Vulval Cancer UK
Turning my experience to help others
NHS Online Forum | Patient Experience in Vulval Disease and Cancer
NHS Online Forum | Patient Experience in Vulval Disease and Cancer
Bringing together gynaecology and gynaecological oncology professionals: practical approaches to improve recovery, psychosexual support and patient experience.
NHS Online Course | Vulval Disease and Vulval Cancer
NHS Online Course | Vulval Disease and Vulval Cancer
Designed for gynaecology and gynaecological oncology professionals, focusing on recognising high-risk vulval conditions, improving pathways and supporting patients
Vulval Disease – Essentials for Everyone
Vulval Disease – Essentials for Everyone
Open letter: Meta, stop censoring vital gynae health information - The Eve Appeal
Open letter: Meta, stop censoring vital gynae health information - The Eve Appeal
The Eve Appeal have written an open letter to Meta, calling on them to stop censoring vital gynaecological health information.
https://www.medtecheurope.org/medtech-views/patient-stories/advocating-for-womens-vulval-health/
Advocating for women’s vulval health - MedTech Europe
Advocating for women’s vulval health - MedTech Europe
“My earliest memory was age five, when sitting was always itchy and uncomfortable. By the time I was around nine, going to the toilet felt like acid on my skin,” she remembers. “My mum took me to the doctor, who diagnosed it as cystitis. It settled for a while but then the symptoms came back […]
The Lichen Sclerosus Guide: online resource co-produced by patients and doctors
The Lichen Sclerosus Guide: online resource co-produced by patients and doctors
The Lichen Sclerosus Guide combines clinical expertise with lived experience of vulval lichen sclerosus, offering clear, accessible information through written content, videos, animations, and downloadable tools.
Graceful study
Graceful study
Vaginal & Vulva Health: Conditions, Support & Resources
Vaginal & Vulva Health: Conditions, Support & Resources
Guide to vaginal and vulva health conditions including thrush, lichen sclerosus, vulvodynia, and GSM. Find support groups, specialists, and trusted resources.
Qualtrics Survey | Qualtrics Experience Management
Qualtrics Survey | Qualtrics Experience Management
Expression of Interest
Resources | Lichen Sclerosus Guide
Resources | Lichen Sclerosus Guide
Festive WAPping paper
Festive WAPping paper
Supporting vulval health – what a primary care nurse needs to know
Supporting vulval health – what a primary care nurse needs to know
Vulval health and how nurses can support patients to understand normal vulval appearance and identify and prevent serious conditions early
We Won 🥳
We Won 🥳
We have been short listed for a award
We have been short listed for a award
The Unspoken Symptoms - Vulvas, Vaginas and Bladders
Podcast
·
Podcast
The Unspoken Symptoms - Vulvas, Vaginas and Bladders
Podcast Episode · Making Menopause Matter · 6 August 2025 · 57min
BBC 100 Women
BBC 100 Women
What you need to know about the PEARLS trial for Lichen Sclerosis | Dr Rosalind Simpson
What you need to know about the PEARLS trial for Lichen Sclerosis | Dr Rosalind Simpson
Lichen sclerosus is a long-term inflammatory skin condition that can cause discomfort, scarring and changes to the skin if not properly managed.In this inter...
CLARE’S STORY — Lady Garden Foundation
CLARE’S STORY — Lady Garden Foundation
Lichen Sclerosus Guide |
Lichen Sclerosus Guide |
An online resource that provides information on diagnosis, treatment, and support for vulval lichen sclerosus. It also offers guidance on managing symptoms and making everyday life easier.
Share your experiences of cancer treatment and care
Share your experiences of cancer treatment and care
We are testing the draft questions in the cancer experience survey to check that they make sense and are clearly understood.
Woman diagnosed with rare skin condition and vulval cancer at same time after doctors missed signs multiple times
Woman diagnosed with rare skin condition and vulval cancer at same time after doctors missed signs multiple times
Clare Baumhauer was misdiagnosed for decades before being eventually told she had lichen sclerosus and vulval cancer.
Breaking the Silence: Lichen Sclerosus, Vulval Cancer & Advocacy with Clare Baumhauer
Breaking the Silence: Lichen Sclerosus, Vulval Cancer & Advocacy with Clare Baumhauer
News - A new study discovers the barriers to diagnosing and treating vulval lichen sclerosus – a condition affecting 3% of women - University of Nottingham
News - A new study discovers the barriers to diagnosing and treating vulval lichen sclerosus – a condition affecting 3% of women - University of Nottingham
A new study, led by experts at the University of Nottingham, has found the reasons why a vulval (external female genital) skin condition, linked to cancer, is under diagnosed in general practice.
