@TheAFTD

@TheAFTD has been a member of Linktree for 5 years and joined in February 2021. The social media accounts linked to from @TheAFTD are: • Facebook • Instagram • TikTok • YouTube • LinkedIn • Email • Threads • X • Bluesky • Phone • Website Besides social media accounts, theaftd has populated their site with: • Navigating Apathy in FTD • Disinhibition in FTD • California Senate Health Committee Unanimously Advances Bipartisan Bill to Add FTD to the State’s Neurodegenerative Disease Registry | AFTD • Running Through It: Mike Brucklier's Marathon Journey • Submit Artwork for FTD in the Arts • Dear HelpLine: The Caregiver Mind • AFTD - The Association for Frontotemporal Degeneration • When Words Become Hard to Reach: John Corvino's Journey with PPAOS | AFTD • Rev. Jesse Jackson, Diagnosed with PSP, Dies at 84 • Introduction to Frontotemporal Dementia (FTD) Biomarkers - Mar 10th • AARP Highlights What FTD Caregivers Need to Know • AFTD's Esther Kane and Volunteer Liz Zadnik Interviewed on Podcast • FTD Call To Action Featured In Canadian Media • The Lived Experience of FTD: FTD in the Arts • AFTD Healthcare Professional Webinar - Feb 12th • With Love 2026 • AFTD's 2025 Impact Report • AFTD’s 2025-2028 Strategic Plan • For Health Professionals • For Researchers • FAQs • View all AFTD News • Employment Opportunities • AFTD's Provider Letter • Brain Donation is Final Gift of 24-Year-Old Diagnosed with FTD • Art as Hope: Emma Heming Willis Featured in CNN Segment on FTD In the Arts • Understanding the Path to an FTD Diagnosis • AFTD Blog & Updates • Genetic FTD News Drives an Artist to Pick Up Paintbrush Again • Dignity Care as an Essential Dementia Guidepost • AFTD Advocacy Webinar - January 28 • What is FTD? • From Sean 1.0 to Sean 2.0: One Couple's Journey with FTD • FTD & Genetics Overview • Hope on the Horizon: Daniel Barvin's Personal Mission to Transform FTD Treatment • Newly Diagnosed with FTD • Our Deepest Gratitude to Dr. Walter Koroshetz • AFTD Support Groups • AFTD and partners award $2.1 million in first year of new FTD Diagnostic Biomarkers Initiative | AFTD • Comstock Grants • AFTD’s New Genetic Counseling and Testing Recommendation • Helpful Resources • From Caregiver to Advocate: One Woman's Mission to Transform FTD Support • Advocacy Action Center • AFTD's Diagnostic Checklist • Volunteer Opportunities • Recommended Reading • Ways to Participate in Research • Congratulations to AFTD Research Grant Awardees! • AFTD Store • Help & Hope: The Top Articles of 2025 • Support AFTD's Mission • Donate to Support Families Like Jennifer and Jim • 'Ask a Genetic Counselor' Webinar on April 14 • AFTD Ambassador Carrie Edwards Shares Her Lottery Story on Tamron Hall • Donate to Support AFTD's Mission: 2026 Spring Appeal • The Lived Experience of FTD: “Holiday Hacks” That Can Make the Season More Enjoyable • AFTD 2026 Education Conference • Bobby Kimball, Toto's Original Lead Singer, Living with FTD • Donate to Support AFTD's 2026 Education Conference • AFTD Director of Research Engagement Shana Dodge Presents at 2025 NORD Breakthrough Summit Lightning Round • AFTD Welcomes New AFTD Ambassadors • AFTD 2026 Race Season • AFTD's Awareness Cards • AFTD Independent Events • How to Explain FTD to Kids & Teens • AFTD Insights • AFTD CEO Susan Dickinson Featured on Dementia Untangled Podcast • Dear HelpLine: Sharing the Diagnosis • Love Will End FTD: Katie Brandt on Caregiving, Loss, and Leading Change | AFTD • Finding Your Way Through the Holidays with FTD • The State of FTD Research Featuring AFTD's Shana Dodge • FTD Research 2025: Paving the Path Towards Effective Treatments • Vanity Fair Features