@SMAEurope1

@SMAEurope1 has been a member of Linktree for 1 year and joined in June 2025. The social media accounts linked to from @SMAEurope1 are: • Facebook • Instagram • YouTube • LinkedIn • Email • Bluesky Besides social media accounts, SMAEurope1 has populated their site with: • EUPESMA on Clinical Trial • SMA Europe Annual Report - 2024 • 2nd International Clinical Care Symposium on SMA • SMA Patient Advocate Training | SMAcademy – Coming Soon • OdySMA | Meet Anush • Novartis receives positive CHMP opinion for Itvisma® for spinal muscular atrophy (SMA) • Novartis receives EMA CHMP positive opinion for Itvisma, gene therapy for children two years and older, teens, and adults with spinal muscular atrophy (SMA) • 20 Years of SMA Europe: From firefighting to future-building • A seat, a voice, a vote: reimagining the role of SMA patient advocates in research and care • Two decades of discovery: SMA research, from darkness to hope • Peer Mentoring Programme Application • SMA Europe | Rolling Story of SMA | Patient Advocacy • The SMA Europe Call for Research Proposals • 5th International Scientific Congress on Spinal Muscular Atrophy (SMA) 5th International Scientific Congress on Spinal Muscular Atrophy (SMA) • Novartis receives FDA approval for Itvisma®, the only gene replacement therapy for children two years and older, teens, and adults with spinal muscular atrophy (SMA) | Novartis • SMA awareness campaign aims to connect research, patient needs • Rare Revolution Magazine: Beyond the breakthroughs • SMA Europe | Community Update: FDA decision on the high-dose regimen of nusinersen in the treatment of SMA. • SMA Europe | Community Update: FDA decision on the approval of Scholar Rock's apitegromab • Navigating Patient-Centric Innovation: One Company’s Journey with the SMA Community • SMA Europe provides funding for five new SMA research projects • SMA Europe announces the awardees and projects shortlisted through its call for research no.12 • Spinal cord stimulation: A new perspective for SMA research • 5th International Scientific Congress on SMA – 11th to 14th March 2026 | Budapest, Hungary • NBS Alliance | Home • Accessibility Guidebook, Budapest • "Connecting the Dots" • SMA Europe | SMAcademy • OdySMA | Home • Join SMA Europe youth group on website • Access to spinal muscular atrophy (SMA) treatment in Denmark: a success story of how persistence can win in the end • SMA Europe Annual Report - 2025 • SMA Europe documentary aims to raise awareness on research • SMA Europe | Our Call for Research Projects | SMA Innovation • "One Community. Shared Dreams" documentary • Support us • SMA Europe unites international voices in the new documentary ‘One Community. Shared Dreams’ • SMA Europe | Clinical Trials Finder • EXCLUSIVE INTERVIEW: Empowering Voices: A Conversation with Bianca Ozcan on Spinal Muscular Atrophy - Future Media News • A.24 Risdiplam - spinal muscular atrophy • Clinical Trials Finder: Explore Global SMA Trials Clinical Trials Finder: Explore Global SMA Trials • SMA Europe online tool helps patients find clinical trials