Working to improve support, understanding & quality of life for people affected by ME & related conditions.

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#ThereForME Briefing: Delays to establishing NHS care for very severe ME  | March 2026

NEW: Briefing on delays to establishing NHS care for very severe ME

Recent reports and briefings

Briefing on severe & very severe ME

Devastating impact of PIP cuts on people with ME & Long Covid

CrunchME UK Ecosystem Report

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#ThereForME

#ThereForME on Substack

#ThereForME is an initiative founded by Karen and Emma, two carers for partners with very severe ME. #ThereForME works to improve support, understanding and quality of life for people affected by ME and related conditions through evidence, awareness and advocacy. Our vision is a world that's #ThereForME.

#ThereForME convenes a group called the #ThereForME Forum, which includes:
Action for ME
Bury/Bolton ME/CFS & Fibromyalgia Support Group
Chronic Living Therapies
Co-EQ
Covid Support Community
Crunch ME
Forward ME
Guildford ME/CFS Support Group
Hope 4 ME Fibro Northern Ireland
Keyworker Petition UK
Long Covid Advocacy
Long Covid Kids
Long Covid Nurses & Midwives UK
Long Covid Physio
Long Covid Scotland
Long Covid SOS
Long Covid Support
ME Action Scotland
ME Action UK
ME Advocates Ireland
ME Local Network (MELN)
Not Recovered UK
Physios for ME
Supporting Healthcare Heroes UK
The ME Research Collaborative Patient Advisory Group
25% ME Group

Graphic design by Emma Ruby Studio

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We are working on #ThereForME in our spare time so please bear with us if it takes a while to respond! 

Media enquiries

Past work

#ThereForME Delivery Plan for ME/CFS Briefing

#ThereForME recommendations for the Delivery Plan for ME/CFS

#FundThePlan

World ME Day Joint Statement 2025

Together with 27 organisations, we are calling on the Health Select Committee to conduct an inquiry into the neglect of care for people with Long Covid & ME.

Joint letter to the Health Select Committee (28.10.24)

Letter to Wes Streeting from patients and carers (05.08.24)

Letter to Wes Streeting from healthcare workers (17.09.24)

Executive Summary: Building an NHS That's There for Long Covid and ME: Executive Summary

Full Report: Building an NHS That's There for Long Covid and ME

@ThereForME

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