Soho Sessions AFTD Benefit in Honor of Bruce Willis • Donate to AFTD Giving Tuesday 2025 • Honor Helen-Ann's Legacy Today • AFTD Grantee Leads Basic Science Study Exploring Role of Protein in Tau-Based Disorders like CBD • Amylyx Pharmaceuticals Ends PSP Trial of AMX0035 • Rev. Jesse Jackson, Civil Rights Leader, Diagnosed with PSP • National Family Caregivers Month 2025 • Ways to Manage Stress of FTD - National Family Caregivers Month 2025 • Why Advocacy Matters Featuring AFTD's Meghan B. • AFTD and ADDF Award $2.5 million to Vesper Biotechnology for Drug VES001 Clinical Trial in FTD | AFTD • November 2025 Webinar: Supporting FTD Care Partners with Individual Therapy • Dear HelpLine: Find the Helpers • AFTD Ambassador and “Protective Mama Bear” Dawn Kirby Interviewed on Podcast • New Recommendation: Expanding Genetic Counseling and Testing for People Diagnosed with FTD | AFTD • A Rose with Pink Petals: How FTD Revealed Deb Jobe's Hidden Artist | AFTD • Alector Clinical Trial Results Townhall • Tips & Advice: When "I'm Fine" Isn't Fine - Understanding Anosognosia in FTD | AFTD • Alector Therapeutics Announces Results From Their Phase 3 Clinical Trial Evaluating Latozinemab • New York State FTD Registry Bill Signed into Law • Donate to Support AFTD's Mission: 2025 Fall Appeal • AFTD CEO Susan Dickinson to Retire in May 2026; AFTD Board Leading Search for Successor • Epilepsy More Common in FTD than Alzheimer’s, Study Finds • Dr. Laura Podcast Hosts AFTD’s Esther Kane • National Estate Planning Awareness Week 2025 • Something went wrong • The Lived Experience of FTD: Anosognosia • The Lived Experience of FTD: The Benefits of Pets • Comedian Shares Her FTD Caregiving Journey on Podcast • October Webinar - Talking to Family About Genetic FTD Risk • Food for Thought 2025 • PSP Diagnostic Checklist • Dear HelpLine: What Comes After an FTD Diagnosis • People at Potential Risk of Developing FTD Share Views on Effects of Predictive Biomarker Testing • FTD Science Digest - September 2025 • Broadcaster Wendy Williams Diagnosed with FTD • AFTD Ambassador Carrie Edwards donates lottery winnings to AFTD |Lottery Charity Donations • AFTD Ambassador Julia Pierrat featured in Los Angeles Times • Dear HelpLine: AFTD's Awareness Cards • World FTD Awareness Week 2025 • Guest Feature: Learning to live with familial FTD • Driving Hope Golf Tournament • What About the Kids? • Living Well with an FTD Diagnosis • Ferrer PSP Drug Receives Fast Track Designation from U.S. FDA • The Lived Experience of FTD: Talk Therapy in FTD - Risks and Benefits • bit.ly • Emma Heming Willis Shares Family Updates on The Oprah Podcast | AFTD • Emma Heming Willis Interviewed by Diane Sawyer in Prime-Time Special • AFTD News - Volume 22 Issue 2: Summer 2025 • Leading FTD Expert Dr. Bruce Miller Interviewed on “Big Brains” Podcast • Hope Rising 2025 Keynote Speaker Spencer Cline • AFTD Founder Helen-Ann Comstock, 1933-2025 • Honor Helen-Ann's Legacy • Book About Family’s FTD Journey Helps Raise Funds for AFTD’s Mission | AFTD • Altered Production of Certain Protein Groups Identified as Potential Markers of FTLD Severity in Study • AviadoBio and Astellas Senior Staff Discuss ASPIRE-FTD Trial in Interview • Guest Feature: Forget Me Not • Dear HelpLine: Resources for Genetic FTD • Donate to Support AFTD's Mission: 2025 Summer Newsletter • Growing Up with FTD: Young Caregivers on the FTD Journey • From Symptom Onset to Diagnosis: Improving the FTD Diagnostic Journey • In Podcast Interview, AFTD Ambassador Shares How He Found Purpose Amid Grief | AFTD • Genetic Counseling and Testing Should Be Offered to Persons Diagnosed with FTD, Experts Argue | AFTD • PBS Documentary Spotlights FTD Couple to Exemplify U.S. “Caregiving Crisis” | AFTD • Awareness Cards • Sharing Your Story to Make a Difference: How to Connect with Legislators • World Brain Day 2025 • Florida Radio Station Spotlights AFTD Ambassador for His Dementia-Care Advocacy | AFTD • Passage Bio Provides Updated Interim Data from UpliFT-D Clinical Trial for FTD-GRN • Brothers Explain in Podcast How They Live With Gene Linked to FTD • Brain Pathology Consistent with FTD Found in Roughly 35% of Motor Neuron Disease Cases in Recent Study • FTD 101: AFTD 2025 Education Conference • Millennial Whose Father Has PSP Explains the Challenges Faced by Millennial Caregivers • Booklets on FTD • Protect Vital Medicaid Programs! • Dear HelpLine: Comstock Grants • Chinese Study Explores the Psychological Well-being and Health of Dementia Caregivers • Promising FTD Gene Therapy from AviadoBio Featured in the UK Guardian | AFTD • Leonard A. Lauder, 1933-2025 • The Lived Experience of FTD: The Challenges of July Fourth | AFTD • Vesper Bio Trial for FTD-GRN Treatment Achieves Enrollment Milestone • Celebrating July 4th with FTD • AFTD Ambassador Shares Husband’s FTD Journey with West Virginia Newspaper | AFTD • AFTD News - Volume 22 Issue 1: Spring 2025 • "Alzheimer's & Dementia" Publishes Summary of AFTD's 2022 Holloway Summit • The Critical Role of Biomarkers in Diagnosis and Treatment • Register for the Speech Language Therapy Webinar • British Study Evaluates Ability of Novel Protein Assay to Capture Blood-Based Dementia Biomarkers • Donate to Support AFTD's Mission • Genetic FTD Advocate Linde Jacobs Profiled in CBS Minnesota Segment • Advancing Hope: Blood Test for Diagnosing Alzheimer’s Disease Approved by FDA • Emma Heming Willis Honored with Caregiving Award • AFTD Medical Advisor Emeritus Virginia Lee Elected to National Academy of Sciences | AFTD • Former U.S. Rep. Wexton, Living with PSP, Featured in “Brain & Life” Magazine | AFTD • The GUIDE Model and FTD • Session Videos Now Available from AFTD's 2025 Education Conference • Study Identifies Profile of Blood-Based Inflammatory Proteins as Potential FTD Biomarker • Coya Therapeutics Reports Positive Interim Results in Clinical Trial for Experimental FTD Therapy | AFTD • Navigating FTD-ALS • Matching Gifts • The Latest in FTD Research • AviadoBio Announces Completion of Second Cohort in ASPIRE-FTD Trial at AFTD Education Conference • Credit for Caring Act of 2025 • What is sporadic FTD? • What is familial FTD? • Tips & Advice: Navigating Apathy in FTD • The Lived Experience of FTD: Managing Anxiety • Two Drugs Selected for Evaluation in Platform Trial for PSP • Former Judge Gains Artistic Ability after PPA Diagnosis • FTD and ALS Joint Initiatives • FTD in the Arts • What is apathy? • Genes That Cause FTD • Study Evaluates PET Tracer and Explores How PSP Damages Brain Synapses • Hospice Care for FTD • PPA Telehealth Intervention Gets Positive Results in Phase 2 Clinical Trial • AFTD Webinar - Partners in Drug Development • Planning for Legal, Financial, and Health Insurance Issues • Donate to AFTD's 2025 Education Conference • Register for the AFTD 2025 Education Conference • Speech Therapy CE Course Features AFTD Ambassador Dawn Ducca • Study Evaluates the Efficacy of Nasally Administered Hormone for Apathy in FTD • Hope Rising Benefit Raises Over $1.9 Million for AFTD’s Mission • TD 5 Boro Bike Tour 2025 • AFTD Webinar: How to Find a Genetic Counselor • Amplifying AFTD's Advocacy • FTD Science Digest • ABC News Honors AFTD Ambassador Spencer Cline as “Person of the Week” • Review Article Explores Lived Experiences of Ceasing Driving Due