SYNGAP1 Foundation
Dedicated to Improving Lives of Families Affected by SYNGAP1-related Disorders
SYNGAP1 Foundation
SYNGAP1 Foundation
Join our SYNGAP1 Facebook Page
Join our SYNGAP1 Facebook Page
twitter.com
twitter.com
SYNGAP1 Foundation YouTube
SYNGAP1 Foundation YouTube
The SYNGAP1 Foundation is the leading, 501(c)3 non-profit, patient advocacy organization dedicated to improving the quality of life for patients and families affected by SYNGAP1. Our priorities include raising public awareness, patient and family advocacy initiatives, educational programs, scientific research conferences and financial support for research. In addition, the SYNGAP1 Foundation maintains the largest SYNGAP1 (MRD5) Online Natural History Data Registry in coordination with NORD and with grant funding provided by the FDA. The registry helps us provide the data needed to accelerate SYNGAP1 research. We have also formed strategic partnerships and collaborations with a diverse group of SYNGAP1 stakeholders to help accelerate the pace of research and maximize our impact.
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Login • Instagram
SYNGAP1 Foundation | LinkedIn
SYNGAP1 Foundation | LinkedIn
SYNGAP1 Foundation | 2,343 followers on LinkedIn. We are the worlds first research & advocacy organization, & hold the largest #SYNGAP1 NHS & Patient database worldwide. | SYNGAP1 Foundation (501(c) 3) is a non-profit organization whose mission is to serve, educate, and fund research for families coping with the effects of SYNGAP1 mutations and overlapping neurological diseases and mental illnesses, such as Alzheimer’s, Parkinson’s’ and Schizophrenia that are linked to the SynGAP protein, which our children are lacking in the brain.
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