@SMAEurope1
SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations from across Europe. All together. One goal.
@SMAEurope1 Bluesky
@SMAEurope1 Bluesky
@SMAEurope1 Email
@SMAEurope1 Email
@SMAEurope1 Facebook
@SMAEurope1 Facebook
@SMAEurope1 Instagram
@SMAEurope1 Instagram
@SMAEurope1 LinkedIn
@SMAEurope1 LinkedIn
@SMAEurope1 YouTube
@SMAEurope1 YouTube
Support Us
Support us
Support us
Make a difference by donating to SMA Europe, supporting initiatives that empower and improve the lives of individuals affected by Spinal Muscular Atrophy (SMA).
Events
2nd International Clinical Care Symposium on SMA
2nd International Clinical Care Symposium on SMA
International Clinical Care Symposium on SMA Prague 4 and 5 March 2027
5th International Scientific Congress on SMA – 11th to 14th March 2026 | Budapest, Hungary
5th International Scientific Congress on SMA – 11th to 14th March 2026 | Budapest, Hungary
Budapest 2026, a transformative event bringing together scientists and healthcare professionals, empowering the SMA community with education & support.
Our Initiatives
SMA Patient Advocate Training | SMAcademy – Coming Soon
SMA Patient Advocate Training | SMAcademy – Coming Soon
SMA Patient Advocate Training is part of SMAcademy’s capacity-building programme for SMA advocates. This page is currently under construction—new learning resources and updates coming soon.
OdySMA | Meet Anush
OdySMA | Meet Anush
Anush and her journey from crowdfunding to advocating for access for all
Peer Mentoring Programme Application
Peer Mentoring Programme Application
SMA Europe | Rolling Story of SMA | Patient Advocacy
SMA Europe | Rolling Story of SMA | Patient Advocacy
Discover the video about the story of SMA research and learn more about the history of SMA Europe.
SMA Europe | Clinical Trials Finder
SMA Europe | Clinical Trials Finder
SMA Europe’s Clinical Trials Finder helps users quickly locate and join SMA trials with instant updates from clinicaltrials.gov.altrials.gov.
SMA Europe | Our Call for Research Projects | SMA Innovation
SMA Europe | Our Call for Research Projects | SMA Innovation
Join SMA Europe youth group on website
Join SMA Europe youth group on website
OdySMA | Home
OdySMA | Home
SMA Europe | SMAcademy
SMA Europe | SMAcademy
NBS Alliance | Home
NBS Alliance | Home
SMA Awareness Campaigns
"Connecting the Dots"
"Connecting the Dots"
"One Community. Shared Dreams" documentary
"One Community. Shared Dreams" documentary
Watch the "One Community. Shared Dreams" documentary and learn more about our beautiful community and the dreams we share.We want you to know more about us a...
Community Updates
Novartis receives positive CHMP opinion for Itvisma® for spinal muscular atrophy (SMA)
Novartis receives positive CHMP opinion for Itvisma® for spinal muscular atrophy (SMA)
If approved, Itvisma (intrathecal onasemnogene abeparvovec) will be first and only gene replacement therapy for children two years and older, teens and...
Novartis receives EMA CHMP positive opinion for Itvisma, gene therapy for children two years and older, teens, and adults with spinal muscular atrophy (SMA)
Novartis receives EMA CHMP positive opinion for Itvisma, gene therapy for children two years and older, teens, and adults with spinal muscular atrophy (SMA)
Novartis receives EMA CHMP positive opinion for Itvisma, gene therapy for children two years and older, teens, and adults with spinal muscular atrophy (SMA)
SMA Europe | Community Update: FDA decision on the approval of Scholar Rock's apitegromab
SMA Europe | Community Update: FDA decision on the approval of Scholar Rock's apitegromab
Novartis receives FDA approval for Itvisma®, the only gene replacement therapy for children two years and older, teens, and adults with spinal muscular atrophy (SMA) | Novartis
Novartis receives FDA approval for Itvisma®, the only gene replacement therapy for children two years and older, teens, and adults with spinal muscular atrophy (SMA) | Novartis
A.24 Risdiplam - spinal muscular atrophy
A.24 Risdiplam - spinal muscular atrophy
SMA Europe | Community Update: FDA decision on the high-dose regimen of nusinersen in the treatment of SMA.