to Young-Onset Dementia • Review Article Explores Lived Experiences of Ceasing Driving Due to Young Onset Dementia • Dear HelpLine: Advanced Care Planning • N.Y. Senator Hinchey Reintroduces Bill to Create State FTD Registry | AFTD • “Inside Edition” Highlights Upcoming Documentary About a Family’s FTD Journey • Pair of Studies Make Significant Findings in Search for FTD Biomarkers • Study Examines Nature of Criminal Risk Behaviors in Dementia • Webinar Recording of 'At the Intersection of FTD and the Law' • AFTD Joins Nearly 150 Supporters in Letter Urging Congress to Reject Medicaid and SNAP Cuts • TD Bank Five Boro Bike Tour • Passage Bio Announces Interim Data for UpliFT-D Trial for FTD-GRN • Our Journey Through FTD and Why I Wrote “Welcome to the Honey B & B” • Statement from AFTD on the Need for Robust and Consistent Medical Research Funding • National Doctors' Day 2025 • AFTD and You: Partners in Drug Development Webinar • FTD Researchers Call for Greater Focus on Diversity to Address Disparities in Care and Research • H&H Advocacy Update: Protect FTD Research • Support the AFTD-Team - Los Angeles Marathon 2025 • Submit your Artwork for FTD in the Arts • Statement from the AFTD on Disruption of Scientific Research Funding and Activities • International Women's Day 2025 • Vesper Bio Clinical Trial for FTD-GTN Enters Phase Ib/IIa • With Love 2025 • FTD Research Roundtable • FTD and Intimacy By Anne Fargusson, RN • Home and Community Care Options • At the Intersection of FTD and the Law Webinar • Upcoming UCSF Trial to Evaluate Effectiveness of Three Drugs for PSP • Managing the Emotional Impact of Job Loss in FTD • AFTD 2025 Education Conference • Recommended Reading/Viewing • AFTD Webinar: Paving the Path Forward -- Advancing AFTD's Public Policy Priorities • Remember Me Podcast Discusses Grief with AFTD Staff in Recent Episode • AFTD's 2025 Policy Priorities • In TEDx Talk, Neuroscientist Shares Her Father’s FTD Story and Her Hope for Dementia Research Breakthroughs • Denali and Takeda Open FTD-GRN Clinical Trial Site at UPenn • Extracellular Vesicles in Plasma Could be FTD-ALS Diagnostic Biomarker, Study Finds • New AFTD Ambassadors • Ohio Care Partner Shares Story to Help Others on the FTD Journey • Paving The Path Forward: Advancing AFTD's Public Policy Priorities • Walking with Grief: Loss & the FTD Journey • Most Asked Areas of Our Website • Become an FTD Research Ambassador • Tips & Advice: Incontinence - A Troubling Symptom | AFTD • Can a Tau PET Tracer Aid FTD Diagnosis? Study Explores How Tracer Performs in Other Tauopathies • Difference Between Clinical Care and Clinical Research • Article Lists Ways Researchers Can Involve People with Dementia in Identifying Research Priorities • Donate to AFTD's Fall Appeal 2024 • FTD Research '24 - Where We’ve Come From & Where We’re Headed • Help & Hope: The Top Articles of 2024 • Linde Jacobs Shares Her Families FTD Journey with the New York Times • AFTD Research Team: A Year in Review • Types of FTD • AFTD Ambassador Advocates on Behalf of the Older Americans Act • Employer Matching Gifts • Popular FTD Resources • National Virtual Meet & Greet - January 6, 2025 • New York Software Company Awards AFTD Gift to Honor Employee's Late Cousin • AFTD Attends 2024 Society for Neuroscience Meeting • Transposon Presents Results from Successful Phase 2 ALS/FTD Clinical Trial • AviadoBio Shares Hopes for FTD Therapeutic Options • AFTD Care Partner Learning Series Webinar: Navigating the Holidays with an FTD Diagnosis • Ferrer Doses First Participant in Phase 2 Study for PSP Treatment • AFTD Develops New Gene Therapy Resource • Sponsored Testing