@MECP2d
Connecting families, raising awareness & supporting MECP2 Duplication Syndrome research
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@MECP2d has been a member of Linktree for 4 years and joined in December 2021. The social media accounts linked to from @MECP2d are: • Facebook • Instagram • YouTube Besides social media accounts, MECP2d has populated their site with: • Canadian ASO Trial Website • Houston conference agenda • Customize & print an awareness card for MECP2 Duplication Syndrome • Full size awareness printable • REMEDS registry - Get Involved! • Citizen Online Natural History Study • Ari from Citizen • 2025 UK Conference Videos • FDA Meeting Summary (Official) - Scroll Down for MECP2 • FDA Meeting Summary - Direct Link • ASO Trial Information - Ionis • Our Latest Guide • Family & Physician Guides • Webinar Channel • Newly diagnosed? Connect Here • Make a Donation • Our Website • FDA Patient Listening Session Interest Form
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