@MECP2d
Connecting families, raising awareness & supporting research on MECP2 Duplication Syndrome
REMEDS registry - Get Involved!
REMEDS registry - Get Involved!
Online Natural History Study - Citizen
Online Natural History Study - Citizen
Turn your medical records into instant answers with Citizen Health's AI Advocate. Built for rare disease patients and caregivers. Trusted by 100+ patient advocacy groups.
2025 UK Conference Videos
2025 UK Conference Videos
FDA Meeting Summary (Official) - Scroll Down for MECP2
FDA Meeting Summary (Official) - Scroll Down for MECP2
Patient Listening Session summaries are published after each session to share a high-level summary of the discussion.
FDA Meeting Summary - Direct Link
FDA Meeting Summary - Direct Link
ASO Trial Information - Ionis
ASO Trial Information - Ionis
Our Latest Guide
Our Latest Guide
Family & Physician Guides
Family & Physician Guides
Webinar Channel
Webinar Channel
Newly diagnosed? Connect Here
Newly diagnosed? Connect Here
Contact Us The MECP2 Duplication Foundation was founded and operated by parents of affected children. Our hope is to provide every newly diagnosed family with emotional support, information…
Make a Donation
Make a Donation
Our Website
Our Website
@MECP2d Facebook
@MECP2d Facebook
@MECP2d Instagram
@MECP2d Instagram
@MECP2d YouTube
@MECP2d YouTube
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