RUNX1 Research Program

RUNX1 Research Program has been a member of Linktree for 5 years and joined in March 2021. The social media accounts linked to from RUNX1 Research Program are: • Facebook • Instagram • LinkedIn • Email • Payment • X Besides social media accounts, RUNX1Research has populated their site with: • Across Healthcare Matrix Partners with C-Path to Expand Rare Disease Data Platform Through Direct Integration • View RRP's comment to the OMB • Template letter • Submit a comment • Join the RUNX1 Patient Data Hub • RUNX1 Pulse Blog - updates from Dr. Young at the NIH • RUNX1 Insight Drops: Road to RUNX1-FPD Diagnosis • Tissue Bank for RUNX1-FPD Patients at University of Pennsylvania • Stem Cell Harvesting & Banking Clinical Trial for RUNX1-FPD Patients • August 2026 Coffee Chat Registration • June 2026 Newsletter • RUNX1 Insight Drops - Numbness & Tingling • Clinical Trial Opportunties • Blood Marrow Biopsy/Aspiration Resource • RUNX1 Patient & Family Resources • RUNX1 Patient Tissue Bank • RUNX1 Patient Data Hub • 2024 RRP Impact Report • RRP's Cancer Interception/Prevention Research Roadmap • Stem Cell Harvesting and Banking Clinical Trial Overview • RUNX1-FPD Patient Video Library • Sirolimus Clinical Trial for RUNX1-FPD Patients • NIH RUNX1-FPD Clinical Research Study • New NIH Pediatric Study • RUNX1 and Inherited Hematologic Malignancies Consortium • RUNX1 Patient Stories • RRP RUNX1-FPD Patient & Family Resources • Newsletter • Publication about Preemptive Stem Cell Transplants in RUNX1-FPD • Imatinib Clinical Trial Overview • NIH Clinical Research Study • Sirolimus Pilot Study Overview • RUNX1 Pulse Blog • Homepage • RUNX1 X-Change June 24 • What is RUNX1 Familial Platelet Disorder (RUNX1-FPD)? • Low-Dose Sirolimus Pilot Study Update • Donate to RRP • Stem Cell Harvesting and Banking Webinar - Oct. 31st • RRP Shop • Reducing Cancer Risk Through Nutrition Seminar • RRP Events Calendar • The Cohen Family • Inherited Thrombocytopenia (ITP): What Is It, Whom To Test and How To Test? • Virginia & Gabriel • Melissa and Ethan • Halie's Story • The Berg Family • The Anderson Family • The Babich Family • The Manch Family • The Cryan Family