Programs; opportunities for no-cost genetic testing • FTD Research 2024: Where We’ve Come From and Where We’re Headed • AFTD Advocacy: State Resolution Training • Persons with FTD Advisory Council Special Article: Holiday Madness • Denali Therapeutics Shares Insight Into Developing Treatments • All in the Family to end FTD: Colonial Electric’s Food for Thought Event Clears More than $1 Million Since Inception • National Hospice and Palliative Care Month 2024 • Young Caregiver Talks About Finding Support Amid FTD Journey on Dementia UK Podcast • Advancing Hope: AFTD Staff Attend NORD Breakthrough Summit in Washington, DC • Thanks to Generosity of AFTD Ambassador, Californians Receive Crucial Financial Help • Impact Report 2024: Empowered Together to End FTD • GemVax & KAEL Announces Results from Phase 2a Clinical Trial for PSP • Dear HelpLine: Navigating Travel During the Holidays • AFTD Webinar: Diagnosing Primary Progressive Aphasia • Care Partner Learning Series: Navigating the Holidays with an FTD Diagnosis • AFTD hosts 2024 FTD Research Roundtable Meeting • Support for Veterans • Emma Heming Willis Shares Her FTD Experience and Advocacy Work in “Town & Country” Magazine • Young Woman Tells Her Family’s FTD Story on Philadelphia News Segment • Understanding Ambiguous Loss and Anticipatory Grief • AFTD Ambassador Shares Her Family’s FTD Story with Massachusetts Newspaper | AFTD • Study Finds That FTD and ALS Have Similar Cellular and Molecular Characteristics • Psilera Announces Positive Preclinical Data for FTD Intervention Candidate • AFTD Advocacy Conversations: Area Agencies on Aging and Older Americans Act • Medical Technology CEO Discusses Using EEG to Differentiate FTD and Alzheimer’s • Guest Feature: One Woman’s Journey - from Getting Diagnosed to Attempting Suicide to Embracing Life • Food for Thought 2024 - Heather Sellers • Food for Thought 2024 - Lindsey Hunt • Food for Thought 2024 - Terry Walters • Food for Thought 2024 • Food For Thought 2024 - Big Time's Chili Contest • Food for Thought 2024 - Dawn Kirby • Dear HelpLine: Social Security Benefits for People with FTD • Passage Bio Discusses Hope for FTD Drug Development • Care Partner Learning Series: Navigating Behavioral Variant FTD Symptoms Webinar • Support AFTD’s Mission • World FTD Awareness Week 2024 • AFTD's 2024 Driving Hope Golf Tournament (NY) • Acurastem Receives CIRM Grant for Targeted Therapeutic Program for ALS/FTD • In Memory of George F. Sidoris: Two Siblings' Labor of Love • FTD Diagnosis and the Hispanic/Latino Community • AviadoBio CMO Discusses ASPIRE-FTD Clinical Trial with Neurology Live • The Lived Experience of FTD: Deb Jobe • AFTD Ambassador Shares Her Story on “All Home Care Matters” Podcast | AFTD • AFTD Events - Colorado • New AFTD Find Support Page Simplifies Search for Help • Study Investigates Incidence Rates of FTD and Other Young-Onset Dementias in Italy • AFTD News - Volume 21 Issue 2: Summer 2024 • Spencer & Paul's Bike Across America for AFTD! • Donate to Support AFTD's Mission: 2024 Summer Newsletter • Research FAQ's • Insights on Stigma: Sandy Howe • The Doctor Thinks It’s FTD. Now What? • AFTD Brand Influencer Discusses Commitment to Caring • AFTD Grant Recipient Discuss Gene Therapy for FTD-GRN on Canadian TV • Dear HelpLine: Transitioning to Facility Care • FTD Awareness Week Officially Recognized in Five Additional States • Ways to Participate in FTD Research • Planned Giving Opportunities - Jary Larsen • ASPIRE-FTD Phase 1/2 Clinical Trial Opens First US Site at Ohio State University • AFTD's 2024 Driving Hope Golf Tournament (CO) • Philadelphia Marathon 2024 • Care Partner Emphasizes the