SMA Europe | Community Update: FDA decision on the high-dose regimen of nusinersen in the treatment of SMA.
Publications & Media Outreach
SMA Europe Annual Report - 2025
SMA Europe Annual Report - 2025
Created with the Heyzine flipbook maker
20 Years of SMA Europe: From firefighting to future-building
20 Years of SMA Europe: From firefighting to future-building
Explore the impact of the 5th International Scientific Congress on Spinal Muscular Atrophy and its journey from humble beginnings.
A seat, a voice, a vote: reimagining the role of SMA patient advocates in research and care
A seat, a voice, a vote: reimagining the role of SMA patient advocates in research and care
Discover how SMAcadamy empowers advocates to elevate their voices and drive positive change in the SMA community.
Two decades of discovery: SMA research, from darkness to hope
Two decades of discovery: SMA research, from darkness to hope
Understand the significance of SMN1 and SMN2 in SMA research and the advancements in therapies enhancing patient outcomes.
The SMA Europe Call for Research Proposals
The SMA Europe Call for Research Proposals
5th International Scientific Congress on Spinal Muscular Atrophy (SMA) 5th International Scientific Congress on Spinal Muscular Atrophy (SMA)
5th International Scientific Congress on Spinal Muscular Atrophy (SMA) 5th International Scientific Congress on Spinal Muscular Atrophy (SMA)
EUPESMA on Clinical Trial
EUPESMA on Clinical Trial
SMA Europe online tool helps patients find clinical trials
SMA Europe online tool helps patients find clinical trials
Clinical Trials Finder: Explore Global SMA Trials Clinical Trials Finder: Explore Global SMA Trials
Clinical Trials Finder: Explore Global SMA Trials Clinical Trials Finder: Explore Global SMA Trials
SMA awareness campaign aims to connect research, patient needs
SMA awareness campaign aims to connect research, patient needs
SMA Europe Annual Report - 2024
SMA Europe Annual Report - 2024
Accessibility Guidebook, Budapest
Accessibility Guidebook, Budapest
Rare Revolution Magazine: Beyond the breakthroughs
Rare Revolution Magazine: Beyond the breakthroughs
Navigating Patient-Centric Innovation: One Company’s Journey with the SMA Community
Navigating Patient-Centric Innovation: One Company’s Journey with the SMA Community
SMA Europe announces the awardees and projects shortlisted through its call for research no.12
SMA Europe announces the awardees and projects shortlisted through its call for research no.12
SMA Europe provides funding for five new SMA research projects
SMA Europe provides funding for five new SMA research projects
Spinal cord stimulation: A new perspective for SMA research
Spinal cord stimulation: A new perspective for SMA research
Access to spinal muscular atrophy (SMA) treatment in Denmark: a success story of how persistence can win in the end
Access to spinal muscular atrophy (SMA) treatment in Denmark: a success story of how persistence can win in the end
SMA Europe documentary aims to raise awareness on research
SMA Europe documentary aims to raise awareness on research
SMA Europe unites international voices in the new documentary ‘One Community. Shared Dreams’
SMA Europe unites international voices in the new documentary ‘One Community. Shared Dreams’
EXCLUSIVE INTERVIEW: Empowering Voices: A Conversation with Bianca Ozcan on Spinal Muscular Atrophy - Future Media News
EXCLUSIVE INTERVIEW: Empowering Voices: A Conversation with Bianca Ozcan on Spinal Muscular Atrophy - Future Media News
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