SEDSConnective Charity

SEDSConnective Charity has been a member of Linktree for 6 years and joined in June 2020. The social media accounts linked to from SEDSConnective Charity are: • Facebook • Instagram • TikTok • YouTube • LinkedIn • Email • Threads • X • Bluesky • Website • WhatsApp Channel Besides social media accounts, SEDSConnective has populated their site with: • New sensor by Brighton researchers could detect arthritis before major joint damage occurs | ITV News Meridian • Beyond bendy joints: number of variant connective tissue features predicts neurodivergent characteristics in hypermobile individuals with anxiety | npj Mental Health Research • Claiming PIP with Ben Furner | SEDSConnective • Neurodivergence in Radiography: Why Language Affects Patient Safety and Physical Health • The Connection Between Hypermobility & ADHD [online] Tickets, Sunday, June 14 • 4 PM - 6 PM UTC | Eventbrite • onlinelibrary.wiley.com • The elephant in the room: neurodivergence in psychiatry | The British Journal of Psychiatry | Cambridge Core • Charities warn Labour’s PIP review must ‘earn the trust’ of disabled people | The Independent • SEND: Schools white paper includes £4 billion in additional funding for reforms - Learning Disability Today • Bipolar Disorder, Hypermobility and Neurodivergence: The Missing Connection • New Support Meeting in Burgess Hill! | SEDSConnective • Embracing complexity: connecting bipolar affective disorder, joint hypermobility and neurodivergence - PubMed • The lived experience of rejection sensitivity in ADHD - A qualitative exploration - PubMed • Latest Research | SEDSConnective • Bendy Brain. Episode 4. Unusual Sensory Experiences. • Frontiers | Neurobiological and neuropsychological disturbance in EDS • Disruptions in This Sixth Sense May Drive Mental Illness • Bendybrain You tube channel • Jessica Eccles: Beyond the neurotype: brain and body in Autism • ADHD: overdiagnosis or opportunity? | British Journal of General Practice • The Invisible Link: Hypermobility and Neurodivergence • Pain ConcernAiring Pain #148: Links between Hypermobility and Neurodivergence - Pain Concern • What's it like to be diagnosed as autistic later in life? • Assert Brighton & Hove Webinar with Jane Green: 'Issues with our Tissues' • Sophie Medlin Dietician - The Nutritional Management of Ehlers-Danlos Syndromes • MARG chats with SEDS Connective Chair Jane Green MBE • Hypermobility GJH Extreme (EDS HSD) and long Covid • Crawley Surrey Sussex Meet up! | SEDSConnective • SEDSConnective celebrates £20k National Lottery funding • Linking neurodivergence and physical health: Implications for student welfare and attendance : My College • Tourette's helped me embrace chronic illness • We’re delighted to welcome Dr. Zachary Spiritos as a new Patron of SEDSConnective! • Jane Green x Dan Walker Interview on Autism - 5Live News • Research- Largest Global study hEDS HSD (hypermobility) • SEDSConnective website Homepage • We're now a charity! • Neurodivergence in education: The Late Late Show with Kathryn Taylor | Teachers Talk Radio • S2 Episode 12 - Jane Green MBE • Donate to SEDSConnective • Our Chair on behalf of you was delighted to talk to Westminster staff about neurodivergence and hypermobilty • Ehlers-Danlos syndromes links to Autism 74% and ADHD 56% plus • Medically Unexplained Symptoms | EDS & HSD • What is the Beighton Scale / Score • Live talk launch with Dr Eccles & J Green on 5th May #hypermobilityneurodivergenceday • Episode 3. Jane Green MBE founder of SEDS connective on her remarkable journey. • Crawley Surry Sussex Meetup! | SEDSConnective • EFNA: Health literacy for ethical clinical outcomes • Hypermobility: What Does It Mean to be Bendy? - Jane Green - Autism Explained Online Summit 2021 • New Blog: Autism Acceptance Of Brain/Body • Blog | 'You don't know what you don't know' • Rejection Sensory Dysphoria ? • SEDSConnective | Jane Green MBE Investiture • Unmasking Hypermobility and Neurodivergence Webinar with Jane Green MBE and Kelly Harris • It's not all in your head ! Groundbreaking era of neuroscience autism, ADHD, dyspraxia • Ehlers Danlos Syndromes Issues with our tissues, with Jane Green and Chloe Aucademy educating • SEDS Support Group & Dr Jessica Eccles: "Hypermobility Symptoms & Conditions" • To Stretch Or Not To Stretch - with Bonnie Southgate • Jane Green - The Double Jeopardy • SEDSConnective Webinar: Tricky Veins and Needle