Vulval Cancer UK

Vulval Cancer UK has been a member of Linktree for 5 years and joined in October 2020. The social media accounts linked to from Vulval Cancer UK are: • Instagram Besides social media accounts, Clareb43 has populated their site with: • BSSVD: Vulval Disease, Essentials for Everyone 2026 • NHS Online Forum | Patient Experience in Vulval Disease and Cancer • Advocating for women’s vulval health - MedTech Europe • Open letter: Meta, stop censoring vital gynae health information - The Eve Appeal • The Lichen Sclerosus Guide: online resource co-produced by patients and doctors • Graceful study • Vaginal & Vulva Health: Conditions, Support & Resources • Qualtrics Survey | Qualtrics Experience Management • Resources | Lichen Sclerosus Guide • Festive WAPping paper • Supporting vulval health – what a primary care nurse needs to know • We Won 🥳 • We have been short listed for a award • The Unspoken Symptoms - Vulvas, Vaginas and Bladders • BBC 100 Women • What you need to know about the PEARLS trial for Lichen Sclerosis | Dr Rosalind Simpson • CLARE’S STORY — Lady Garden Foundation • Lichen Sclerosus Guide | • Share your experiences of cancer treatment and care • Woman diagnosed with rare skin condition and vulval cancer at same time after doctors missed signs multiple times • Breaking the Silence: Lichen Sclerosus, Vulval Cancer & Advocacy with Clare Baumhauer • News - A new study discovers the barriers to diagnosing and treating vulval lichen sclerosus – a condition affecting 3% of women - University of Nottingham • LS Guide PDF • BBC Radio 5 Live - Me, My Health and I, Being diagnosed with Lichen Sclerosus • BBC Radio 5 Live - 5 Live News Specials, That Time of the Month: Lichen Sclerosus • Check list of vulval LS symptoms • My LS treatment plan • Video: How to check your vulva • LS Guide survey | Lichen Sclerosus Information • Video: What is Lichen Sclerosus • Video:How to apply your topical steroids and emollient • Video: Anatomy of the vulva • Lichen Sclerosus Guide • PEARLS trail • What is vulval cancer? - Wellbeing of Women • Stages and grades of vulval cancer • Journal of the European Academy of Dermatology and Venereology | Wiley Online Library • Clinical outcomes with utilization of high-potency topical steroids in patients with lichen sclerosus-associated vulvar cancer - PubMed • www.sor.org • Monthly reminder to check your vulva | The Eve Appeal • Why Vulval Cancer Awareness Matters: The Importance of Checking Regularly | The Eve Appeal • Research News: Third Rare Gynae Cancer Fund Project Launched to Predict the Risk of Vulval Cancer in Women with Lichen Sclerosus | The Eve Appeal • Loss, shame and secrecy in women’s experiences of a vulval skin condition: A qualitative study - Sophie Rees, Susanne Arnold, 2024 • TH Stories | Living with Lichen Sclerosus and surviving Vulva Cancer | Clare Baumhauer • Expert Clinic on Lichen Sclerosus • Why is Lichen Sclerosus still so misunderstood? | Dr Rosalind Simpson • MORTAL AND STRONG • Lichen Sclerosus & Vulval cancer UK Awareness • BSSVD: Vulval Disease, Essentials for Everyone • BSSVD Virtual Annual Scientific Meeting May 2024 • Sign the Petition • The Hysteria Project • Clare • Vulval Self-Examination: Why, How and When? • www.linkedin.com • warwick.co1.qualtrics.com • Living with lichen sclerosus • Vulval lichen sclerosus in primary care: thinking beyond thrush and genitourinary symptoms of the menopause • Podcast ~ Mixcloud • Developing a kinder way to diagnose and treat vulval cancer | The Eve Appeal • I had no idea what my vulva was until I was 43 & received an agonising diagnosis • We were diagnosed with gynaecological cancers people need to start talking about • Lichen sclerosus (in females) – British Skin Foundation • My story • Dr Lisa Kirby - LS and urinary incontinence research • JAMA Dermatology Patient Page • Online learning course for GP’s • Pleasure and intimacy: A guide for people living with cancer • The Eve Appeal vulval cancer research new project • The Vulva Dairies ~Dr Amanda Selk • Find cancer support near you • BSSVD vulval self examination leaflet • Understanding cancer of the vulva ~ Macmillan booklet • The Cancer app • My blog ~Life after my diagnosis • My blog ~ my new normal • Beyond the basics • Anal cancer survivor Marcia Crosssays “Check your vulva” • Tiktok • Her Life Her Health ~ Vulval cancer • Australian study ~ Gayle Fischer, a dermatologist and Jennifer Bradford, a gynaecologist, have found a way to keep an intimate female cancer at bay • The Cancer Hive ~ Issue 4 • Her life her health magazine • Twitter • YouTube • Facebook awareness page