RAREis

RAREis has been a member of Linktree for 6 years and joined in February 2020. The social media accounts linked to from RAREis are: Facebook, Instagram. Besides social media accounts, rareis___ has populated their site with Apply for the RAREis Community Grant, Supporting the People Behind Rare Disease Advocacy, What's the Real Story on Gout?, #RAREis Scholarship Fund - Scholarship America, Turning Up the Volume on IgG4-RD Awareness and Diagnosis | Amgen, Rare disease patient becomes researcher to help others, everylifefoundation.org, Rare Disease Video - Genetic Testing for Rare and Undiagnosed Diseases - National Organization for Rare Disorders, 5 Ways to Support Loved Ones Affected by Rare Disease During the Holidays - Global Genes, Meet the 2025 Global Advocate Grant Recipients, Navigating a Forever Home with a Rare Disease: Daniel’s Story, rarediseases.org, Glossary of Medical Terms: Decoding the Language of Rare and Undiagnosed Conditions, IgG4-RD Support and Education | IgG4ward Foundation", Newborn Screening Resources, Hispanic Society Rare Diseases SHER | Sociedad Hispana de Enfermedades Raras en USA |, Visit the #RAREis Blog, Pursuing her dreams: Plainview Valedictorian receives #RAREis scholarship - The Ardmoreite, Remember The Girls empowers women affected by X-linked conditions | Immune Deficiency Foundation, #RAREis Transitions | Education and Employment, Rare Across America, Transitions, 2025 #RAREis Global Advocate Grant, 2025 #RAREis Global Advocate Grant, Genetic Testing, RAREisCommunity.com, Learn About the Rare Disease Community: Meet Dr. Dr. Harsha Rajasimha, #RAREis Beyond the Chart, Because We’re More than Our Diagnosis, Top Tips for Newly Diagnosed with a RARE Disease Top Tips for Newly Diagnosed with a RARE Disease, TSC Alliance, To the mom raising a child with a rare disease—I see you, Mental Health Support from Global Genes, We All Want to Matter; We Want to be Seen, Every Life Foundation Scholarship, Top Five Mental Health Resources for the Rare Disease Community, RDDC Home Page, NMOSD Won't Stop Me: GET TO KNOW MY NMO, Pursue Your Dreams through the #RAREis Scholarship Fund, RARE Advocacy Exchange, #RAREis One, Meeting Myself in The Middle: My MG Story, RAREisCommunity.com, Explore the #RAREis Interactive Map, Share Your #RAREis, Adoption Grants | Gift of Adoption Fund, Top Five Mental Health Resources for the Rare Disease Community, Newborn Screening Saves Lives - The EveryLife Foundation, Support from The Akari Foundation, Onno's #RAREis One Story - Two Disabled Dudes Podcast, Empowering Change and Elevating Voices: 2024 #RAREis Global Advocate Grant, Rare Disease Education - NORD® RareEDU Program, #RAREis One Stories, Mental Health in Rare Disease: Taking Care of Your Mind Is Taking Care of Your Body, Notre Dame Students Rallying for Rare Diseases, Learn with the Open Academy - EURORDIS Open Academy, #RAREis One: Elly’s Story, Summer Trips: Traveling with a Chronic Illness, Rob's #RAREis One Story - Two Disabled Dudes Podcast, Join the Community - Chronic Disease Awareness Day, RAREly Told Stories Workshop, Register for Rare Across America!, #RAREis One: Gerard's Story, #RAREis Transitions, #RAREis One: Sally’s Story, June is PRIDE Month: Find resources for LGBTQIA+ in rare disease community, Finding Support: Emotional and Mental Health Resources, Top Five Mental Health Resources for the Rare Disease Community, NORD State Report Card, Immune Deficiency Foundation, Download the New #RAREis White Paper!, 2024 #RAREis Global Advocate Grant, What Is It Like to Live With a Rare Disease?, #RAREis Scholarship Fund, #RAREis One Webinar: WATCH NOW, The Atlantic: What is it like to live with a RARE disease?, #RAREis One, Foundation for Sarcoidosis Research, Understanding ANCA-Associated Vasculitis (AAV), Share Your Rare, Join the RAREis One Webinar!, Rare Disease Day 2024, Caring for Rare Disease Caregivers, The E.WE Foundation, Organization for Rare Diseases - IndoUSRare, Register for #RAREis One Webinar, The Akari Foundation, #RAREis Your Voice, Doug the Pug and his Humans Sing a Story for Rare Disease, RAREly Told Stories Workshop, Working in Rare: A Mission Driven from Experience, Top Five Mental Health Resources for the Rare Disease Community, Black Pearl Awards - Photo Contest - EURORDIS, Share Your #RAREis, #RAREis Representation, International Day of People with Disabilities, Navigating Disability and Rare Medical Conditions as an Intercountry Adoptee, Travelers with Chronic Illnesses | Travelers' Health | CDC, A Woman With Many Roles, Adoption Grants | Gift of Adoption Fund – Where we finish, a family starts., #RAREis Beyond the Chart, Because We’re More than Our Diagnosis, Keeping Patient Needs at the Heart of Medicine Development, How to Prevent Flu, RAREis Playlist, Genetic Testing, 5 Tips for Practicing Self-Care With a Rare Disease, The Akari Foundation, Our Odyssey Virtual Meet-Ups, Newborn Screening Resources, Podcast: Rare on Air - EURORDIS, Life As a Mom, Caregiver, Advocate and X-Linked Carrier, Serendipitous Dive into Advocacy, #RAREis Transitions | Education and Employment, RARE ARTIST 2023, The 2023 #RAREis Global Advocate Grant Recipients, Making a Meaningful Difference, Our Journey with Charcot-Marie-Tooth (CMT), Chronic Disease Awareness Day, Share Your #RAREis, Global Advocate Grant Awardee Spotlight: AGO2 Association, Global Advocate Grant Awardee Spotlight: Malan Syndrome Foundation, Navigating Disability and Rare Medical Conditions as an Intercountry Adoptee, RAREis Adoption Fund: A Gift of Adoption, Global Advocate Grant Awardee Spotlight: Chordoma Foundation, Everyday Life Foundation: Rare Diversity Hub, Top Five Mental Health Resources for the Rare Disease Community, Global Advocate Grant Awardee Spotlight: LGS Foundation, Global Advocate Grant Awardee Spotlight: PWSA, One Rare Experience, EURORDIS Ukraine Response, #RAREis Playlist & Hope is Here, Resources for Mental Health - Give an Hour, Victoria's Story | RAREis Playlist, Global Genes Caregiver Toolkit, 10 Ways Anxiety 'Shows Up' With Rare Disease, Two Sisters Fighting Two Combined Rare Diseases, 2023 NDF GNEM Speaker Series with Tasia Valenza, Immune Deficiency Foundation, Genetic Testing for Rare and Undiagnosed Diseases (Spanish), Genetic Testing for Rare and Undiagnosed Diseases (English), Rare Disease Diversity Survey, #RAREis Blog: Meghan Aims for Ultimate Target: A Career in Paying It Forward, Meghan's Story, Share Your #RAREis, #RAREis Global Advocate Grant, Celebrating Rare Disease Day 2023, Watch Now! #RAREis Global Advocate Grant Webinar, #RAREis Global Advocate Grant Webinar: Addressing Issues in the Global Rare Disease Community, #RAREis Resources, #ShareYourRare, Thyroid Eyes, RAREis Playlist, RAREis Representation, Genetic Testing.