Benefits of Support from Others Who Understand FTD • Finding Answers: FTD Research & You • Get Involved • Opinion Column Highlights Racial Disparities in Dementia Care and Need for Support • Advocate for Awareness: Working with Lawmakers to Highlight FTD • The Lived Experience: Brain Donation • Volunteer Update: AFTD Welcomes New AFTD Ambassadors • Passage Bio Receives Positive Feedback from FDA on Expanding Gene Therapy to C9orf72 • Researcher Explains the Role of Genetics in FTD, Discusses Avenues for Treatment • British/Dutch Study Discovers Role of ANG Gene Mutations in ALS-FTD • AFTD and ALLFTD Collaborate on Brain Donation Video • Dear HelpLine: Support for Familial & Genetic FTD • Vesper Bio Completes Phase 1 Clinical Trial for Potential Disease Modifying Treatment for FTD-GRN • Study Explores Racial Differences in Clinical Presentation of FTD Symptoms, Disease Severity • Advocacy Update: Join AFTD in Advocating for FTD Awareness Week in All 50 States • Delaware Passes Resolution Recognizing FTD Awareness Week 2024 • Viewpoints of FTD: Brain Donation • World Brain Day 2024 - Brain Donation Webinar • Newly Diagnosed Checklist • Ways to Give • Insights on Stigma: Seth Stern • AFTD Volunteer Receives “Visionary of the Year 2024” Award for 40 Years of Advocacy • Ways to Give: Recurring Donor Program • AFTD Volunteer Speaks about Trading Career for New “Vocation” as Caregiver • Transposon Therapeutics Receives Fast Track Designation for PSP Treatment • Spring Appeal 2024 • Guidance on Brain Donation • Brain Donation Flyer 2024 • Aprinoia Therapeutics Receives Fast Track Designation for PET Tracer Used to Diagnose PSP • National Meet & Greet for LGBTQ+ Care Partners • FTD & ALS: A Collaborative Approach to Diagnosis and Care • Biomarkers Consortium Letter of Intent to Qualify FTD Biomarker accepted by FDA • AFTD Board Member Kristin Holloway Tells Her FTD Story to Self Magazine • The new FTD Disorders Registry is Now Live! • Study Discovers How Variations in TMEM106B Gene Influence Risk & Severity of FTD • AFTD Staff and Emma Heming Willis Commemorate FTD Week Resolution in Calif. • AFTD Joins National Institutes of Health AMP ALS Initiative as Partner • Passage Bio Highlights Promising Clinical Trial Progress in Quarterly Update • U.K. Researchers to Conduct Nationwide Trial Evaluating Blood Test for Dementia • Case Report Discusses Symptoms & Diagnosis of PSP • Dear HelpLine: Brain Donation • Colfax Marathon 2024 • AFTD In-Person Meet & Greet: Bristol, PA • New York State Senator Michelle Hinchey Introduces First-in-the-Nation Legislation to Create FTD Research Registry • AFTD Insights - Spring 2024 • Lorenzo’s Worldwide Youth Summit • FTD Advocate Discusses Isolation and Housing Concerns Faced by Family Care Partners • Unidos en el camino: reunión de personas confrontando la DFT • A Fireside Chat with Susan Dickinson & Emma Heming Willis • First Participant Treated in AviadoBio Phase 1/2 Clinical Trial • Tips & Advice: Roaming & Wandering • Not All Forms of PPA Are FTD, as Recent High-Profile Case Highlights • AFTD 2024 Education Conference • Support AFTD's 2024 Education Conference • Perspectives in Research Webinar: Navigating Social and Legal Challenges in Familial FTD • AFTD Ambassador Honors Daughter by Spreading FTD Awareness • Balancing Safety and Autonomy When Persons Diagnosed Leave the Home • Dementia Advocate with FTD Shares Her Perspective on Losing Her Driver's License • Researchers Adapt Digital Intervention for Dementia Care Partners for FTD, Other Dementias • Dear HelpLine: Hyperorality • The Lived Experience of FTD: Driving and FTD • Roaming in FTD Has an Underlying Reason, Report