@raredisorderscord

raredisorderscord has been a member of Linktree for 2 years and joined in January 2024. The social media accounts linked to from raredisorderscord are: • Facebook • Instagram • YouTube • LinkedIn • Email • X Besides social media accounts, raredisorderscord has populated their site with: • July 14 Webinar 2 Registration: The Cost of Waiting: The Socioeconomic Impact of Rare Disease in Canada • We're inviting patients, caregivers, family members, and advocates to share one key moment from their experience. • Rare Disease Day 2026 Conference Registration • Canadian Survey on the Impact of Disease & Toolkit includes resources and draft posts to help you promote participation within your network • Webinar Registration: From Genomic Testing Readiness to Rare Disease System Readiness • Call for Nominations for CORD Board of Directors 2026-2029 • CORD Fall Rare Disease Conference 2025: Draft Agenda, Hotel Rate and Scholarships • Toolkit for Supporting the Design, Conduct, and Reporting of Long-Term Follow-Up Studies for Gene Therapies • RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS | Canadian Organization for Rare Disorders • Join us Feb. 29th for our march on Parliament Hill! Full details • #LightUpForRare - Rare Disease Day 2024 • CORD submission to PMPRB Scoping Paper consultation on new Guidelines • Canadian Organization for Rare Disorders Website