@gorlinsyndrome
The GSA supports, educates, & seeks the best treatments & a cure for GS.
@gorlinsyndrome Email
@gorlinsyndrome Email
@gorlinsyndrome Facebook
@gorlinsyndrome Facebook
@gorlinsyndrome Instagram
@gorlinsyndrome Instagram
@gorlinsyndrome LinkedIn
@gorlinsyndrome LinkedIn
@gorlinsyndrome YouTube
@gorlinsyndrome YouTube
We're Hiring! Development and Communications Manager
We're Hiring! Development and Communications Manager
Access essential financial resources and patient support programs for the rare disease community through the Gorlin Syndrome Alliance.
Gorlin Syndrome Alliance Announces 2026 Research Grant Recipient
Gorlin Syndrome Alliance Announces 2026 Research Grant Recipient
Gorlin Syndrome Alliance announces the 2026 research grant awarded to Stanford researchers for a project aimed at improving photodynamic therapy for basal cell carcinomas.
GSA on the PeDRA Pearls Podcast
GSA on the PeDRA Pearls Podcast
Explore the genetic variability in Gorlin syndrome and its implications for personalized treatment in a recent PeDRA podcast with Gorlin Syndrome Alliance's Meredith Weiss.
Golf for the GSA 2026
Golf for the GSA 2026
Join the 4th Annual Golf for the GSA Tournament on October 12, 2026, in Portsmouth, NH, and support the Gorlin Syndrome Alliance in their mission for better treatments and a cure.
GSA Natural History Study
GSA Natural History Study
Volunteer for the 2027 Conference Planning Committee!
Volunteer for the 2027 Conference Planning Committee!
Pits Perfect Campaign- Submit Your Photos Here!
Pits Perfect Campaign- Submit Your Photos Here!
Donate here!
Donate here!
By State Mental Health Resources
By State Mental Health Resources
NORD’s State Resource Center contains information on organizations that offer free or low-cost programs and services for individuals impacted by rare disease.
Register here for Community Support Group Meetings!
Register here for Community Support Group Meetings!
Clinical Trial Informational Webinar
Clinical Trial Informational Webinar
UPF Clothing Info- Rayward Apparel
UPF Clothing Info- Rayward Apparel
2nd Annual Golf for the GSA Registration
2nd Annual Golf for the GSA Registration
GSA YouTube Page
GSA YouTube Page
Window Tinting Information
Window Tinting Information
Efficacy and Safety of Patidegib Gel 2% for Preventing Basal Cell Carcinomas on the Face of Adults With Gorlin Syndrome
Efficacy and Safety of Patidegib Gel 2% for Preventing Basal Cell Carcinomas on the Face of Adults With Gorlin Syndrome
How to develop a school coping plan for skin disease
How to develop a school coping plan for skin disease
Voice of Patient Report - Gorlin Syndrome Alliance
Voice of Patient Report - Gorlin Syndrome Alliance
The Gorlin Syndrome Alliance's EL-PFDD meeting gathered patient voices to highlight the disease's impact and inform FDA evaluation of future therapies.
Gorlin Syndrome Alliance Private FB Group
Gorlin Syndrome Alliance Private FB Group
National Conference Presentations
National Conference Presentations
GSA Home Page
GSA Home Page
Discover the Gorlin Syndrome Alliance's mission to support patients, advance research, and improve treatment options for those affected by Gorlin syndrome.
Medical Articles
Medical Articles
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