RUNX1 Research Program
One Goal. Prevent Blood Cancer.
RUNX1 Research Program Facebook
RUNX1 Research Program Facebook
RUNX1 Research Program Instagram
RUNX1 Research Program Instagram
RUNX1 Research Program LinkedIn
RUNX1 Research Program LinkedIn
RUNX1 Research Program Email
RUNX1 Research Program Email
RUNX1 Research Program Payment
RUNX1 Research Program Payment
RUNX1 Research Program X
RUNX1 Research Program X
Vote for Franklin to help us win $10,000 to support RUNX1-FPD research!!
Vote for Franklin to help us win $10,000 to support RUNX1-FPD research!!
America’s Favorite Photos: Discover your new favorite photos!
Virginia Monk's family story
Virginia Monk's family story
Virginia Monk shares her family’s story with RUNX1 Familial Platelet Disorder (RUNX1-FPD), her son Gabriel’s leukemia, and living with hope after her MDS diagnosis.
RUNX1-FPD Patient Video Library
RUNX1-FPD Patient Video Library
Community Spotlight
RUNX1 Pulse Blog - How Inherited Gene Variants Shape Blood Cancer Risk
RUNX1 Pulse Blog - How Inherited Gene Variants Shape Blood Cancer Risk
Learn how inherited gene variants, such as RUNX1-FPD, influence blood cancer risk and clonal hematopoiesis, with insights for patients and families.
May 2026 Coffee Chat Registration
May 2026 Coffee Chat Registration
This event is focused on welcoming and connecting to our newest community members. So if you found the RUNX1 Research Program (RRP) in the last year, please join to introduce yourself to the group and share your story (if you are comfortable doing so). For those more familiar with RRP, please come and connect with our new members and share your personal experience as a RUNX1-FPD patient and/or caregiver. All you will need is a computer, tablet or phone with a camera and microphone, and an internet connection (coffee is optional!). If you register, Amanda Eggen will email you with more details ahead of the event. If you have any questions, email Amanda at aeggen@runx1-fpd.org.
Publication about Preemptive Stem Cell Transplants in RUNX1-FPD
Publication about Preemptive Stem Cell Transplants in RUNX1-FPD
New NIH Pediatric Study
New NIH Pediatric Study
Patient Research Opportunities
Tissue Bank for RUNX1-FPD Patients at University of Pennsylvania
Tissue Bank for RUNX1-FPD Patients at University of Pennsylvania
Open research opportunities for RUNX1-FPD patients, including clinical trials, tissue bank donation, and an anonymous patient database.
Stem Cell Harvesting & Banking Clinical Trial for RUNX1-FPD Patients
Stem Cell Harvesting & Banking Clinical Trial for RUNX1-FPD Patients
Open research opportunities for RUNX1-FPD patients, including clinical trials, tissue bank donation, and an anonymous patient database.
NIH RUNX1-FPD Clinical Research Study
NIH RUNX1-FPD Clinical Research Study
Open research opportunities for RUNX1-FPD patients, including clinical trials, tissue bank donation, and an anonymous patient database.
Sirolimus Clinical Trial for RUNX1-FPD Patients
Sirolimus Clinical Trial for RUNX1-FPD Patients
Featured Links
May 2026 Newsletter
May 2026 Newsletter
The latest news and updated for the RUNX1 Research Program community around RUNX1-FPD research, events, clinical trials, community initiatives, and more!
RUNX1 Insight Drops - Spinal Pain
RUNX1 Insight Drops - Spinal Pain
Clinical Trial Opportunties
Clinical Trial Opportunties
RUNX1 and Inherited Hematologic Malignancies Consortium
RUNX1 and Inherited Hematologic Malignancies Consortium
Blood Marrow Biopsy/Aspiration Resource
Blood Marrow Biopsy/Aspiration Resource
RUNX1 Patient Stories
RUNX1 Patient Stories
RUNX1 Patient & Family Resources
RUNX1 Patient & Family Resources
2024 RRP Impact Report
2024 RRP Impact Report
Online Event Registration
RRP Events Calendar
RRP Events Calendar
RRP Newsletter & Blog
Newsletter
Newsletter
The latest news and updated for the RUNX1 Research Program community around RUNX1-FPD research, events, clinical trials, community initiatives, and more!
RUNX1 Pulse Blog
RUNX1 Pulse Blog
RUNX1 Pulse is your go-to resource for insights, education, and updates on RUNX1-FPD, breaking down research, key biology concepts, and the latest advancements.
Patient Research Opportunities
RUNX1 Patient Data Hub
RUNX1 Patient Data Hub
The RUNX1 Patient Data Hub (PDH) is a secure, anonymized platform where RUNX1-FPD patients can share health information to help improve care, shape research, and inform advocacy. Hosted on Matrix, this system supports global participation while protecting privacy.
RUNX1 Patient Tissue Bank
RUNX1 Patient Tissue Bank
Stem Cell Harvesting and Banking Clinical Trial Overview
Stem Cell Harvesting and Banking Clinical Trial Overview
Sirolimus Pilot Study Overview
Sirolimus Pilot Study Overview
Imatinib Clinical Trial Overview
Imatinib Clinical Trial Overview
NIH Clinical Research Study
NIH Clinical Research Study
RRP Website
Homepage
Homepage
The only foundation in the world dedicated to RUNX1-FPD. We support patients with this rare inherited disorder and co-fund RUNX1 research.
RRP RUNX1-FPD Patient & Family Resources
RRP RUNX1-FPD Patient & Family Resources
Discover comprehensive resources, support tools, and vital information tailored for patients with RUNX1 familial platelet disorder (RUNX1-FPD) and their families. From diagnosis to daily management, our dedicated page offers guidance, community connections, and the latest research insights to suppor
What is RUNX1 Familial Platelet Disorder (RUNX1-FPD)?
What is RUNX1 Familial Platelet Disorder (RUNX1-FPD)?
Discover comprehensive resources, support tools, and vital information tailored for patients with RUNX1 familial platelet disorder (RUNX1-FPD) and their families. From diagnosis to daily management, our dedicated page offers guidance, community connections, and the latest research insights to suppor
RRP's Cancer Interception/Prevention Research Roadmap
RRP's Cancer Interception/Prevention Research Roadmap
Donate to RRP
Donate to RRP
RRP Shop
RRP Shop
Inherited Thrombocytopenia (ITP): What Is It, Whom To Test and How To Test?
Inherited Thrombocytopenia (ITP): What Is It, Whom To Test and How To Test?
Patient Spotlights
Virginia & Gabriel
Virginia & Gabriel
Melissa and Ethan
Melissa and Ethan
Halie's Story
Halie's Story
The Berg Family
The Berg Family
The Anderson Family
Vimeo
The Anderson Family
The Babich Family
The Babich Family
The Manch Family
The Manch Family
The Cryan Family
The Cryan Family
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