tina Wang) • ELEVATE RARE: Think Tank for Complex Care • How to Address 'Medical Gaslighting' • Medical gaslighting: when conditions turn out not to be ‘all in the mind’ • Elevate Rare: IG @elevaterare Complex Care Think Tank • Elevaterare Official: IG/FB | Linktree @Elevaterare • ourchronicillnesstribe Official: Instagram | Linktree • Instagram @the.eds.clinic • SEDSConnective Charity Official: TikTok, Instagram, X, Facebook, Threads | Linktree • SEDSconnective (@sedsconnective) • Instagram photos and videos • Expert Neurogastroenterology (Dr Spiritos) I EverBetter Medicine • Verve Market | The most personal online grocery service • Zachary Spiritos MD MPH (@drzacspiritos) • Instagram photos and videos • Yolanda Sophia: FB Group: MCAS Healing Naturally • www.mastcellaction.org: Primary Care Guide to MCAS • Edith CA MCAS & Comorbidity Recommendations • EDS Society: Pradeep Chopra Webinar Slides pdf • Connective Care Family Practice (cash pay for now) • Body Braid DIY Tutorial!! (@Yes.rebecca99)