Soft Bones, Inc.

Soft Bones, Inc. has been a member of Linktree for 4 years and joined in June 2022. The social media accounts linked to from Soft Bones, Inc. are: • Facebook • Instagram • YouTube • Pinterest • X Besides social media accounts, softboneshpp has populated their site with: • Nutrition Guide • 18th Golf Classic Tournament • softbones.org • Mental Health Guide for HPP Patients • Hypophosphatasia and Your Kidneys—What to Expect • Food for Thought: Dietary Guidelines for Patients with Hypophosphatasia (HPP) – Soft Bones • HPP Connect • Midwest 2 Region Zoom Meeting - May 21, 2026 at 7 PM Eastern • Mental Health Resources • Take Charge of Your Health • Soft Bones | Spreadshop • Patient of the Month- Iris • Episode 3: Greg Schiano - Cannon Unbroken | Podcast on Spotify • Support Our Beach Towel Fundraiser • 2026 ASBMR Annual Meeting – October 9-12, 2026 • Midwest 2 In-Person Region Meeting - October 3, 2026 • Pampered Chef Fundraiser August 1-31! • Midwest 1 In-Person Region Meeting - September 26, 2026 • Denim and Diamonds Amazon Wishlist • Northeast Region Luncheon Meeting - October 10, 2026 • Printable HPP Resources – Soft Bones • HPP One Pager – Soft Bones • 2026 Soft Bones NPM - Patient-Powered Science: From Your Cells to Better Care (Sun Peck, Ph.D.) • Bare Bones Summer Newsletter 2026 • Profile Frame - World HPP Day 2026 – Soft Bones • HPP AND ME October 29th Meeting Registration - Zoom Chat • 2025 National Patient Meeting - Hypophosphatasia Pain Management (Alan Hoang, MD) • World HPP Day 2026 - October 30th! • HPP AND ME - UK Live Zoom Chat - October 15th at 7PM GMT • Pampered Chef Fundraiser - Now Through December 31st • Dental Health Resources – Soft Bones • Efzimfotase alfa granted Priority Review in the US as treatment for patients with hypophosphatasia aged 2 years and older • HPP Empowered Patient Events | Learn more about Hypophosphatasia • Join Teen Advisory Council (TAC) – Soft Bones • 2026 Soft Bones National Patient Meeting - HPP Overview (J. Carl Pallais, MD, MPH) • Meet your newest Central Region Lead, Nisha P! • Soft Bones Store – Soft Bones • Southeast Region Meeting in MS - October 17, 2026 • 2026 Program List • Midwest 1 Region Luncheon Meeting - October 17, 2026 • 2022 National Patient Meeting: Craniosynostosis and Chiari Malformation • Amy Weinberger, Advisor at Green Earth Financial Professionals and Osaic, shares how and why she became involved with Soft Bones, Inc. She also is a finalist in the 20th Annual Invest in Others… | Chris Latham • Transitioning to College with Hypophosphatasia – Soft Bones • December's Patient of the Month - Frey H. • HundredX • 2026 Soft Bones National Patient Meeting - Dental Impacts of HPP (Timothy Wright, DDS, MS) • Southwest In-Person Region Meeting - October 17, 2026 • Patient of the Month – Nisha P. – Soft Bones • Join Us for a Central Region Meeting on November 16, 2025 • A Milestone Year: Invest in Others Announces Finalists for 20th Annual Awards Celebrating Charitable Impact - Invest in Others • HPP AND ME - November 13, 2025 • Soft Bones Third International Scientific Meeting - November 6-8, 2026 • Episode 1: Bill Raftery - Cannon Unbroken • 2026 National Patient Meeting - On-Demand Sessions Available! • World HPP Day 2025 – Soft Bones • Caregiver Corner – Soft Bones • Soft Bones – Hypophosphatasia (HPP) Main Website • Soft Bones SpreadShop • Join HPP AND ME! • Download the myHPP App • Caregiver Corner • 2022 NPM: Craniosynostosis and Chiari Malformation • Bonafide HPP - Podcast • Hypophosphatasia and the Skull: Craniosynostosis and Head Growth Issues - Ruth Bristol, MD • Cannon Unbroken - Podcast • Region Lead Program • Shop for a Cause! • Facebook and Instagram Fundraiser – Soft Bones • Walmart Spark Good Program • Make a Donation • Get Involved • Calendar of Events • Interactive Program Sheet • Sign Up for Our Tooth Fairy Pillow Program • Youth and Teen Programs • Sign up for Hippo Squad! • Know Your Childs School Rights Guide • Traveling with HPP • Managing Anxiety • Emergency Supply Checklist • Emergency Scenario Preparedness Guide • Episode 13: Why YOUR Voice Matters • STRENSIQ® Perspective - June 10, 2025 at 7:00 PM Eastern • Join Us for a Northwest Region Meeting - June 7, 2025 at 11 AM Pacific Time • 3rd Annual Denim and Diamonds Fundraiser May 17, 2025– Registration Now Open! • Disability Benefits • Dental Health • Episode 1- Questions About HPP and Dental Health • Patient of the Month- Amedie P. • Join Us for a Midwest 1 Region In-Person Meeting - April 27, 2025 • Southeast Region Zoom Meeting - April 26, 2025 • Join Us for Our HPP AND ME Meeting on April 24, 2025 at 1 PM Eastern • Join Us for a Southwest Region Zoom Meeting/Chat on April 17, 2025 at • HPP AND ME Tutorial – February 11, 2025 • 2024 Research Grant Awarded to Valeria Guglielmi, Ph.D. • Join Us for an HPP AND ME Zoom Chat on January 23, 2025 At 1:00 PM Eastern • Caregiver Corner- Darrell K. • HPP AND ME Zoom Chat on December 17th, 2024 at 8 PM Eastern • 'Tis the Season of Giving • Amazon Music: Episode 10 - A Conversation with Guest Host Cindy Reasor and Sue Krug • Spotify: Episode 10 - A Conversation with Guest Host Cindy Reasor and Sue Krug • Poppin' Popcorn Fundraiser – Now Until December 10th, 2024 • Caregiver Corner- Sharon T. • HPP Empowered In-Person Meeting in Columbus, Ohio on September 28, 2024 at 1:00 PM EST • HPP AND ME Zoom Meeting - September 24, 2024 at 3:00 PM Eastern • Join Us for the Soft Bones 2024 Golf Classic September 23, 2024 - Registration Is Open! • HPP Empowered Virtual Webinar - September 19, 2024 at 7:00 PM EST • 2024 National Patient Meeting Sessions On-Demand • Appy Hour August 15th, 2024 at 8 PM • Spotify - Episode 8: Be Involved: A Conversation with Patient, Caregiver, and Advocate, Janni K. • Northwest Region Zoom Meeting - July 25, 2024 • HPP AND ME Zoom Chat - July 25th at 3 PM Eastern • Join Us for a Central Region Meeting on Sunday, July 21st in Papillion, Nebraska! • Support Soft Bones Through Surveys from June 3 - July 2! • Global Genes Mental Health Resource • HPP AND ME – Soft Bones • Fall/Winter Newsletter