Says • Recent Study Highlights Reliability and Validity of ALLFTD Mobile App for Diagnosis and Research • Noche de Cine y Charla sobre la Demenciade Inicia Temprano • AFTD Partners with ALS Association to Support Advancing Digital Tools • Finding Support and Understanding on the Go with the Hidden Disabilities Sunflower • FTD Care Partner Shares Memories of Her Mother on TikTok • Link Between TAF15 Protein & FTD Discovered in UK Study • High-Profile FTD Diagnoses Boost Public Awareness, AFTD Ambassador Says • Dear HelpLine: Looking for Support Options • A Note to the AFTD Community about Wendy Williams’s FTD Diagnosis • Making a Difference: Become an FTD Advocate Webinar • Magazine Editor Shares Legacy of Beloved Seattle Music Promoter Diagnosed with FTD • #EndDementiaStigma Toolkit • AFTD Launches Social Media Campaign to #EndDementiaStigma • Los Angeles Marathon 2024 • Roseville, Calif. Meet & Greet • Advocacy Update: Rare Disease Day and FTD • Guest Feature: Somebody's Sister • AFTD Webinar: The Current State of FTD • Brain Awareness Week 2024 • AFTD CEO Discusses Wendy Williams's FTD Diagnosis • AFTD Volunteer Shares Father's FTD Journey to Promote Awareness in News Interviews • Memphis, Tenn. Meet & Greet • With Love 2024 • With Love 2024 - Kristen Celusniak • Treat FTD Grant Recipient Discusses FTD-GRN Gene Therapy in Newspaper Interview • Transposon Announces Results from Phase 2 PSP Trial, Interim Results for Phase 2 FTD/ALS Trial • Austin Marathon 2024 • With Love 2024 - Michelle Slough • Delray Beach, Flo. Meet & Greet • Addressing Barriers to Diagnosis, FTD Care, and Research Participation Faced by Black/African Americans • FDA Grants Breakthrough Therapy Designation to Experimental FTD Therapy • UK Researchers Discover How to Block Toxic Protein Associated with FTD and ALS • Montana Woman Shares Family's FTD Journey in Interview • Tucson, Ariz. Meet & Greet • Kevin Rhodes Shares His Journey with FTD • Partners in FTD Care - 2023 Winter Issue • Viewpoints of FTD: Addressing Barriers to Diagnosis, FTD Care, and Research Participation Faced by Black/African Americans | AFTD • With Love 2024 - Dianna Smith • Capturing Voices - Considerations When Writing YOUR Book • What to Look for When Considering Facility Care for a Person with FTD • NY State Senator Michelle Hinchey Introduces Bill to Create State FTD Registry • News Report on Tallahassee Couple’s FTD Journey Highlights Challenges of Misdiagnosis • Familial Conference: Uncovering the Genetics of FTD/ALS • Public Benefits When Notable Names Share Neurological Challenges, UCLA Professor Writes • Dear HelpLine: Dealing With Genetic Uncertainty • Researcher Discusses Integrating Genetic Testing Into Routine FTD/ALS Care in Podcast Interview • AFTD and ADDF Extend Treat FTD Fund Program Through 2035 • Gene Therapy for FTD: What Do I Need to Know? • The Lived Experience of FTD: Grief on the FTD Journey • “We’re Just Regular People with an Illness,” Dementia Advocate with FTD Writes in Essay • AFTD Ambassadors • Fall Appeal 2023 • Passage Bio Announces Hopeful Initial Data from Phase 1/2 Clinical Trial • RedEye Reviews Charity Fundraiser • 2023 Impact Report • AFTD Volunteer Highlights Differences Between FTD and Alzheimer’s in Newspaper Article • U.S. Justice System Stumbles When Faced with FTD and Other Dementias, Article Finds • Volunteer Update: Hosting a Meet & Greet Event • FTD Behavior Tracker • Dear HelpLine: Connecting During Facility Visits • AFTD News - Volume 20 Issue 3: Fall 2023 • Pilot Study Evaluates Virtual Coaching’s Ability to Help FTD Care Partners with Self-Care • Open Hand Foundation Provides AFTD $600K Donation