@actionforme

@actionforme has been a member of Linktree for 5 years and joined in August 2020. The social media accounts linked to from @actionforme are: • Facebook • Instagram • YouTube • LinkedIn • Email • Threads • Bluesky Besides social media accounts, actionforme has populated their site with: • Parliamentlive.tv - Commons • hansard.parliament.uk • Timms Review: Initial Findings Update - Action for ME • Beatrix Clark is fundraising for Action for M.E. • Our response to the Health Modernisation Bill - Action for ME • Carers, family, and friends - Action for ME • The Casey Commission | Independent Commission on Adult Social Care • BBC News article - 3rd June • BBC Radio Gloucestershire 3rd June • Myalgic Encephalomyelitis (ME) support - BBC • House of Lords debate on severe ME • Action for ME - BBC Lifeline Appeal video • Research blog: What does Sequence ME and Long Covid funding mean for ME research? • Sequence ME & Long Covid Webinar - Register here • Medical Education Hub one-page explainer • World ME Day 2026: Why medical education matters • The Times covers Sequence ME & Long Covid funding • About Blue Sunday – 'M.E. myself and I' by Anna • Major funding secured for Sequence ME & Long Covid, a DecodeMe project - Action for ME • ME in parliament: Recent written questions • Have your say: Timms PIP Review • Blue Sunday 2026! - JustGiving • Blue Sunday 2026 - Action for ME • Watch our BBC Lifeline Appeal Video • Find out more about our BBC Lifeline campaign • Take part in London Marathon 2027 • New study finds age peaks in ME onset • ME: Swansea man was active but now he can't walk or talk at 28 - BBC News • NHS Severe ME e-learning module • Sign up for the PRIME workshop • Webinar Registration - Zoom • Sign up for the ME research seminar • Medical conditions at school: statutory guidance - Department for Education - Citizen Space • Doodle • ME: A guide for educators - Action for ME • Breaking Isolation Workshop - relaxed creative space Tickets, Tuesday, May 5 from 3 pm to 4:30 pm UTC | Eventbrite • Breaking Isolation Workshop - ME/CFS mentoring workshop Tickets, Tuesday, Apr 21 from 3 pm to 4:30 pm UTC | Eventbrite • Breaking Isolation Workshop - ME/CFS mentoring workshop Tickets, Thursday, Apr 9 from 3 pm to 4:30 pm UTC | Eventbrite • Breaking Isolation Workshop - Flower making workshop Tickets, Wednesday, Apr 1 from 3 pm to 4:30 pm UTC | Eventbrite • Breaking Isolation Workshop - Flower making workshop Tickets, Thursday, Mar 19 from 4 pm to 5:30 pm UTC | Eventbrite • International Women's Day 2026 • Register for ForwardME's AGM • Mindfulness session for people with ME • ME/CFS Alliance Symposium • My body can take no more, says ME patient starving in hospital • Supporting children and young people with ME - Action for ME • IHCP template for a pupil with ME - Action for ME • Fundraising ideas - Action for ME • Learn more about our Parliamentary Champions Network • Education support for children & young people with ME - Action for ME • Exam Stress | How To Deal with Exam Stress | YoungMinds • Going to school - Action for ME • Enter our Winter Raffle • Adults Advocacy service • Watch the PRIME project webinar recording • Initial DecodeME DNA Results • Take part in our Big Survey • LOCOME paper • Sequence ME & Long Covid Launches • PPI in DecodeME Conference Presentation • Contact your MP - All-Party Parliamentary Group on ME • Find your MP - MPs and Lords - UK Parliament • Models of Care Priority Setting Survey • Supporting pupils with medical conditions at school • Severe ME • ME and the Work Capability Assessment - Action for ME • Our FREE Breaking Isolation workshops • Donate now & change lives • ME and PIP - Action for ME • PrecisionLife LOCOME Findings • My Sibling and ME - Action for ME • Free counselling for young people with ME • Volunteer • Fundraise for us • Sequence ME and Long Covid Webinar May 2026 • Impact statement template - Action for ME • www.actionforme.org.uk • LOCOME Results Summary Blog • Scientists call for research hubs to solve mystery of ME • All-Party Parliamentary Group on ME • www.tickettailor.com • Home - DecodeME • Parliamentary Questions on Severe and Very Severe ME Answered - Action for ME • DHSC Statement on the Delivery Plan on ME/CFS • PRIME webinar - Similarities & Differences between ME & Long Covid (24th April 2026) • Overlapping Illness Alliance • Parliamentary Champions Network • Breaking Isolation Workshop - Flower making - Ages 14-18 Tickets, Thursday 18 June • 2:30 PM - 4 PM UTC | Eventbrite • ❗️ DHSC publishes Final Delivery Plan on ME/CFS • Sign up to the research involvement hub • Minutes for APPG meeting: 10 September - All-Party Parliamentary Group on ME • Channel 4: ME linked to your genetics - early study indicates • Join us for our 2025 