@actionforme

@actionforme has been a member of Linktree for 6 years and joined in August 2020. The social media accounts linked to from @actionforme are: • Facebook • Instagram • YouTube • LinkedIn • Email • Threads • Bluesky Besides social media accounts, actionforme has populated their site with: • Action for ME Annual Report 2025-2026 - Action for ME • www.actionforme.org.uk • Recording of Action for ME's Annual General Meeting 2025/2026 • Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot | The Guardian • PRIME - Building Research Infrastructure for ME/CFS • Join The HERITAGE Study | Heritage: Health Effects fRom Infection sequelae: Tailoring services and Advancing GuidancE • Resources • Self-advocacy Impact Statement template - Action for ME • Our Christmas Angels project is back! • Latest Mindfulness Meditation Session recording now available! - Action for ME • Jerome Pennington is fundraising for Action for M.E. • Great North Run - Join the Action for ME team • You're Not Imagining It: Long COVID, ME & Invisible Illnesses in South Asian Communities • September APPG Meeting • Take urgent action so those with Severe Myalgic Encephalomyelitis in Wales are no longer left without vital medical care - Petitions • Beatrix Clark is fundraising for Action for M.E. • Severe ME Inquiry Report • A Peaceful Sanctuary - mindfulness meditation July 2026 • Seamus Logan MP joins parliamentary champions • Luke Akehurst MP joins parliamentary champions • Learn About ME - Professional development resources - Action for ME • Learn about ME - podcast series • Biology Matters podcast - ME/CFS: From Neglect to New Hope • Parliamentlive.tv - Commons • hansard.parliament.uk • Timms Review: Initial Findings Update - Action for ME • Our response to the Health Modernisation Bill - Action for ME • LOCOME paper • Models of Care Priority Setting Survey • ME and the Work Capability Assessment - Action for ME • ME and PIP - Action for ME • My Sibling and ME - Action for ME • PRIME Symposium 2026 registration • Parliamentary Questions on Severe and Very Severe ME Answered - Action for ME • Sign up to the research involvement hub • Keeping ME Warm: take part in new research - Action for ME • What is ME? • Our FREE support services • Resources - Action for ME • Support for families • Support for parents • Our forums and peer support • Healthcare Services for ME • Healthcare Services self-referral form • Free Young People's Counselling • Support for 18 and under • Join our Young Person's Community • Useful resources • Learning and training • Membership: join us or renew • InterAction magazine • Sequence ME & Long Covid Launches • LOCOME Results Summary Blog • Initial DecodeME DNA Results • Parliamentary Champions Network • All-Party Parliamentary Group on ME • Contact your MP - All-Party Parliamentary Group on ME • Find your MP - MPs and Lords - UK Parliament • Supporting children and young people with ME - Action for ME • IHCP template for a pupil with ME - Action for ME • Supporting pupils with medical conditions at school • Education support for children & young people with ME - Action for ME • Exam Stress | How To Deal with Exam Stress | YoungMinds • Going to school - Action for ME • Donate now & change lives • Fundraise for us • Fundraising ideas - Action for ME • Volunteer • Severe ME • Our FREE Breaking Isolation workshops • ​Learn About M.E. and Paediatrics podcast: listen now • Action for M.E. - Green Paper Consultation • Update on the APPG on ME • Home - DecodeME • Our Response to the Green Paper • BBC Scotland The Nine interview • Safer Hospital Care for Severe ME - #SevereMEDay 2024 - World ME Alliance • Care & Support Plan update • International Literacy Day: your favourite writings • Leave a legacy • #rememberacharity • The Times: NHS bosses reject calls for specialist ME care • Transitions survey - under 30 • Transitions survey - parents and carers • Genetics Centre of Excellence webinar - REGISTER • Another world record for TCS London Marathon • Action for ME's CEO Sonya Chowdhury on BBC Radio 4 The World Tonigh • Guardian article: Maeve Boothby O’Neill died because of a discredited view of ME • Julie's story • Alex's story • Adjustments for disabled students and apprentices | Disability Rights UK • Education Support Factsheet - Action for ME • Young Minds: Exam Stress | How To Deal with Exam Stress • Going to school • Young Minds School Resource • SEND Support - Young People's Hub from KIDS • AJ Bell Great North Run | 7 September 2025 • Great South Run 2025 Application form with Terms and Conditions • AJ Bell Great South Run • The 2025 Series ~ Ultra Challenge • Scotland's lowest cost fundraising event. • Your pupils with M.E. • EHC plans, EHC needs assessments and SEND Tribunal appeals • APPG meeting: 5th March - All-Party Parliamentary Group on ME • Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW | 38 Degrees • DHSC Statement on the Delivery Plan on ME/CFS • The new proposed welfare reforms: understanding the impact on people with Long Covid and ME/CFS • A proposal for an ME/CFS, Long Covid and Post-Infectious Disease research platform • psp-me.co.uk • Scientists call for research hubs to solve mystery of ME • World ME Day joint statement • London Marathon - April 2026 - Action for ME • Genetics Centre of Excellence: update