@scn8a

scn8a has been a member of Linktree for 3 years and joined in May 2023. The social media accounts linked to from scn8a are: Facebook, Instagram, LinkedIn, Email, X. Besides social media accounts, scn8a has populated their site with SCN8A Family Survey on Roadmap Progress- English, Last Day to Submit Your Art, SCN8A Awareness Day: Shedding Light on Rare Genetic Disorders - SCN8A Alliance, 2026 International SCN8A Awareness Day Live Event - SCN8A Alliance, SCN8A Family Survey on Roadmap Progress - Spanish, Giving Tuesday 2025 - SCN8A Alliance, Diagnosis and Treatment of SCN8A: A Game-Changer - SCN8A Alliance, Donate on the Web, Share Your Story, Share Your Story, View the SCN8A Consensus Family Booklet, Addressing Severe Challenges of SCN8A, SCN8A Greeting Cards, SCN8A Support Meetings, SCN8A Multidisciplinary Clinics, Diagnosis & Treatment of SCN8A - SCN8A Alliance, The Science of SCN8A, Children’s Hospital Colorado Multidisciplinary Clinic, SCN8A Collaborative Grants - Request for LOIs, Seizure Action Plans - DEE-P Information Resource Center, SCN8A Caregiver Advisory Council Application Form, SCN8A Research Roadmap - SCN8A Alliance, Check Out the SCN8A Art Auction, Tell Your Caregiver Story, Caregiver Connect: Open Discussion & Newly Diagnosed - SCN8A Alliance, Help Advance SCN8A Research, Addressing Behavioral Challenges: LOF, Mild GOF, and Impacts on School, Autism, Speech, and More - SCN8A Alliance, Help Advance SCN8A Research, Praxis Submits NDAs for Ulixacaltamide in Essential Tremor and Relutrigine in SCN2A/SCN8A Developmental Epileptic Encephalopathies | NeurologyLive - Clinical Neurology News and Neurology Expert Insights, SCN8A Unraveled - Genotype and Phenotype Relationship, Caregiver Connect: Open Discussion & Newly Diagnosed - SCN8A Alliance, SCN8A Ambassadors - SCN8A Alliance, Volunteer for SCN8A Awareness Day - SCN8A Alliance, Read the Full Consensus Publication, Share What You're Celebrating, Watch Our Family Education Videos, SCN8A Art Auction Information, Early Diagnosis is Critical, Sage Journals - SCN8A Article, Diagnosis and Treatment of SCN8A: A Game-Changer - SCN8A Alliance, Inheritance in SCN8A Family Discussion, scn8a.info, SCN2A/SCN8A Multidisciplinary Center Info Session – Children’s Hospital Colorado, SCN8A Global Leaders Alliance, Diagnosis & Treatment of SCN8A - SCN8A Alliance, SCN8A Collaborative Research Network, SCN8A Treatments - SCN8A Alliance, Tackling Challenging Behaviors in SCN8A, SCN8A Phenotypes - SCN8A Alliance, Help us advocate by sharing your story!, SCN8A Lemonade Stand - SCN8A Alliance, Addressing Behavioral Challenges in SCN8A, SCN8A Base Editing Webinar Recap, Take Action: Volunteer to Fight SCN8A and Raise Awareness - SCN8A Alliance, Meet Raquel Miralles, PhD | Science and Research Director, SCN8A Consensus - Diagnosis & Treatment, Genetic Testing Parent Toolkit from StartGenetic.org, SCN8A Consensus - Comorbidities & Prognosis, 2025 International SCN2A& SCN8A Family & Professional Conference - SCN8A Alliance, Download the SCN8A Consensus family booklet, A research roadmap for SCN8A-related disorders: addressing knowledge gaps and aligning research priorities across stakeholders - Orphanet Journal of Rare Diseases, Published article: A research roadmap for SCN8A-related disorders, Remembering Mack “Forever our Mackaroni”, Take Action: Volunteer to Fight SCN8A and Raise Awareness - SCN8A Alliance, Progress in SCN8A Research: Praxis Clinical Trial Summary, Using Artificial Intelligence to Improve Treatment Choices for SCN8A-Related Epilepsy - SCN8A Alliance, SCN8A Treatments - SCN8A Alliance, New Research Sheds Light on How SCN8A Affects the Brain - SCN8A Alliance, Share the SCN8A Consensus with Your Provider, Tell Your SCN8A Story, About Genetic Testing, A New Approach to Treating SCN8A-Related Disorders - SCN8A Alliance, SCN8A Upcoming Meetings and Events, SCN8A Global Research Roadmap, SCN8A Diagnosis, SCN8A Alliance | Official Merchandise, Sign Up for the Latest SCN8A Information, SCN8A Diagnosis - Understanding Genetic Diversity, Get Involved - SCN8A Alliance, When to ask for a surgical evaluation, About SCN8A - SCN8A Alliance, SCN8A Newly Diagnosed Guide - SCN8A Alliance, SCN8A Events and Meetings, About SCN8A, SCN8A Family Dinner - SCN8A Alliance, Blog, VIP Caregiver & Siblings Kits, International SCN8A Alliance - Home, Genotype-phenotype correlations in SCN8A-related disorders reveal prognostic and therapeutic implications, Donate on Facebook, 2025 International SCN8A Awareness Day Live Event - Transforming SCN8A, SCN8A Art Auction Sign Up, Support National Plan | Epilepsy Caucus, SCN8A Research Breakthroughs: Advancing the Pace of Science - SCN8A Alliance, SCN8A Superhero Stories, SCN8A Stories, SCN8A Unraveled, SCN8A Grandparents and Extended Family Meetup - SCN8A Alliance, Addressing Behavioral Challenges: LOF, Mild GOF, and Impacts on School, Autism, Speech, and More, What is base editing & what does it mean for SCN8A?, Mother's Day SCN8A Art Auction, Alternate Giving Methods, Saturday SCN8A Family Dinner - RSVP, SCN8A Family Meeting: UK and Ireland, Facebook, SCN8A Important Information for Families, Understanding the Functional Impact of SCN8A Variants and Treatment Options, The Inchstone Project - DEE-P Information Resource Center, Check for Inheritance in SCN8A, 2024 Live International SCN8A Awareness Day Event - The State of SCN8A, Join Us For International SCN8A Awareness Day.