Annual General Meeting (AGM) - Action for ME • Action for ME 2024/25 Annual Report & Accounts - Action for ME • Development and validation of blood-based diagnostic biomarkers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) using EpiSwitch® 3-dimensional genomic regulatory immuno-genetic profiling | Journal of Translational Medicine | Full Text • Medical student essay competition - Action for ME • What is ME? • Ask your MP to Act for ME! • Our FREE support services • Resources - Action for ME • Red Cullum is fundraising for Action for M.E. • Support for families • Support for parents • APPG on ME - Severe ME enquiry evidence session • Our forums and peer support • Summary of Westminster Hall Debate on Government Support for People with ME - Action for ME • LOCOME Webinar Registration • Healthcare Services for ME • Parliamentary drop-in summary • Healthcare Services self-referral form • Winner of our Medical Student Essay Competition announced! - Action for ME • Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW | 38 Degrees • Free Young People's Counselling • Support for 18 and under • A proposal for an ME/CFS, Long Covid and Post-Infectious Disease research platform • Join our Young Person's Community • World ME Day joint statement • Genetics Centre of Excellence: update on recent research - Action for ME • Useful resources • Learning and training • Membership: join us or renew • InterAction magazine • Sign the Petition • Severe ME - World ME Alliance • Take on an Ultra Challenge in aid of Action for ME • Invite your MP - October APPG Meeting • Action for ME 2024/25 Annual General Meeting • About us – Our Future Health • 2025 Action for ME Christmas Angels • LOCOME research webinar registration • aliancamillionsmissing.org • Work or volunteer with us - Action for ME • psp-me.co.uk • Register here: PRIME Research First Workshop • Find out more: PRIME Research Project First Workshop • LOCOME Webinar Recording • Free counselling for 11-18 year olds with ME • SEND Reform National Conversation - Online Series | Eventbrite • SEND Regional Engagement Events with the Department for Education • SEND reform national conversation - Page 1 of 15 - Department for Education - Citizen Space • APPG meeting: 5th March - All-Party Parliamentary Group on ME • PRIME Research Project First Workshop - Action for ME • Treatment for ME has turned a corner - the UK must not leave patients waiting | LBC • Scotland's lowest cost fundraising event. • The 2025 Series ~ Ultra Challenge • AJ Bell Great South Run • Practice Nursing Article: Supporting people with myalgic encephalomyelitis in primary care • Reviewing the law for powered mobility devices - GOV.UK • ME research parliamentary questions answered • APPG ME AGM - Invite your MP! • Great South Run 2025 Application form with Terms and Conditions • EHC plans, EHC needs assessments and SEND Tribunal appeals • Young Minds School Resource • SEND Support - Young People's Hub from KIDS • Adjustments for disabled students and apprentices | Disability Rights UK • Young Minds: Exam Stress | How To Deal with Exam Stress • Education Support Factsheet - Action for ME • Your pupils with M.E. • Going to school • The new proposed welfare reforms: understanding the impact on people with Long Covid and ME/CFS • London Marathon - April 2026 - Action for ME • Great North Run 2026- Action for ME • Watch our Big Give Research Video • Donate to our Big Give Christmas Campaign! • Save the date - The Big Give is (almost) back! • ThereForME template MP letter - Westminster Hall Debate • Watch here - Westminster Hall Debate • AJ Bell Great North Run | 7 September 2025 • Our Board of Trustees - Action for ME • PRIME: David Tuller interviews Chris Ponting • Our Summer Appeal has launched - Action for ME • Summer Appeal - Debi's story - Action for ME • Donate to our Summer Appeal 🌻 • Summer Appeal - Beena's story - Action for ME • Simple blood test could provide first reliable diagnosis for ME • Julie's story • Alex's story • Action for M.E. - Green Paper Consultation • Update on the APPG on ME • Our Response to the Green Paper • BBC Scotland The Nine interview • Care & Support Plan update • International Literacy Day: your favourite writings • The Times: NHS bosses reject calls for specialist ME care • #rememberacharity • Leave a legacy • Transitions survey - parents and carers • Transitions survey - under 30 • Genetics Centre of Excellence webinar - REGISTER • Another world record for TCS London Marathon • Action for ME's CEO Sonya Chowdhury on BBC Radio 4 The World Tonigh • Guardian article: Maeve Boothby O’Neill died because of a discredited view of ME • Safer Hospital Care for Severe ME - #SevereMEDay 2024 - World ME Alliance • ​Learn About M.E. and Paediatrics podcast: listen now