GRACEFUL Study
GRACEFUL Study
LS Guide PDF
LS Guide PDF
BBC Radio 5 Live - Me, My Health and I, Being diagnosed with Lichen Sclerosus
BBC Radio 5 Live - Me, My Health and I, Being diagnosed with Lichen Sclerosus
BBC Radio 5 Live - 5 Live News Specials, That Time of the Month: Lichen Sclerosus
BBC Radio 5 Live - 5 Live News Specials, That Time of the Month: Lichen Sclerosus
Check list of vulval LS symptoms
Check list of vulval LS symptoms
My LS treatment plan
My LS treatment plan
Video: How to check your vulva
Video: How to check your vulva
LS Guide survey | Lichen Sclerosus Information
LS Guide survey | Lichen Sclerosus Information
Video: What is Lichen Sclerosus
Video: What is Lichen Sclerosus
Video:How to apply your topical steroids and emollient
Video:How to apply your topical steroids and emollient
Video: Anatomy of the vulva
Video: Anatomy of the vulva
Lichen Sclerosus Guide
Lichen Sclerosus Guide
PEARLS trail
PEARLS trail
What is vulval cancer? - Wellbeing of Women
What is vulval cancer? - Wellbeing of Women
Stages and grades of vulval cancer
Stages and grades of vulval cancer
Journal of the European Academy of Dermatology and Venereology | Wiley Online Library
Journal of the European Academy of Dermatology and Venereology | Wiley Online Library
Clinical outcomes with utilization of high-potency topical steroids in patients with lichen sclerosus-associated vulvar cancer - PubMed
Clinical outcomes with utilization of high-potency topical steroids in patients with lichen sclerosus-associated vulvar cancer - PubMed
www.sor.org
www.sor.org
Monthly reminder to check your vulva | The Eve Appeal
Monthly reminder to check your vulva | The Eve Appeal
Why Vulval Cancer Awareness Matters: The Importance of Checking Regularly | The Eve Appeal
Why Vulval Cancer Awareness Matters: The Importance of Checking Regularly | The Eve Appeal
Research News: Third Rare Gynae Cancer Fund Project Launched to Predict the Risk of Vulval Cancer in Women with Lichen Sclerosus | The Eve Appeal
Research News: Third Rare Gynae Cancer Fund Project Launched to Predict the Risk of Vulval Cancer in Women with Lichen Sclerosus | The Eve Appeal
Loss, shame and secrecy in women’s experiences of a vulval skin condition: A qualitative study - Sophie Rees, Susanne Arnold, 2024
Loss, shame and secrecy in women’s experiences of a vulval skin condition: A qualitative study - Sophie Rees, Susanne Arnold, 2024
TH Stories | Living with Lichen Sclerosus and surviving Vulva Cancer | Clare Baumhauer
TH Stories | Living with Lichen Sclerosus and surviving Vulva Cancer | Clare Baumhauer
Expert Clinic on Lichen Sclerosus
Expert Clinic on Lichen Sclerosus
Why is Lichen Sclerosus still so misunderstood? | Dr Rosalind Simpson
Why is Lichen Sclerosus still so misunderstood? | Dr Rosalind Simpson
MORTAL AND STRONG
MORTAL AND STRONG
Lichen Sclerosus & Vulval cancer UK Awareness
Lichen Sclerosus & Vulval cancer UK Awareness
BSSVD: Vulval Disease, Essentials for Everyone
BSSVD: Vulval Disease, Essentials for Everyone
BSSVD Virtual Annual Scientific Meeting May 2024
BSSVD Virtual Annual Scientific Meeting May 2024
Sign the Petition
Sign the Petition
The Hysteria Project • Clare
The Hysteria Project • Clare
Vulval Self-Examination: Why, How and When?
Vulval Self-Examination: Why, How and When?
www.linkedin.com
www.linkedin.com
warwick.co1.qualtrics.com
warwick.co1.qualtrics.com
Living with lichen sclerosus
Living with lichen sclerosus
Vulval lichen sclerosus in primary care: thinking beyond thrush and genitourinary symptoms of the menopause
Vulval lichen sclerosus in primary care: thinking beyond thrush and genitourinary symptoms of the menopause
Podcast ~ Mixcloud
Podcast ~ Mixcloud
Developing a kinder way to diagnose and treat vulval cancer | The Eve Appeal
Developing a kinder way to diagnose and treat vulval cancer | The Eve Appeal
I had no idea what my vulva was until I was 43 & received an agonising diagnosis
I had no idea what my vulva was until I was 43 & received an agonising diagnosis
We were diagnosed with gynaecological cancers people need to start talking about
We were diagnosed with gynaecological cancers people need to start talking about
Lichen sclerosus (in females) – British Skin Foundation
Lichen sclerosus (in females) – British Skin Foundation
My story
My story
Dr Lisa Kirby - LS and urinary incontinence research
Dr Lisa Kirby - LS and urinary incontinence research
JAMA Dermatology Patient Page
JAMA Dermatology Patient Page
Online learning course for GP’s
Online learning course for GP’s
Pleasure and intimacy: A guide for people living with cancer
Pleasure and intimacy: A guide for people living with cancer
The Eve Appeal vulval cancer research new project
The Eve Appeal vulval cancer research new project
The Vulva Dairies ~Dr Amanda Selk
The Vulva Dairies ~Dr Amanda Selk
Find cancer support near you
Find cancer support near you
BSSVD vulval self examination leaflet
BSSVD vulval self examination leaflet
Understanding cancer of the vulva ~ Macmillan booklet
Understanding cancer of the vulva ~ Macmillan booklet
The Cancer app
The Cancer app
My blog ~Life after my diagnosis
My blog ~Life after my diagnosis
My blog ~ my new normal
My blog ~ my new normal
Beyond the basics
Beyond the basics
Anal cancer survivor Marcia Crosssays “Check your vulva”
Anal cancer survivor Marcia Crosssays “Check your vulva”
Tiktok
Tiktok
Her Life Her Health ~ Vulval cancer
Her Life Her Health ~ Vulval cancer
Australian study ~ Gayle Fischer, a dermatologist and Jennifer Bradford, a gynaecologist, have found a way to keep an intimate female cancer at bay
Australian study ~ Gayle Fischer, a dermatologist and Jennifer Bradford, a gynaecologist, have found a way to keep an intimate female cancer at bay
The Cancer Hive ~ Issue 4
The Cancer Hive ~ Issue 4
Her life her health magazine
Her life her health magazine
Twitter
Twitter
YouTube
YouTube
Facebook awareness page
Facebook awareness page
Vulval Cancer UK Instagram
Vulval Cancer UK Instagram
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