Undiagnosed Diseases Network

Undiagnosed Diseases Network has been a member of Linktree for 4 years and joined in August 2021. Resources UDNconnect has populated their site with include: • CheckRare: The Undiagnosed Diseases Network • UDN PEER Interviews Dr. Devin Oglesbee and Dr. Ian Lanza (1/24/2022) • The "All of Us" Research Program - with Dr. Anastasia Wise (11/17/2021) • #UndiagnosedLife: An Ode to My Wingman on My Diagnostic Odyssey - National Organization for Rare Disorders • PCORI seeks to fund patient-centered CER studies focused on rare diseases. Up to $100M in available funding! • REGISTER NOW! UDN PEER Book Launch Lecture - "The AI Revolution in Medicine: GPT-4 and Beyond" • Undiagnosed Diseases Network • REGISTER NOW! UDN PEER "Tell Me More" Lecture - "Freedom Within - Strategies for Navigating the Uncertainty of Living with an Undiagnosed/Ultra Rare Disease" • Sign up for our mailing list! • PCORI Funding Information • An Odyssey of Odysseys - with Cristina Casanova Might ( • UDN PEER "Tell Me More" Lecture Series - with the Undiagnosed Diseases Network Foundation (3/7/2023) • Creating the Fourth Chapter of Human Genomics - with Dr. Eric Green (3/14/22) • UDN PEER Interviews Dr. Bill Gahl (10/4/2021) • Until My Son Calls Me "Dad" - with Sanath Kumar Ramesh (8/26/2021) • Radio Health Journal: Undiagnosed Mystery Diseases (6/26/2021) • Living with Persistent Uncertainty Without a Rare Disease Diagnosis - with Meghan Halley (6/24/2021) • A Discussion with Dr. Matthew Might (5/17/2021) • The Genome Odyssey - with Dr. Euan Ashley (3/15/2021) • REGISTER NOW! Course for healthcare providers - "Evaluation of Undiagnosed and Rare Conditions" • REGISTER NOW! UDN PEER Book Launch Lecture - "Normal Broken: The Grief Companion for When It’s Time to Heal but You’re Not Sure You Want To" • Dr. Hugo Bellen Named Recipient of the 2024 Gruber Genetics Prize! • REGISTER NOW! Applicant Town Hall on May 14: PCORI’s new funding opp.