Phobia • Inside Health - Monkeypox, mind body connections, are children exercising less since Covid? - BBC Sounds • SEDSConnective Blog | Study shows hypermobility and emotions are linked • 2023 Global Learning Conference - The Ehlers Danlos Society • Neurodivergence and Symptomatic Hypermobility | SEDS Connective | Amaze • The Knowledge. Helping pupils with symptomatic hypermobility • Physical health challenges in neurodivergent children and young people : My College • Unseen Struggles: The Surprising Link Between Pain And Neurodivergence (With Jane Green) • Listening to your heart might be the key to conquering anxiety with Dr Garfinkel Dr Quadt and Jane Green Chair of SEDSConnective • Challenging stereotypes: Novel perspectives on autism - BSMS • A model linking emotional dysregulation in neurodivergent people to the proprioceptive impact of joint hypermobility | Philosophical Transactions of the Royal Society B: Biological Sciences • Connective issues | BPS NEURODIVERGENCE • Teachers Talk Radio NEURODIVERGENCE & Symptomatic hypermobility live • Education : Co-Occurring Physical Health Challenges in Neurodivergent Children and Young People: A Topical Review and Recommendation B Donaghy, Dr D Moore, J Green MBE • Edpsyuk Second most read blog - SEDS website • Face blindness - iNews • 5 classroom adjustments to support autistic pupils • Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain • Neurodivergent 2 x more likely to be hypermobile - Research Piece • Disbelieved to be hEDS hypermobile 'Surrey Live' • Health Watch West Sussex Jane Green Blog - EDS Awareness Month • Psych Reg Article: We Need to Do More to Help Autistic Neurodivergent Children and Young People • Understanding symptomatic hypermobility in Education • To teach symptomatic hypermobility children you need to know about it first • iNews: Ehlers-Danlos Syndrome: ‘I’d dislocate my shoulder putting my coat on, but I was told I was a hypochondriac’ • Jane Green - NASEN EDUCATION HYPERMOBILITY Article • Health challenges with hypermobility, Autism ADHD x 4 • What is MCAS? "When mast cells flare the ‘storm’ gathers pace" • "Walking the path of thorns with hypermobility EDS and dyslexia" • Is joint hypermobility linked to self-reported non-recovery from COVID-19? • Red, White and Blue are my digits you know? February is Raynaud’s Awareness month • OU alumna awarded MBE at Windsor Castle Key home page on OU with Sir David Attenborough and STEM on the newsletter • BBC Radio 4 - Inside Health- Mind Body connections 9mins in Eccles Green • The School Toolkit - EDS & JHS • Living with Autism and EDS with Jane Green | Finding Your Range Podcast S2:E7 • www.twinkl.co.uk • Masking my Pain with alcohol • Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain - PubMed • Our Autumn Newsletter 2022 We are making a difference! • Solutions: Inclusion for neurodivergent and disabled staff • SEDSConnective Celebrates #NeurodivergenceDay on 11th March • How to get exit interviews right - Diversity and Inclusion Leaders – Accelerating workplace inclusion • School toolkit launches to transform understanding of hypermobility syndromes in children - Educate magazine • Connections webinar longCovid and Hypermobility 19-5-24 • Making Connections: A Journey in Hypermobility Research - Dr J Eccles, Jane Green MBE & Dr L Quadt • Acronyms for hypermobility - Alphabet soup! • Autism awareness or acceptance or embodiment? • Connections between Long Covid & Hypermobility Webinar with Dr J Eccles | SEDSConnective • It’s not just in your head | SEN Magazine • Edpsyuk Jane’s Blog - EDS & Hypermobility Syndromes • Co-occurring physical health challenges in neurodivergent children and young people : A topical review and recommendation • www.sedsconnective.org • Understanding Hypermobility Disorders/syndromes in schools • Age warning- Time to talk about sex and intimate relations • BSMS Article: Neurodivergent People More Likely to Experience Pain, Due to Hypermobility • The Power and Potential of Peer support • Told I was dim, weird, reasons to create the first school toolkit • BBC Radio 4 - Inside Health Brain/Body Dr Eccles /Jane Green • Jane Green TES - Why pain is more likely in neurodivergent children • Special Needs Jungle - Jane Blog Piece - National SchoolToolkit for EDS and JHS • Versus Arthritis Blog - Living with EDS • Raising Awareness of Pupils with EDS Blog - edpsy.org.uk • SEDS Dr Eccles Online Webinar