on recent research - Action for ME • Donate to our Summer Appeal 🌻 • Our Summer Appeal has launched - Action for ME • Simple blood test could provide first reliable diagnosis for ME • Summer Appeal - Debi's story - Action for ME • Summer Appeal - Beena's story - Action for ME • Adults Advocacy service • ❗️ DHSC publishes Final Delivery Plan on ME/CFS • Channel 4: ME linked to your genetics - early study indicates • Sign the Petition • Severe ME - World ME Alliance • Join us for our 2025 Annual General Meeting (AGM) - Action for ME • Action for ME 2024/25 Annual Report & Accounts - Action for ME • Minutes for APPG meeting: 10 September - All-Party Parliamentary Group on ME • Take on an Ultra Challenge in aid of Action for ME • Invite your MP - October APPG Meeting • Action for ME 2024/25 Annual General Meeting • Development and validation of blood-based diagnostic biomarkers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) using EpiSwitch® 3-dimensional genomic regulatory immuno-genetic profiling | Journal of Translational Medicine | Full Text • About us – Our Future Health • Take part in our Big Survey • PRIME: David Tuller interviews Chris Ponting • Medical student essay competition - Action for ME • 2025 Action for ME Christmas Angels • Free counselling for young people with ME • Ask your MP to Act for ME! • Our Board of Trustees - Action for ME • Red Cullum is fundraising for Action for M.E. • LOCOME research webinar registration • Overlapping Illness Alliance • aliancamillionsmissing.org • Great North Run 2026- Action for ME • ThereForME template MP letter - Westminster Hall Debate • Enter our Winter Raffle • PPI in DecodeME Conference Presentation • LOCOME Webinar Registration • Watch here - Westminster Hall Debate • Summary of Westminster Hall Debate on Government Support for People with ME - Action for ME • APPG on ME - Severe ME enquiry evidence session • Save the date - The Big Give is (almost) back! • Parliamentary drop-in summary • Donate to our Big Give Christmas Campaign! • PrecisionLife LOCOME Findings • Winner of our Medical Student Essay Competition announced! - Action for ME • Watch our Big Give Research Video • Work or volunteer with us - Action for ME • Register here: PRIME Research First Workshop • Find out more: PRIME Research Project First Workshop • LOCOME Webinar Recording • Free counselling for 11-18 year olds with ME • SEND Reform National Conversation - Online Series | Eventbrite • SEND Regional Engagement Events with the Department for Education • SEND reform national conversation - Page 1 of 15 - Department for Education - Citizen Space • Webinar Registration - Zoom • PRIME Research Project First Workshop - Action for ME • Treatment for ME has turned a corner - the UK must not leave patients waiting | LBC • Practice Nursing Article: Supporting people with myalgic encephalomyelitis in primary care • Reviewing the law for powered mobility devices - GOV.UK • ME research parliamentary questions answered • Impact statement template - Action for ME • APPG ME AGM - Invite your MP! • Watch the PRIME project webinar recording • Learn more about our Parliamentary Champions Network • My body can take no more, says ME patient starving in hospital • ME/CFS Alliance Symposium • Mindfulness session for people with ME • Register for ForwardME's AGM • International Women's Day 2026 • Breaking Isolation Workshop - Flower making workshop Tickets, Thursday, Mar 19 from 4 pm to 5:30 pm UTC | Eventbrite • Breaking Isolation Workshop - Flower making workshop Tickets, Wednesday, Apr 1 from 3 pm to 4:30 pm UTC | Eventbrite • Breaking Isolation Workshop - ME/CFS mentoring workshop Tickets, Thursday, Apr 9 from 3 pm to 4:30 pm UTC | Eventbrite • Breaking Isolation Workshop - ME/CFS mentoring workshop Tickets, Tuesday, Apr 21 from 3 pm to 4:30 pm UTC | Eventbrite • Breaking Isolation Workshop - relaxed creative space Tickets, Tuesday, May 5 from 3 pm to 4:30 pm UTC | Eventbrite • ME: A guide for educators - Action for ME • Doodle • Medical conditions at school: statutory guidance - Department for Education - Citizen Space • Sign up for the ME research seminar • Sign up for the PRIME workshop • NHS Severe ME e-learning module • ME: Swansea man was active but now he can't walk or talk at 28 - BBC News • New study finds age peaks in ME onset • Take part in London Marathon 2027 • Find out more about our BBC Lifeline campaign • Watch our BBC Lifeline Appeal Video • Blue Sunday 2026 - Action for ME • Blue Sunday 2026! - JustGiving • Have your say: Timms PIP Review • ME in parliament: Recent written questions • Major funding secured for Sequence ME & Long Covid, a DecodeMe project - Action for ME • About Blue Sunday – 'M.E. myself and I' by Anna • The Times covers Sequence ME & Long Covid funding • World ME Day 2026: Why medical education matters • Medical Education Hub one-page explainer • Sequence ME & Long Covid Webinar - Register here • Research blog: What does Sequence ME and Long Covid funding mean for ME research? • Action for ME - BBC Lifeline Appeal video • House of Lords debate on severe ME • Myalgic Encephalomyelitis (ME) support - BBC • BBC Radio Gloucestershire 3rd June • BBC News article - 3rd June • The Casey Commission | Independent Commission on Adult Social Care • Carers, family, and friends - Action for ME